Our Chennai Chapter monthly “Face to Face” Programme, saw our MS Warriors sit facing the cinema screen in Express Avenue cinema theatre on July 21 2018. They were there to spend a Saturday afternoon with their family and caregiver to enjoy the movie “Tik Tik Tik” an entertaining movie with sci-fi theme of science inter-wined. Popcorn and a soft drink gave them a good fill-up during the interval. The movie kept them spellbound circling in science for 2 hours and 30 minutes. When they came out of the theatre their smiling faces said it all… another movie was their talk for that evening.
We are back from ICTRIMS and as promised here’s the update!
In consultation with chapters heads and the governing council members who believed that showcasing MSSI as one of the largest and the only patient welfare organisation having a national presence is critical. We all agreed that now there is a greater need to increase awareness within various ministries (Centre and state) as well as within the medical fraternity especially the neurologist. We identified 3 key areas to work on i) build the National Registry ii) set up the Medical Scientific Advisory Committee & iii) participate in India’s largest neurology conference – ICTRIMS.
While work on 2 of the 3 key areas is underway, we have just attended a very successful ICTRIMS conference. Attending the ICTRIMS with representation from all chapters created the much-desired impact on the services we provide to our registered members. It was heartening to hear almost every doctor mention MSSI and their desire to work with us to help MS persons understand and manage MS better
Our heartfelt thanks to Sanofi Genzyme, Dr Kameshwar Prasad, Dr Suresh Kumar without whose support this would not have been possible. A BIG thank you to 8 chapter heads in making MSSI participation at ICTRIMS a reality!
The National office welcomed its Regional Chapter heads and their representative to Delhi for a 2-day workshop in June 2018. This was the first of its kind workshop where the senior leadership team members came together to brain storm on identifying how to feed into the national initiative of Advocacy and Creating more Awareness amongst different stakeholders like policy influencer & makers.
The 2 days saw interesting and interactive sessions, games, group discussions & working out possible solutions that would help in voicing the need of person with MS in a more focused and sustained manner. Learning about most successful projects from each of our chapters through a Photo Gallery Walk Through was were enriching and inspirational
Our heartfelt thanks to MS International Federation for conducting this!
Soroptimist, Chennai, an International Women’s Organisation, working for the needy, teamed up, with MSSI, Chennai Chapter, for a Medical Camp on “Incontinence in MS” on 16/6/2018. This was to observe Incontinence Day which falls in the last week of June, 2018.
Dr. Shyamala Gopi – MBBS, MRCS, FRCS, Consultant Urologist, currently working at Apollo Main Hospital, Greams Road and Apollo First Med Hospital in Kilpauk. She has over 23 years of training and worked in United Kingdom in Urology, and its subspecialties including Endourololgy, Laparascopy Urology, Uro Oncology, Female Urology, Neuro Urology and Urogynaecology. She is also a member Royal College of Physicians and Surgeons, GLASGOW, Royal College of Surgeons EDINBURGH PLAB, UK and International Continence Society. She was assisted by Dr. Arasi and a nurse, went into individual consultation, for each MS person present, both ladies and gents. In all there were about 30 MS persons, who along with their caregivers, benefited by the camp. Prescriptions were given for urine culture tests, ultrasound and other diagnostic procedures to be done. MS persons were advised to do the tests within a fortnight, they would be called to show their tests results to the doctors and take it forward, by way of medicines, exercise, etc.
Birthday cakes were cut by those who celebrated their birthday this month. They were Mrs. Gayathri, Mrs. Dolly Khanna, Mrs. Dhanalakshmi, Mr. P. Balaji, and Soroptimist, Mrs. Sheila Rao.
The meeting was largely attended and the follow up camp will be held shortly.
A Fund Raising program Jagachitra was held in continuation with the camp to commemorate WMSD. This event was held mainly to create Awareness among general public & also to raise funds for the welfare of MS persons in aid of MSSI, Bangalore Chapter from Thank God It’s Saturday
Thank God it’s Saturday!’ or TGiS in short, is an exclusive group of photographers, both experienced and amateur, who despite their varied professions get together every weekend to pursue their collective love for photography. TGIS has been raising funds since 2003 has committed the entire proceeds to noble causes which includes the Rotary and the MSSI.
The collection of photographs showcases a wide repertoire of motifs, ranging across culture & festivals, monuments, flora, fauna, dances and landscapes of the India and from across the world. What makes these exhibitions so special is the display of amateur works of high standard, right alongside those of experienced and senior photographers, contributing to a liberating spirit of inclusion.
Inauguration of the exhibition:
Grand inauguration of the photography exhibition was held on May 31st 2018 at Rangasthala Auditorium adjacent to the exhibition hall. Celebrity who inaugurated the event was a famous & Award winning actress Suman Nagarkar.
There were more than thousand people who visited the exhibition every day and brochures were handed over to them. Volunteers explained the cause and briefed visitors about MS. We had a good media coverage which helped us in creating more awareness about MS.
An article about Jagachitra was published in Your story, link provided below:
OUR HEARTFELT THANKS TO SANOFI GENZYME FOR THE SPONSORSHIP TOWARDS THE WMSD EVENTS HELD.
The invitation to attend IMA Annual day program on Sunday, 3rd June had been extended by Dr Padma Iyer, President, IMA.
This appeared to be a good opportunity to continue with our WMSD reach out project for GPs and general public for creating awareness about Multiple Sclerosis and MSSI, hence we decided to attend this program.
The program participants included doctors, clinical psychologists, psychiatrists, advocates, legal advisors, counsellors, Human right activist, healing expert, etc. besides the general public.
Committee members Sarita Varma and Sunita Lalwani attended this program
and interacted with all the participants and distributed brochures to them.
Disseminating information about MS and MSSI services to the medical fraternity and others present at the IMA function in such manner was a very satisfying experience
Bhalo thaakar Gaan” (Good music for good life) – A soulful and enthralling musical evening was held with performances by national award winning singer Rupankar Bagchi and Sidhu (lead man of popular Bangla band – Cactus) featuring Bengali film hits and modern songs along with golden oldies in Hindi to celebrate World Multiple Sclerosis (MS) Day 2018 in support of Multiple Sclerosis Society of India, Kolkata chapter. This was held on the evening of 31st May 2018 at Kala Mandir, one of best auditorium in the City of Joy. The event was attended by over 500 music loving Kolkatans, who had joined hands to support this critical and incurable neuro ailment.
The evening took off by a welcome speech by Anirban Banerjee, the Hon Joint Secretary of MSSI, Kolkata who wholeheartedly thanked the audience and the corporates who supported the cause. The Hon. Secretary of the chapter Ms. Anuradha Goswami then spoke and stressed on spreading maximum awareness about MS across all. The same appeal was reinstated by the Chairman of the Kolkata chapter – Mr. Anand Chopra who then invited the society’s national President Mr. Viresh Oberoi who graced the occasion with his grand presence. Mr. Oberoi then invited senior neurologist of Bangur Institute of Neurosciences, Dr. Gautam Ganguly who spoke at length on the new treatments getting unfolded to fight MS.
Then Sidhu started his musical performance in his unique energetic style. He performed some Hindi oldies which was very relevant to the evenings theme and also performed some Bengali hits including the much admired “Holud Pakhi” of Cactus and some folk numbers where the audience too lent their voice. One of the memorable moment of the evening was when Sidhu performed “Bhalo thaakar Gaan” – a song which was written and composed by Sidhu for the event to celebrate World MS Day 2018. Then much to delight of the present audience, Sidhu called Rupankar on stage and together they sang “Amar bhitor bahire, antare antare” and the crowd just went berserk.
The very popular Rupankar then came on stage and kept on performing all his hits one after another and the requests just came pouring in and he happily obliged too. He also performed “Sanket”, the song he had written and composed for World MS Day in 2017.
Both the performers spoke at length on MS and appealed to the present public to spread awareness and support the unfortunate people fighting MS.
The melodious evening came to an end with a vote of thanks by the Vice Chairman Kolkata chapter – Mrs. Swapna Ghosh.
The event got wide spread media coverage where event teasers got published in Dainik Statesmen and Eastern Chronicle. Post the event we got coverage from Calcutta Times (Times of India), The Statesman, Ei samay, Sangbad Nazar and online news articles with photographs in The Times of India, ibgnews.com, Sholoanabangaliana.com till date.
Indore Chapter organised a medical camp for WMSD. This was attended by 125 persons .
Medical health check included sugar test, blood pressure test and Korean based acupressure therapy. This therapy was very much appreciated by MS persons and caregivers.
There was an interactive session on affordable treatment for MS between neurophysicians, MS persons and caregivers, guests and members of MSSI Indore Chapter.
Event ended with refreshments.
Thanks to Sanfofi for their support which helped us in organising this event.
1.Along with the rest of the world and seven other Chapters in India, MSSI Delhi held a series of events in line with this year’s theme of research, giving all those who are curious about MS research an opportunity to meet people involved and learn more about progress in the field. The Multiple Sclerosis Society of India Delhi Chapter and India’s leading Research Centre & Hospital All India Institute of Medical Sciences held an open day for people to meet experts working in MS research & treatment, including psychotherapy and counseling. It invited the public to learn about MS and how it affects different aspects of daily life.
An awareness Seminar was organised at India’s foremost Hospital & Medical Research centre All India Institute od Medical Sciences (AIIMS) A Panel discussion was held with 7 leading Neurologists / Senior Faculty members of the Neurosciences Centre ( NSC) discussing the latest treatments in the search for cure for MS . Dr Kameshwar Prasad , Head of NSC AIIMS was hopeful of the results coming in from AIIMS own research and corroborated with similar research in the rest of the world with regard to hematopoietic stem cell treatment (HSCT) . He is of the belief that in the near future we could expect that HSCT could well become the first line of treatment in MS.
This was attended by over 300 people which included newly diagnosed persons with MS, their families, caregivers, Doctors & members of the general public.
2. During MS Awareness Week, the MS Society of India’s Delhi Chapter engaged with people affected by MS as well as the wider public. An all day Awareness Booth came up at Delhi’s most popular Mall Select City Mall Saket for the whole day on Saturday 26 MayThis Mall sees the highest foot falls , with up to 40,000 visitors on weekends .MSSI Delhi put up an LCD screen showing short films & videos on MS. several thousand pamphlets on “what is MS” were distributed along with other items like orange MS wrist bands, MS badges , ribbons etc with the WMSD & MSSI logos. Many persons with MS and their families dropped in and bonded over coffee & pizza spending an exciting day in the Mall – some lucky mamas managed to get a quick free makeover at cosmetic stores while their kids got free balloons at other promotional events !