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India MS Day 2020 – Pune

By | Pune | No Comments

The month of February ushers in spring in India and what better time could there be to observe India MS Day and so the first Sunday of February every year is celebrated as the India MS Day.

MSSI PUNE Chapter with Indian Medical Association (IMA) Pune organised a Walkathon of about 2 kms at Tilak Road. The Walkathon with IMA was worked upon by MSSI IMSD Representative (National) Mrs. Jyoti Ronghe and Ms. Gayatri Joshi.

President of IMA Pune, Dr. Sanjay Patil, Ex-President, Dr. Padma Iyer , Secretary IMA Pune, Dr. Variyani, MSSI committee members, few volunteers, 3 MS Persons, around 10 IMA doctors were there for the Walkathon. Everybody gathered at the IMA House at 7.30 am and registered themselves. The participants wore Bibs and caps with IMSD theme # know Mltiple Sclerosis.

The walk started at 8 am and Dr. Sanjay Patil & Dr.Variyani addressed the gathering.  The attendees held placards of MSSI throughout the walk for about an hour.

Reshma Valliapan, a renowned activist who runs an organisation called the Red Door also supported us in the Walkathon.  She discussed the various disabilities of MS Persons with our committee members.

After walking for 2 kms, everybody gathered back at the IMA House at 9.30 am. There was breakfast arranged by IMA Pune for all the participants.  Everyone enjoyed the delicious meal and disbursed thereafter around 10.30 am.

MSSI Pune is thankful to the wonderful team of IMA who supported us heartedly.

MS Walk on INDIA MS DAY – 2020

By | Mumbai | No Comments

MSSI, Mumbai Chapter had organized MS Awareness Walk on ‘India MS Day”, Sunday 2nd Feb 2020 at Shivaji Park. More than 200 participants, including MSSI Team, MSPs with families, Rotarians, Inner Wheel Members, students & Senior citizens.

Mr. Pravin Amre, National Cricketer & President, Shivaji Park Gymkhana and eminent Neurologist Dr. Sarosh Katrak graced the occasion. At Registration Free T-shirts were distributed & breakfast was served to all.

Dr. Rekha Bhatkhande, Hon. Secretary welcomed all & introduced Dr. Sarosh Katrak.

Dr. Katrak explained about Multiple Sclerosis in simple language. The audience listened with rapt attention. Mr. Sandeep Chitnis, MSSl’s National Vice President & Chairperson of Mumbai, briefed the crowd about MSSl’s various patient welfare services and explained the advantages of getting registered with MSSI.

Dr. Rekha on the spot called 2 MSPs to speak about their journey with MS. MSP Jigna from Mumbai & Mahana from Pune said that though they live with ups & downs with MS, they are happy due to their positive attitude which is taught by MSSI who also guide them to cope-up with MS.

Then MS Walk started by cutting of the ribbon by Pravin Amre along with Dr. Katrak & MSSI Committee Members. Mrs. Sundari Raju, Mumbai Chapter’s IMSD representative walked with students & other participants encouraging them by loudly chanting slogans “We support MS Cause”. It attracted a lot of morning walkers to come forward & receive MS brochures.

MSSI, Mumbai Chapter was happy for getting support from many and

Thus making “India MS Day Walk 2020” a Grand Success.

MS WALK ON INDIA MS DAY – 2020

By | Hyderabad | No Comments

MSSI Hyderabad chapter observed INDIA MS DAY by organising the MS WALK on Sunday 2nd February 2020. The Walk was held at Parade Ground, Secunderabad from 7 am onwards. There was a huge gathering of MS persons, caregivers and supporters.

The Chief Guest Mr. Muralidharan, Chairman TMI Group and First Generation Serial Entrepreneur was welcomed by Chairperson MSSI Hyderabad Chapter Mrs. Meena Gupta followed by presenting the memento to Chief Guest by Mrs. Mamta Gupta.

Chief Guest had addressed the gathering and shared his views on the awareness of Multiple Sclerosis and also appreciated the hard work and efforts put forward by Hyderabad Chapter. He also appreciated the IMSD theme – “KNOW MULTIPLE SCLEROSIS”

The program started by a song sung by Youth MS persons led by Hema Gulati our MS person. Full attendance prizes were awarded to 3 MS persons. The walk was flagged off by the Chief Guest Mr. Muralidharan who walked along with us. Everyone walked enthusiastically holding banners, placards, flags and came back to be served with hot breakfast. The red T-shirts worn by the participants attracted many people who enquired about MS and MSSI and pamphlets were distributed.

Dr. Amar Nath Tandon National Award 2019 to Mrs. Sheela Chitnis

By | Mumbai | No Comments

National Society For Equal Opportunities For the Handicapped, India (NASEOH, INDIA) established in 1968 & has been steadily working towards developing comprehensive rehabilitation opportunities for the persons with disabilities so as to facilitate integration into the mainstream of the society.

This year’s Dr. Amar Nath Tandon National Award for Voluntary services by Naseoh is given to Mrs. Sheela Chitnis, Co-founder of MSSI, India, who has pioneered the care and support to persons with MS in India through physiotherapy, Counseling & Medical Support. She has also mobilized sizable funds through creative ideas and events for the rehabilitation of Persons with MS.

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Symptoms and Care of Eyes – MSPs

By | Hyderabad | No Comments

MSSI Hyderabad Chapter has conducted a session on symptoms and care of eyes of MSPs by Dr.Akshay Badakere, a Consultant Neuro Ophthalmologist from L V Prasad Eye Institute.
A one to one session which was not only interactive, beneficial but informative too. Dr.Akshay spoke about Optic Neuritis and its symptoms, the tests to be performed, the diet to be followed and exercises to be done to keep MS at bay.

Neuro Update 2020

By | Chennai | No Comments

The “Madras Neuro Trust” organises the “Neuro Update” annually as a continuing educational programme for the practising neurologists and exposing the neurology residents to recent clinical research works being done all over the world. The Chennai Chapter of MSSI is invited for a special session.

This year, Neuro Update 2020 was held on 11/01/2020. Dr Velmurugendran, Secretary, Neuro Update, Chennai, welcomed the gathering. MSSI Chennai Chairperson, Mrs Ann Gonsalvez welcomed the guest speakers and a shawl was presented to each of them by an MS person. A one-hour session for MS persons was chaired by :

Prof. David Zee, M.D, Professor of Neurology, John Hopkins Hospital, Baltimore, USA. He addressed our MS persons on eye disorder in MS. One of the major vision problems that he focused on is called Nystagmus – the jumping of eyes ( up and down) or changing direction – left to right and its treatment.

Prof. Sarosh Irani, BMBCH MS (Oxon) D Phil FRCP FEAN, Head, Oxford Autoimmune Neurology Group, Associate Professor, University of Oxford, Welcome intermediate clinical fellow, Honorary Consultant Neurology, UK, updated us with latest on NeuroImmunology. He said drugs available to fight or calm down the immune system is being researched on a big scale and he is hopeful it will come into the market in the near future at an affordable cost.

It was a highly interactive session. The MS patients and their caregivers gained more knowledge and felt more educated after attending the session.

INDIA MS PERSON OF THE YEAR 2019

By | Delhi, General | No Comments

INDIA MS PERSON OF THE YEAR! 2019 Group Captain Prabal Malaker

A retired Indian Airforce Test Pilot who has flown almost every aircraft in the Air Force inventory in his time from MIGs’, Jaguars’, and Mirages’, to large transport carriers like the Avro and AN-32. He is a qualified flying instructor, who has imparted training to several young pilots.

His message to fellow MS persons is very straight forward, “If you have a problem, accept it. Work within those challenges and carry on with life. Keep your mind strong and paths will open up”, says a 63-year-old Multiple Sclerosis (MS) person, who has never learned to give up against all odds.

Life seemed to be going well until August 1998, when he was diagnosed with the progressive form of Multiple Sclerosis. He had a near-death experience when his plane, upon landing caught fire. Neurologists said that this could have possibly triggered off an autoimmune response to cause MS. In 1999, he was permanently downgraded from flying and his career came to a standstill. He had to retire from active service at the young old age of 52 years!

This was the time when he was introduced to MSSI Delhi by none other than Mrs. Sheela Chitnis, Co-founder of MSSI, by his sister Gopa who was living in Mumbai at that time. He joined the Delhi office as a volunteer to serve many other people like him. He has been in a leadership role and together with a team of some very dynamic volunteers who work shoulder to shoulder to improve the lives of people living with MS. He has been instrumental in setting up systems and procedures for smooth execution of projects, services, and initiatives that are offered to registered members of the society within Delhi NCR.

Prabal is a foody and a movie buff, however, going to movie halls and restaurants in a wheelchair was becoming a challenge since most of these places were not handicap friendly. He decided instead of getting stuck in the house and giving up all the things he enjoyed he would embark on a single point mission; To bring about change in movie halls and restaurants so that a wheelchair user could enjoy barrier-free access. Due to his single-handed and persistent effort, the Disability Commissioner has served notice to Movie Hall Operators which includes PVR, INOX, and Cinepolis A notice has also been served to 480 restaurants and the hotel of Delhi State to conform to the harmonized guidelines of barrier-free access for PwD.

Being an avid traveller, he has conducted accessibility audits for hotels and tourist sites in Jodhpur, Udaipur, Ranakpur, Sarnath, Varanasi and Sri Lanka for a Cox & Kings Accessible Holiday segment called Enable Travel.

He heads the advocacy arm of the MSSI Delhi chapter and has been engaging with the Delhi State Disability Commissioner on a regular basis to bring about change in policy and assessment guidelines for disability and advocates for the right of people with Multiple Sclerosis.

We wish him good luck and good health always!

Face to Face Programme

By | Chennai | No Comments

MSSI – Chennai Chapter’s monthly meeting “Face to Face” Programme was a Christmas Celebration on 22.12.2019. It started with a welcome address given by the Hon. Chairperson Mrs. Ann Gonsalvez and then it was handed over to BNY Mellon volunteers.  Mr. Joseph the BNY Volunteer organized a magic show and he introduced the magician to the audience. The Magic Show was for 40 minutes and everyone was entertained by the tricks. The entry of Santa Claus, was welcomed by one and all. Santa distributed gifts to our MSP’s Children and sweets to everyone. Then, BNY Volunteers conducted 3 games, ‘Connection Game’, ‘Jumbled Movie Name’ and ‘Chinese Whisper’. MS Person’s and their caregiver enjoyed the games thoroughly.

After that, a delicious lunch was served for one and all, which was enjoyed thoroughly. A birthday cake was cut by those who celebrated their birthday this month. They are–Ms.Anitha, Mrs.UmaMageshwari and Mr.Rajesh, by singing of happy birthday song by everyone.

The day came to a happy ending by giving gifts to our MS Person and Caregivers.

Stay Healthy and Fit for 2020

By | Kolkata | No Comments

A Brief Report on Medical Camp of MSSI Kolkata

MSSSI Kolkata arranged a free medical check-up camp for MS friends which came to a great success we are glad to present a brief report on that event.

Date: 22nd December 2019
Place: JMD Diagnostics, P-336, C I T Road, Scheme IV M , Kolkata- 700 054
Time: 10 AM to 3 PM

Doctors who made the event a difference
Dr.AmbarChakraborty (neuro physician)
Dr.Angshuman Mukherjee (neuro physician)
Dr.AshisDatta (neuro physician)
Dr.HimadriPathak (urologist)
Dr.NilanjanaBist (ophthalmologist)
Dr.RajibBiswas (Physiotherapist)

Prime sponsor: MSN Laboratories
Logistic support: JMD Diagnostics
Highlights
In spite of an extremely chilled winter morning, the camp started on time. JMD Diagnostics was ready with fully equipped, disinfected chambers with all necessary requisites needed for patients check-up. JMD staffs were always there to pay kind attention for the comfort of MS friends. JMD also provided wheelchairs as and when required. A light refreshment was arranged by JMD authority to energise the participants.

Doctors examined the patients, discussed and advised on their problems, prescribed for required clinical examination and medicine. All clinical tests including MRI Scan were done free of cost for all MSPs. MS friends and their caregivers were contented to get the opportunity for having a free medical check-up on different problems under one roof.

Mementoes were gifted to the doctors on behalf of MSSI Kolkata as token of appreciation. The sumptuous lunch box was provided to all participants. Conveyance expenses were reimbursed to MSPs.

MSSI Kolkata is extremely grateful to Dr.AmbarChakraborty under whose leadership the event took a great shape. We are also grateful to other doctors who gave their precious time on a Sunday morning for us. We are thankful to JMD Authority and MSN Laboratories for their support to the benefit of MS friends.

Disability Week Bengaluru Chapter

By | Bengaluru | No Comments

As a part of Disability Week Bengaluru Chapter showcased the #My Invisible MS campaign photographs at ANZ, Bengaluru. More than 500 people visited the kiosk and Shankar Subramanian gave a talk on disability etiquettes and invisible disabilities.