Monthly Archives

May 2018

World MS Day 2018 – Kolkata

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Bhalo thaakar Gaan” (Good music for good life) – A soulful and enthralling musical evening was held with performances by national award winning singer Rupankar Bagchi and Sidhu (lead man of popular Bangla band – Cactus) featuring Bengali film hits and modern songs along with golden oldies in Hindi to celebrate World Multiple Sclerosis (MS) Day 2018 in support of Multiple Sclerosis Society of India, Kolkata chapter. This was held on the evening of 31st May 2018 at Kala Mandir, one of best auditorium in the City of Joy. The event was attended by over 500 music loving Kolkatans, who had joined hands to support this critical and incurable neuro ailment.

The evening took off by a welcome speech by Anirban Banerjee, the Hon Joint Secretary of MSSI, Kolkata who wholeheartedly thanked the audience and the corporates who supported the cause. The Hon. Secretary of the chapter Ms. Anuradha Goswami then spoke and stressed on spreading maximum awareness about MS across all. The same appeal was reinstated by the Chairman of the Kolkata chapter – Mr. Anand Chopra who then invited the society’s national President Mr. Viresh Oberoi who graced the occasion with his grand presence. Mr. Oberoi then invited senior neurologist of Bangur Institute of Neurosciences, Dr. Gautam Ganguly who spoke at length on the new treatments getting unfolded to fight MS.

Then Sidhu started his musical performance in his unique energetic style. He performed some Hindi oldies which was very relevant to the evenings theme and also performed some Bengali hits including the much admired “Holud Pakhi” of Cactus and some folk numbers where the audience too lent their voice. One of the memorable moment of the evening was when Sidhu performed “Bhalo thaakar Gaan” – a song which was written and composed by Sidhu for the event to celebrate World MS Day 2018. Then much to delight of the present audience, Sidhu called Rupankar on stage and together they sang “Amar bhitor bahire, antare antare” and the crowd just went berserk.

The very popular Rupankar then came on stage and kept on performing all his hits one after another and the requests just came pouring in and he happily obliged too. He also performed “Sanket”, the song he had written and composed for World MS Day in 2017.

Both the performers spoke at length on MS and appealed to the present public to spread awareness and support the unfortunate people fighting MS.

The melodious evening came to an end with a vote of thanks by the Vice Chairman Kolkata chapter – Mrs. Swapna Ghosh.

The event got wide spread media coverage where event teasers got published in Dainik Statesmen and Eastern Chronicle. Post the event we got coverage from Calcutta Times (Times of India), The Statesman, Ei samay, Sangbad Nazar and online news articles with photographs in The Times of India, ibgnews.com, Sholoanabangaliana.com till date.

World MS Day 2018 – Indore

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Indore Chapter organised a medical camp for WMSD. This was attended by 125 persons .

Medical health check included sugar test, blood pressure test and Korean based acupressure therapy. This therapy was very much appreciated by MS persons and caregivers.

There was an  interactive session  on affordable treatment for MS between neurophysicians, MS persons and caregivers, guests and members of MSSI Indore Chapter.

Event ended with refreshments.

Thanks to Sanfofi for their support which helped us in organising this event.

World MS Day 2018 – Delhi

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1.Along with the rest of the world and seven other Chapters in India, MSSI Delhi  held a series of events in line with this year’s theme of research, giving all those who are curious about MS research an opportunity to meet people involved and learn more about progress in the field. The Multiple Sclerosis Society of India Delhi Chapter and India’s leading Research Centre & Hospital All India Institute of Medical Sciences held  an open day for people to meet experts working in MS research & treatment, including psychotherapy and counseling. It invited the public to learn about MS and how it affects different aspects of daily life.

An awareness Seminar was organised at India’s foremost Hospital & Medical Research centre All India Institute od Medical Sciences (AIIMS) A Panel discussion was held with 7 leading Neurologists  / Senior Faculty members of the Neurosciences Centre ( NSC) discussing the latest treatments in the search for cure for MS . Dr Kameshwar Prasad , Head of NSC AIIMS was hopeful of the results coming in from AIIMS own research  and corroborated with similar research in the rest of the world with regard to hematopoietic stem cell treatment (HSCT) . He is of the belief that in the near future we could expect that HSCT could well become the first line of treatment in MS.

This was attended by over 300 people which included newly diagnosed persons with MS, their families, caregivers, Doctors & members of the general public.

2. During MS Awareness Week, the MS Society of India’s Delhi Chapter engaged with people affected by MS as well as the wider public. An all day Awareness Booth came up at Delhi’s most popular Mall Select City Mall Saket for the whole day on Saturday 26 MayThis Mall sees the highest foot falls , with up to  40,000 visitors on weekends .MSSI Delhi put up an LCD screen showing short films & videos on MS. several thousand pamphlets on “what is MS” were  distributed along with other items like orange MS wrist bands, MS badges , ribbons etc with the WMSD & MSSI logos. Many persons with MS  and their families dropped in and bonded over coffee & pizza spending an exciting day in the Mall – some lucky mamas managed to get a quick free makeover at cosmetic stores while their kids got free balloons at other promotional events !

World MS Day 2018 – Hyderabad

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This was a unique, creative and interesting way to create MS and MSSI awareness by introducing Mandala art at Smiles old age home, Medchal – Hyderabad.  There was a gathering of about 75 people which comprised of senior citizens, trustees with their families and guests, doctors, nurses, government officials of high ranking and the MSSI team.

Colouring Mandalas was both therapeutic and meditative. It was an amazing experience to see everyone so engrossed that they forgot their lunch timings.

Mr. Prasad Gowra, senior trustee of Smiles, thanked MSSI team by gifting a token of appreciation to all the MSSI members and making a donation on behalf of Smiles.

Sparsha Hospice team present, invited us to plan a similar programme for their patients too.

Great achievement! Made awareness and collected funds!

World MS Day 2018 – Yoga

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We organised a three month Therapeutic Yoga workshop for our PwMS , comprising of Asanas and Pranayama’s,  by senior yoga therapist Kamala Cherravuri and her team. This included ten individual sessions and three group sessions. The individual sessions were tailor made for each individual according to one’s symptoms and needs while the group sessions were common to all.

A documentary of the above has been made depicting how Yoga served as a medium for bringing us closer in observing WMSD

Hope you will enjoy watching the attached video as much as we enjoyed making it happen.

World MS Day – Musical Evening – Hyderabad

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The Hyderabad Chapter celebrated World MS Day at City Center Mall, Banjara Hills on 30/5/2018 with the theme “#Bringing us Closer” from 5p.m. to 7p.m. This was a Musical evening with Live singing by our MS person Ms. Hema Gulati Chandra accompanied with Ms. Rani at the keyboard and Mr. Bhaskar at the drums.

Our event began with a welcome address by Chapter Chairperson. She welcomed all the participants and spoke about the importance of World MS day and Hyderabad Chapter’s activities.

Master Gourav Mittal, rendered a beautiful Shloka in Sanskrit.

Prizes were given by Mamta Gupta to MS persons Maheshwar, Arti’s son Gourav and Rebecca who had participated in the photography exhibition  held at Bengaluru. Prizes were given by Sundari Raju, Secretary Mumbai Chapter to the MS personsHema, Maheshwar, Arti, Sushma and Pavan who participated in the story/poem competition held by Mumbai Chapter. Prizes were given by Meena Gupta to the children of MSPs who have been achievers in academics and other competitions. Sai Keertana Dauhgter of Sareesh, Akshara daughter of Srikanya and Gourav son of Arti.

 

Hema took over the stage and started singing, mesmerising everyone with her melodious voice. She sang old and new Hindi and English songs which made some members get up and dance.

Mrs. Ramadevi, PwMS who is currently confined to a wheelchair displayed the true spirit of ‘Life with MS’ by performing a dance while sitting on a chair.

Dr. Mahesh Joshi gave all of us a big surprise by joining in at 7 p.m. He lifted everyone’s spirit with his foot tapping old Hindi songs.

The evening was full of fun and frolic. As with all good things, the event came to an end with a show of solidarity for PwMS, their family members, caregivers, guests and life members by forming a human chain.

The MSSI Hyderabad Chapter expresses their sincere gratitude to our wonderful sponsors . Mr. Sandeep Shah of Subway for  providing snacks and refreshments for all the event attendees. Sanofi Enzyme for their support towards this event. Mr. Asim of City Center Mall providing the venue.  Mrs. Deepthi of Darsh Events for the backdrop, and organising the stage.

World MS Day 2018 – Bangalore – Camp

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MSSI Bengaluru Chapter celebrated World MS Day on 30th May 2018 at Vikram Hospital from 8.30 am to 12.30 pm. Coinciding with the theme #bringinguscloser we had a large number of participation from MS persons, their family members, Caregivers, Doctors, Pharma people, volunteers, Physiotherapists etc., More than 80 people were present including 35 MS persons.

Initially the camp started with sumptuous breakfast sponsored by Pharma Companies Reliance Life Sciences, Merck & Eisai Pharma. Welcome speech was given by Hon. Secretary Shankar Subramanian inviting everyone for the WMSD Celebration.

Doctors present :
Dr. Rajesh B. Iyer – Neurologist, Vikram Hospital
Dr. Jaychandran – Neurologist, Vikram Hospital
Dr. Swarna Gowri – Nutritionist
Dr. Shashikanth – Yoga therapist
Dr. Vijeendran – Physiotherapist

The camp started with Cake cutting of WMSD by MS persons Rajkumari & Geetha Balaji. Laughing therapy by Shankar was held followed by Question & Answer session with MSPs’ and care givers on how people were going about dealing with the treatment & their views. Dr. Rajesh Iyer also explained in detail about the disadvantages of the disease for people who are not on any therapy in order to avoid further deterioration of MS. This discussion was followed by Yoga therapy by Dr. Shashikanth for about 15 mins in which he taught some simple mudras to be followed daily.

An important event of the day was Donation of Wheelchair & Air bed to the needy MS persons by Vikram Hospital.  Two Wheelchairs were donated to Manohar & Narayan Rao & an Air Bed to MSP Archana. MSSI is indeed thankful & grateful to Vikram Hospital for their kind gesture for organising everything in celebrating WMSD in their premises.

A talk on Nutrition was rendered by Dr. Swarna Gowri for the MS persons to maintain a healthy diet. On this great event MS person Rajkumari, Dr. Rajesh B.Iyer, Dr. Shashikanth & Mr. Prasad was awarded the Champion Award given away by the CEO of Vikram Hospital Mr. Somesh Mittal. MSSI honoured all the Doctors & Pharma Representatives by giving them a Memento for their support in organising the event successfully.

All the MS persons were given gifts to commemorate WMSD. The program came to an end after the consultation of MS persons with the Doctors.

World MS Day 2018 Activities – Chennai

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Poster Competition – WMSD – BNY Mellon

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On Tuesday 29th May 2018 our Corporate Partners BNY Mellon organised a poster competition at their premises at Magarpatta City to observe World MS Day. The Theme of the poster competition was to express their feelings and understanding of the various challenges faced by MS persons. Our Committee Members, MSPs, staff members and BNY Mellon Volunteers were present for the Event.

The participants of the Poster Competition were divided into three groups. Each Group started painting posters keeping in mind the main theme.

At the same time Committee members, BNY Mellon volunteer and MSPs shared their views on MS, this little known disease. MSP  Anjali Vyas spoke about the challenges she faced from the day she was diagnosed with MS. She was very positive, courageous and openly aired her thoughts and feelings.

Then Committee members viewed the posters. Every painting turned out so meaningful that it became difficult to judge the best. So It was decided to give prizes to all the participants. Mrs. Mini Grant our founder Chairperson gave away the prizes and thanked them for their participation.

The event concluded with the vote of thanks to BNY management and all present.

World MS Day 2018 Delhi

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New Delhi 28 May 2018: Multiple Sclerosis Society of India(MSSI) commemorated ‘World Multiple Sclerosis Day’ in New Delhi the capital city of India.

We adapted the theme of #brininguscloser at the National Level to address the gap of lack of awareness & understanding about MS, plight of Person with MS and the role MSSI plays. We were able to stress on the fact that carrying out large scale population-based epidemiological study to determine true incidence and prevalence rates of MS viz a viz disease burden is the need of the hour

Our main target audience for this event were 2 critical stakeholders Ministry of Social Justice & Empowerment and the Media. The event format was a panel discussion followed by Q & A by PR professional. The panelist were   Mr.  K. Vikram Simha Rao – Director, Department of Empowerment of Persons with Disabilities, Ministry of Social Justice and Empowerment, Government of India Mr. T.D. Dhariyal – Commissioner for Persons with Disabilities, Government of NCT National Capital Territory of Delhi) Dr. Kameshwar Prasad Head of the Department of Neurology & Director Clinical Epidemiology Unit- All India Institute of Medical Sciences (AIIMS) Delhi and 2 of our MS Heroes Mr Rajiv Virat Wheelchair Instructor, Marathon & Tennis Champion & Mr Arun Srinivasan Graphic Designer and Artist

There seems to be a considerable shift in MS prevalence in India and this has really changed the notion of considering India as a low risk zone for MS. So much so that MS is included in the new Rights of Person with Disability RPWD Act and the ministry of Social Justice and empowerment has recommended that MS along with all other new disability be included in the Ayushman Bharat a national health protection scheme.

Ms. Renuka Malaker, National Secretary, MSSI, highlighted that as MSSI is a powerful voice of person suffering from MS in the country and if we sustain the momentum of  building awareness amongst all important stake holders only then we will be able to create the 1st MS Registry which will create a base for Research and Access to Affordable Treatment

For more information on MSSI please visit: www.mssocietyindia.org  visitwww.mssocietyindia.org/get-involved/