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MSSI

Session on Naturopathy

By | Hyderabad | No Comments

MSSI Hyderabad Chapter has viewed another interactive and informative session on NATUROPATHY – “Joy of Life depends on Health”

Dr. Bapuji Balijepalli (Naturopath) was invited for a talk on the importance of diet in managing MS. He is the first graduate of modern medicine in India and has given a Scientific approach to the system of Naturopathy. He believes “To live is not sufficient, we also need the joy of living and joy of living depends on Health”

Enthusiastic and deeply engrossed MS patients and caregivers have learned many new things like how animal protein triggers antibody production that results into autoimmune diseases.
Sinus was discussed in-depth as it is considered as a Silent Septic Focus.

Many things like (milk products, food containing colours, additives and preservatives) are forbidden to improve our health and prevent oneself from relapses.

The session has ended up with one to one discussion and vote of thanks.

ROUND TABLE DISCUSSION

By | Indore | No Comments

We, at Indore Chapter, had an amazing interaction with Dr. Passi (Neurologist) and Mrs. Renuka Malakar (MSSI National Secretary) on Sunday 28 July 2019 from 12 pm to 3 pm. Around 25+ PwMS and Caregivers attended at Hotel Lemon Tree, R.N.T. Marg, Indore. We also announced our working committee of all PwMS working for PwMS. There were also some wonderful creative ideas of fundraising and projects discussed even while having special Indorean lunch.

Face to Face Program held on 22-06-2019

By | Chennai | No Comments

The Chief Guest for the day was Dr. Prithika Chary, Consultant Neurologist & Neurosurgeon and Chief Neurologist at Kauvery Hospital, one of the largest hospitals in Chennai. She was the first and only lady in India to be qualified as both Neuro physician and Neurosurgeon.

Dr. Prithika Chary addressed the MS persons and their caregivers on the topic “Current treatment options for Multiple Sclerosis.” She started the session by giving a brief introduction about the MS and followed by the treatment process for the MS by explaining in detail about the Medicines available for MS and the treatment for each type of MS. She also focused on lifestyle changes, diet, nutrition, and the importance of Physical therapy ( exercise). She shared her personal life experience with Cancer, how she survived with it and how she overcame it. The session was for 1 ½ hour. Through her life sharing experiences, she created an impactful speech to our MS person which was very motivating and inspirational for them. There were around 45 MS patients and caregivers benefited from her talk. MS persons and caregivers were very attentive and participated actively by interacting with the resource person.

5 MS persons celebrated their Birthday by cutting cakes with their other MS friends singing Happy Birthday and everyone had their delicious snacks and meeting came to a happy ending.

 

World MS Day Update – May 2019

By | General | No Comments

Seeing the Unseen

By | Bengaluru | No Comments

To Commemorate World MS Day MSSI Bengaluru Chapter hosted a photography exhibition – Seeing the Unseen depicting the pictures of Invisible Symptoms of MS.

The Exhibition was held from 29th  to 31st May 2019 at Karnataka Chitrakala Parishath, Bengaluru which explored the voice of MS persons about their Invisible Symptoms.

Chief Guests for the event was Rotarian Suresh Hari, District Governor RMV Club, Ms. Vasanthi Hariprakash – Social media influencer & Journalist, Rotarian Rajaram & Punkaj Gupta, Hon. Secretary of MSSI, Bengaluru Chapter.

World MS Day program started with the lighting of the lamp by the chief guests Mr. Viresh Oberoi – MSSI President, Mrs. Renuka Malaker – National Hon. Secretary MSSI, Guest of Honor RJ Melodee, Mr. Mariappan, Asst. Director – Dept. of Empowerment of Differently Abled & Senior citizens, Karnataka Government. The invocation was rendered by MS person Kavita Jayaram followed by Welcome Address by Mr. Punkaj Gupta.

WMSD Representative Mr. Shankar Subramanian spoke about MSSI & WMSD. Mr. Mariappan spoke about various aspects of the Disability Act & about the implementation of UDID card in Karnataka. He also assured of his possible assistance towards MSSI from the Government end.

A panel discussion was held followed by press interaction.

WMSD Events – Chennai

By | Chennai | No Comments

Event 1: WORLD MS DAY PROGRAMME ON  19th May 2019

Multiple Sclerosis Society of India – Chennai Chapter  together with Merck Serono organized an Awareness program on theme of World MS Day – “My Invisible MS Symptoms”, at Hotel Savera. The Chief Guest for the program was Dr. Deepak Arjundas from Vijaya hospital.

Event 2: WORLD MS DAY PROGRAMME AT  EXPRESS AVENUE

World Multiple Sclerosis Day 2019 is on May 30, 2019, and it is the only global awareness raising campaign for Multiple Sclerosis, the world over.

This year MSSI Chennai Chapter partially sponsored by Sanofi, created an Awareness programme, in observing World MS Day on 23rd Thursday at Express Avenue Mall at 6.00 pm. The Chief Guest for the program was Ms. Dipshi Blessy from Youtube channel – PutChutney.

The awareness program was through a music performance by our MS person crew known as Q- Elements. The lead singer was an MS person, a lady of great talent.  The fantastic dance performance was by Dance studio.  A Stand-up comedy and our MS persons created the much need awareness of MS by holding the placards of the Theme of World MS Day “ MY INVISIBLE MS”. The MC for our program was one of our MS person himself, and he did a wonderful job.

Event 3: World MS Day – PRESS MEET REPORT

World MS Day observed on 30th May 2019.  To raise awareness of “My invisible MS”, Press Meet was arranged at “Chennai Press Club- Chepauk”. The press meet was addressed by Neurologist Dr. M.R Sivakumar, who spoke in detail about the diagnosis, treatment, recent developments in medicine, etc. Mrs. Ann Gonsalvez Chairperson spoke about the activities of MSSI Chennai towards the welfare of Persons with MS and establishing life- long care and support system for them. Ms. Smitha, Committee member, told the press about the need for government to acknowledge MS as Multiple Disability due to more than 41 invisible symptoms apart from the visible ones, the various barriers faced and huge restrictions in the participation of persons with MS due to the same.

It was covered by English and Tamil News, also telecasted and published on the same day as well as the next day.

  • No: of : Tv Stations7 such as Moon tv, Jaya tv, Thamarai Tv, MMTV, IBC, TNA and Polimer News.
  • No : of : Tamil papers4 such as Tamilsudar, MGR News, Dinabhoomi and Mudalseithi
  • No : of : English papers4 such as Deccan Chronicle, Indian express, Newstoday and  The Hindu
  • No: of : Malayalam papers 1 that is Mathurubhoomi

Here are the link of the newspaper.

Event 4: Awareness Programme on “Invisible Symptoms of MS at AGS Cinemas.

The video was screened on 3 AGS CINEMAS on 30th MAY, this is the poster Created by  MSSI –CHENNAI CHAPTER by using the Poster making tool from the website and collaged to raise awareness of Multiple Sclerosis and it’s Invisible Symptoms. Video attached in zip file.

 

World MS Day 2019

By | General | No Comments

World MS Day 2019 events across India was varied and informative! This year too we saw a considerable increase in awareness about MS & MSSI both at the national & regional level through press coverage in English as well as regional languages. WMSD activities started as early as the 1st week of May along with powerful photographs depicting Invisible symptoms extensively through all our Social media platform & website. We engaged with multiple stakeholders that included central and state governments, professional healthcare individual and organizations, members of Medical and Scientific Advisory Committee & Advocacy experts.

Highlights of the 3 National events were the 2 Press conferences followed by Panel Discussions held in Mumbai in Bangalore on May 29th & 30 respectively & the 1st Roundtable conference of the MSSI – Medical & Scientific Advisory Committee MSSI-MSAC. The main focus was the need to continue engagement/dialogue with all stakeholders in articulating the issues of disease burden, lack of reliable data on MS prevalence in India and reviewing the existing assessment guidelines in the RPWD Act.

Mental Health and good Quality of Life is very critical to PwMS and their families. In order to talk about that we have planned to start a Patient Education & Awareness Initiative, under this we will be starting a Free Webinar series in collaboration with doctors of our MSSI-MSAC.

TheWorldvsMS website a social media platform which talks about the importance of happiness and emotional wellbeing and Brain Health publication was released. It is currently available in English, Hindi, Bengali, Tamil, Telugu and will be up on our website in the coming days

 

The Unseen 2019

By | Kolkata | No Comments

The modern seminar hall, on the 9th floor of IN-K, Park Circus was the venue for the WMSD Event. The topic for the event was “The Unseen 2019” in line with the global theme of this year’s World MS Day – “My invisible MS”.

Mr. Anirban Banerjee, Hon.  Joint Secretary of MSSI, Kolkata and Hon. Member of National GC, MSSI welcomed the audience present. Ms. Anuradha Goswami, the Hon. Secretary of MSSI, Kolkata, in her short speech was extremely precise in highlighting the challenges faced and fought by all MS friends and their caregivers.

Ms. Swapna Ghosh, Hon. Vice Chairperson, MSSI invited on stage, the Chief Guest for the evening – Dr. and Prof. Bibhukalyani Das, the Academic Director of IN-K, who was extremely kind to emphasize on the challenges of handling and managing MS and assured MSSI of all possible support and cooperation from IN-K in their fight to conquer MS. The star attraction for the evening was a popular singer and musician – Siddhartha Ray (Sidhu) enthralled the present gathering with some of his hit songs and then with the song he had written, composed and sung last year on WMSD – “Bhalo thakar Gaan”  which was also recently recorded along with chorus vocals by few of MSSI, Kolkata members. The formal audio launch of this song was done by Dr. and Prof. Bibhukalyani Das, the Academic Director of IN-K, with huge applause from one and all and the song is already available on various audio platforms.

The rest of the evening was followed by a series of talks and interactive discussion by the expert staff of IN-K:-

  • Visualisation of invisible MS by Dr. Ashis Datta, Consultant Neurologist, IN-K.
  • Functional Rehab for MS by Mr. Rakesh Mahapatra, Occupational Therapist, IN-K.
  • Invisible symptoms of MS by Dr. Anirban Ghoshal, Consultant Neurologist, IN-K
  • Physiotherapy in MS by Mr. Dawa Lepcha, Physiotherapist, IN-K.

The event was attended by more than a dozen members of the local press and media and some 70 odd MS Friends and their caregivers. Leading TV channels (ABP Ananda, Jiyo Bangla, Sadhna News), radio (AIR) & local dailies (Ei Somoy, Sangbad Pratidin) covered the event.

WMSD Events – Hyderabad

By | Hyderabad | No Comments

MSSI Hyderabad Chapter observed the World MS Day on 30th May 2019 at the City Center Mall, Banjara Hills, Hyderabad from 5 p.m. to 7 p.m. The theme this year was #My Invisible MS. MS can be Managed, let’s fight it together which means “TOGETHER WE ARE, TOGETHER WE CAN AND TOGETHER WE WILL “.

We had a large number of MS persons (29) along with their family members, caregivers, doctors, supporters and donors adding to over 100 people. The evening started with a welcome address by our honourable Chairperson Mrs. Mamta Gupta, who gave a brief outline of the activities held during the year.

Some of the friends with MS shared their invisible symptoms on MS, and how they are coping up with them.

Sushma
Neelima Aruru
Hameeda Sultana
Dimple
Arti Vishal
Mr. Venkatraman

It was a delight to have Dr. Namita Singh, Neuropsychologist from Apollo Hospital Hyderabad as the Chief Guest. She gave a very interesting talk on ‘Invisible symptoms of MS’ and how they can be managed. All the PwMS were able to understand and co-relate with many symptoms which occur off and on in their life’s journey with MS, for which they had no understanding earlier.

This was followed by the much-awaited fun and frolic for the laughter evening – rendered as a wholesome fun bomb by Mr. Vivek Muralidharan, the stand-up comedian.

The surprise for the evening was the arrival of Mr. Mahender Vaishnav, Captain of Telangana Blind Cricket. He has the distinction of winning the world cup for India 2018 in Dubai. He is also a motivational speaker. He shared his challenges and how he overcame them, which left all the PWMS motivated to the hilt.

The wonderful evening finally came to an end with the vote of thanks given by our Founder member Mrs. Meena Gupta, thanking Dr. Namita Singh, Mr. Vivek Muralidharan, Mr. Mahender Vaishnav, our main sponsor Sanofi Genzyme, and other co-sponsors Subway, City Centre Mall, Hyderabad Talkies.

The chirpy Master of Ceremonies was Mrs. Arti Vishal Mital, Secretary MSSI Hyderabad Chapter. This event was covered by the local media – TV channels ETV, HMTV, 10TV, INB etc. The Times of India daily published an article on – Stress a Key Trigger behind MS

WMSD Events 2019 – Mumbai

By | Mumbai | No Comments

On occasion of World Ms Day MSSI, Mumbai & Apollo Hospital, Navi Mumbai

had a very interesting Medical Seminar where there was a Medical Panel consisting of eminent doctors: Dr. Rekha Bhatkhande, Gastroenterologist & Hon. Secretary of MSSI, Mumbai, Dr. Girish Nair- Neurologist, Dr. S.Kulkarni- Physician, Dr. Niraj Ravani –Psychiatrist, Dr. Tanuja Akre- Physiotherapist, Ms. Pooja Lakhani – Nutritionist, Ms. Shivani Rajashree – Counsellor

The MSIF Theme is my Invisible MS, which means Raise Awareness for visibility of MS & MS persons.

In Mumbai, a panel discussion on MS was conducted by eminent doctors of Apollo Hospital, The session started at 10.30 a.m. in the presence of office bearers of Mumbai Chapter, MSPs & their families, Caregiver, volunteers & young doctors of Apollo Hospitals. Dr. Neha conducted the programme which was started by lighting the lamp by Mrs. Sheela Chitnis & CEO & COO Doctors of Apollo Hospital. Sheelatai gave the presentation on work & history of MSSI & journey ahead.

Dr. Girish Nair introduced the panel of doctors & the session started.

Dr. Nair gave a brief introduction of everyone & announced a plan to start MS Clinic. The session continued for more than two hours & it satisfied a lot of queries from MS persons. It covered medical, social, psychological, nutritional aspect as well as the need for awareness among people. The challenges are many & people exchanged views and notes to help each other.

At the end mementoes were given by Sheelatai & vote of thanks was given by Neha.

Eisai Pharma Contributed a lot for awareness by distributing booklets on “ Patient Education” & did celebration by lighting “ Bandra-Worli” Sea Link in orange colour from 27th to 31st May.

We feel that the challenges are met together at various levels. They are to :

  • Create awareness at urban as well as rural in cities & smaller
  • To take help at primary health centres with Aanganwadi & general
  • Register many of them to know & help to manage the disease at psychological, Social & financial
  • Sensitise Government agencies on disability certificate & other
  • Try & find/retain employment for MS
  • Give medical help through MS Clinic (diagnostic).
  • Share lot of modalities with all the
  • Appeal various organizations, Companies & individuals for help & acknowledge their It is said that “ We grow when we face challenges”.