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Seva Mela – Chennai

By | Chennai | No Comments

Multiple Sclerosis Society of India – Chennai Chapter participated in Seva Mela on 6th and 7th of October 2018 at Lady Andal School, Harington Road, Chetpet, Chennai.  Seva Mela is an expression of the joy of service to humanity by bringing together social workers, corporate, volunteers and colleges under one roof. Seva Mela 2018 was celebrated as part of the Battle of The Buffet 2018. Seva Mela aims to raise awareness of key issues. It has been curated with an objective to build a bridge between society and social causes that need attention through a series of interactive and fun sessions. Seva Mela 2018 exhibited close to 100 NGO’s and it is an opportunity for the public to know their work and engage with them.

The much-needed awareness on Multiple Sclerosis was created by the distribution of Pamphlets, Handprint Campaign. Apart from that, in general, the public was also entertained to games like Carom board, Snake & Ladder, Ring game and Selfie Board. Gifts were given to the winners. The two-day event gave us a wonderful opportunity to create awareness about Multiple Sclerosis. 10 BNY Melon Volunteers proved to be handy in creating the much-needed awareness of MS.

Picnic to Chondhe Farms with MSPs

By | Pune | No Comments

A picnic was organised to Chondhe Farms near Lonikand, on Saturday 6th October 2018, a distance of about 25 Km from Kalyani Nagar.

Two Buses were hired from Penosh. Keeping in mind the MSP’s convenience, two pick up locations were fixed. One at the office address and another one at Narpatgiri Chowk Mangalwar Peth.

Two BNY Mellon volunteers picked up patients from their residence and bought them to the Kalyani Nagar bus stand and dropped them home after the picnic.

The Buses left from the office address at 10.00 am and reached picnic site 11.00 am. 18 MSPs, 22 caregivers, 15 volunteers from BNY Mellon, 5 committee members and 3 staff members i.e. a total of 63 persons attended the picnic.

In the bus, we served Chatni sandwiches and bananas to all the participants. The sandwiches and water bottles had been ordered from Mr Rohit Nigade a registered MS person who runs a catering business.

BNY Mellon volunteers helped wheelchair bound MSPs and other MSPs reach the Entertainment Hall where the entire day was to be spent. Breakfast was served at about 11.30 am. Volunteers served the breakfast to MSPs and their caregivers on their table. Everyone interacted with each other and were happy to talk and express themselves.

After breakfast, the DJ invited by Chondhe Farms presented few beautiful Bollywood songs. Our staff member Firoz Khoja and some MSPs also sang songs and entertained the audience.

Lunch was served at 1.30pm. As expected the volunteers did their best in serving the lunch to MSPs and caregivers. MSPs were very happy and enjoyed the delicious lunch.

Post lunch we had Magic show which was arranged by Chondhe Farms. The magician entertained the audience with his unique magic items. Magician involved MSPs and other audience members in his show which was very entertaining.

This was followed by games jointly conducted by Mrs Asha Merchant and Mr Laxman Iyer. Many novel ideas were there in these games and everyone participated enthusiastically.  All participants were given gifts.

Then our Committee Members Ms Gayatri Joshi and Mr Laxman Iyer put up a beautiful skit which highlighted the importance of the caregiver’s role. Both of them performed their parts brilliantly and everyone present was very touched with the act.

High Tea was served around 5.00 pm. The picnic activities ended at about 6.00 pm. The Buses left for their respective destination at about 6.30 pm.

 

Face to Face Programme

By | Chennai | No Comments

MSSI – Chennai Chapter monthly meeting “Face to Face” Programme on 29-09-2018 started with the Meditation session by Dr. R.J. Kalpana on behalf of the “Institute of Heartfulness”.  Dr Kalpana, an erudite and perceptive writer and critic who received her PhD from the University of Mumbai. Professionally she is a consultant for Knowledge Management.  She also served on the Editorial Board for the Encyclopedia of Hinduism. It is a 30 minute follow up session as per the plan made on August 11th meeting. Our MS Person and their caregiver enjoyed and felt relaxed at the end of the meditation session which in turn helped them to stay active for the next session. Dr. Visalam, MD., FM (Functional Medicine) USA runs an alternative medicine clinic named Orange Ray, Nungambakkam and also Chief Medical Manager at Star Health Insurance. There were around 40 MS Persons along with caregivers, got benefited from her session. Dr. Visalam herself is an MS Person and so her connectivity worked with our MS Person. She shared her experience on MS and how she has handled life all these years from age 12 to 27 years. Her talk was highly motivating and inspiring to our MS Person. She highlighted the importance of Diet, Nutrition and MS. She also gave a few tips on Do’s and Don’t’s in their regular diet from her Trial and Error experience. MS Persons and Caregivers were very attentive and participated actively by interacting with the resource person.

The evening came to a happy ending with MS person, Mr. Ashokan and Mrs. Prema Srinivasan cutting a birthday cake to the joyous singing of Happy Birthday by all the 40 MS persons and their caregivers.

Delicious snacks and tea brought the meeting to a close.

Awareness Program in Presidency College

By | Bangalore | No Comments

The awareness program started with the welcome address by Mr. Sangam, President Rotaract followed by a presentation on MS by Dr. Shashikanth, a yoga therapist. Presentation comprised of the description of MS, causes, symptoms, types and management of the same. The doctor also mentioned the activities done by MSSI, Bangalore Chapter. Then the student Rotaract coordinator gave an introduction about the guest speaker, Mrs. Geetha Balaji. Mrs. Balaji shared her personal experience about MS and captured all the audience’s mind and soul through her motivational speech. After that, the floor was open for question and answer session by students which were cleared by Dr. Shashikanth. Then the Rotaract coordinators felicitated the volunteers of MSSI and delivered the vote of thanks. The meeting winded up by a group photo, followed by refreshments.

 

Present:
Dr. Shashikanth -Yoga Therapist
Mrs. Rani – Administrator
Ms. Meera Mariyam – Medico Social Worker
Mrs.Geetha Balaji -Member
Mrs.Padmapriyachari -Member

DAY : Thursday, September 27th 2018
TIME : 3 pm – 4 pm
PLACE: Presidency College Seminar Hall.

Cochin and Trivandrum Activities

By | Chennai | No Comments

Satspandana Physiotherapy Centre along with Trivandrum Support Group conducted a Physiotherapy Session at Trivandrum on 05/08/2018. The same was conducted at Kochi Support Group on 20/09/2018.  The director of Satspandana Physiotherapy Centre, Mr. Sanjith gave details as regards necessary physical work out for MS persons. He demonstrated aerobics, simple stretching, muscle relaxation techniques. He also showed MS patients how to lie down and do the simple exercises and stretching for those who could not sit or stand properly. Breathing exercises were also covered in this session. The session was attended by MS persons along with their family members. An amount of Rs.12,000/- was collected by Trivandrum Support Group and handed over to MS person Vishnu Maheswari who was affected by the flood in Kerala.

Mera Sapna – MSSI Mumbai

By | Mumbai | No Comments

MSSI Mumbai visits Yashraj Studios on the sets of India’s one of the most popular singing reality show INDIAN IDOL.

MERA SAPNA Project aims at fulfilling the small Dreams of our MS friends, which the overburdened caregiver may not be able to accomplish.

On Tuesday 18th Sept,  MSSI Mumbai visited the sets of singing reality show INDIAN IDOL Season 10.

It was an ardent wish of few of our MS friends to meet the eminent judges of today’s most popular singing reality show INDIAN IDOL which is being telecasted on Sony Entertainment Channel.

We were very fortunate that Vishal Dadlani; Music composer, playback singer, music record producer, lyricist, and performer, invited us on the sets of Indian Idol. We also met today’s young sensational Playback Singer- Neha Kakkar.

It was a good interaction with the Celebrities & later we were asked to join as an audience in the show. All MSPs were very thrilled as it was a dream come true for all of US.

We are very thankful to Vishal Dadlani for always supporting our cause.

Fundraiser – MSSI Hyderabad

By | Hyderabad | No Comments

MSSI Hyderabad organised a fundraiser on 9th September 2018. It was a Sufi dance concert by the world-renowned danseuse,  Manjari Chaturvedi, titled The Courtesan – An Enigma.  Actress, Nisha Singh narrated episodes and stories from the lives of well-known courtesans.

There was a gathering of about 400 people including high ranked Government officials, writers, poets, publishers, media person, our members, guests, doctors and our PwMS. An opportunity was given to PwMS Deepthi to put up a stall of her artwork near the reception which did fairly well.

The programme was highly appreciated and received excellent reviews in magazines and daily newspapers. Awareness was also made by putting up hoardings and posters at prime locations in the city. Event listing was done 15 days ahead of the programme in the newspapers –  The Times of India, Deccan Chronicle and via curtain raiser by Ratna Rao, in the Wow magazine.

Hyderabad  Chapter is thankful to all those who willingly supported the cause and our esteemed sponsors.

WALKATHON – MSSI Pune

By | Pune | No Comments

To celebrate World Physiotherapy Day, a Walkathon was organised by Sancheti Hospital Pune on Sunday 9th September 2018.  MSSI Pune had actively participated in the Walkathon to create an awareness on MS and the Role of Physiotherapist in providing relief to the MSPs.

The participants included Four Committee members, two staff members, five volunteers and two MSPs. There were in all 13 persons who took part in the event.

There was a spot event conducted by the organisers. People were asked to come on the stage to do the Plank Exercise. Firoz Khoja, our staff member also participated in this event.

The Walkathon had 3 categories of events (a) 5 KM Walk (b) 3 KM Walk (c) 1 KM Walk. The two of our volunteers went for 5 KM event, the majority of us walked 3 KM. One MSP did 3 KM and one MSP did 1 KM Walk.

All of us were wearing MSSI Cap which was very much appreciated by the organiser.

The Walkathon started on time as scheduled from Sancheti Hospital and proceeded towards Jangli Maharaj Road and returned to the starting point after completing the planned distance.

Later Sancheti Hospital provided refreshment to all participants. Free icepacks were distributed to the needy persons. We exchanged views with other participants and distributed our Brochures to familiarise them with the activities and the role of MSSI Pune Chapter.

The Program ended at 8.15 am.

Face to Face at Express Avenue

By | Chennai | No Comments

Our Chennai Chapter monthly “Face to Face” Programme, saw our MS Warriors sit facing the cinema screen in Express Avenue cinema theatre on July 21 2018. They were there to spend a Saturday afternoon with their family and caregiver to enjoy the movie “Tik Tik Tik” an entertaining movie with sci-fi theme of science inter-wined. Popcorn and a soft drink gave them a good fill-up during the interval. The movie kept them spellbound circling in science for 2 hours and 30 minutes. When they came out of the theatre their smiling faces said it all… another movie was their talk for that evening.

ICTRIMS – An Update

By | General | No Comments

We are back from ICTRIMS and as promised here’s the update!

In consultation with chapters heads and the governing council members who believed that showcasing MSSI as one of the largest and the only patient welfare organisation having a national presence is critical. We all agreed that now there is a greater need to increase awareness within various ministries (Centre and state) as well as within the medical fraternity especially the neurologist.  We identified 3 key areas to work on i) build the National Registry ii) set up the Medical Scientific Advisory Committee & iii) participate in India’s largest neurology conference – ICTRIMS.

While work on 2 of the 3 key areas is underway, we have just attended a very successful ICTRIMS conference. Attending the ICTRIMS with representation from all chapters created the much-desired impact on the services we provide to our registered members. It was heartening to hear almost every doctor mention MSSI and their desire to work with us to help MS persons understand and manage MS better

Our heartfelt thanks to Sanofi Genzyme, Dr Kameshwar Prasad, Dr Suresh Kumar without whose support this would not have been possible. A BIG thank you to 8 chapter heads in making MSSI participation at ICTRIMS a reality!