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Fundraiser – MSSI Hyderabad

By | Hyderabad | No Comments

MSSI Hyderabad organised a fundraiser on 9th September 2018. It was a Sufi dance concert by the world-renowned danseuse,  Manjari Chaturvedi, titled The Courtesan – An Enigma.  Actress, Nisha Singh narrated episodes and stories from the lives of well-known courtesans.

There was a gathering of about 400 people including high ranked Government officials, writers, poets, publishers, media person, our members, guests, doctors and our PwMS. An opportunity was given to PwMS Deepthi to put up a stall of her artwork near the reception which did fairly well.

The programme was highly appreciated and received excellent reviews in magazines and daily newspapers. Awareness was also made by putting up hoardings and posters at prime locations in the city. Event listing was done 15 days ahead of the programme in the newspapers –  The Times of India, Deccan Chronicle and via curtain raiser by Ratna Rao, in the Wow magazine.

Hyderabad  Chapter is thankful to all those who willingly supported the cause and our esteemed sponsors.

WALKATHON – MSSI Pune

By | Pune | No Comments

To celebrate World Physiotherapy Day, a Walkathon was organised by Sancheti Hospital Pune on Sunday 9th September 2018.  MSSI Pune had actively participated in the Walkathon to create an awareness on MS and the Role of Physiotherapist in providing relief to the MSPs.

The participants included Four Committee members, two staff members, five volunteers and two MSPs. There were in all 13 persons who took part in the event.

There was a spot event conducted by the organisers. People were asked to come on the stage to do the Plank Exercise. Firoz Khoja, our staff member also participated in this event.

The Walkathon had 3 categories of events (a) 5 KM Walk (b) 3 KM Walk (c) 1 KM Walk. The two of our volunteers went for 5 KM event, the majority of us walked 3 KM. One MSP did 3 KM and one MSP did 1 KM Walk.

All of us were wearing MSSI Cap which was very much appreciated by the organiser.

The Walkathon started on time as scheduled from Sancheti Hospital and proceeded towards Jangli Maharaj Road and returned to the starting point after completing the planned distance.

Later Sancheti Hospital provided refreshment to all participants. Free icepacks were distributed to the needy persons. We exchanged views with other participants and distributed our Brochures to familiarise them with the activities and the role of MSSI Pune Chapter.

The Program ended at 8.15 am.

Face to Face at Express Avenue

By | Chennai | No Comments

Our Chennai Chapter monthly “Face to Face” Programme, saw our MS Warriors sit facing the cinema screen in Express Avenue cinema theatre on July 21 2018. They were there to spend a Saturday afternoon with their family and caregiver to enjoy the movie “Tik Tik Tik” an entertaining movie with sci-fi theme of science inter-wined. Popcorn and a soft drink gave them a good fill-up during the interval. The movie kept them spellbound circling in science for 2 hours and 30 minutes. When they came out of the theatre their smiling faces said it all… another movie was their talk for that evening.

ICTRIMS – An Update

By | General | No Comments

We are back from ICTRIMS and as promised here’s the update!

In consultation with chapters heads and the governing council members who believed that showcasing MSSI as one of the largest and the only patient welfare organisation having a national presence is critical. We all agreed that now there is a greater need to increase awareness within various ministries (Centre and state) as well as within the medical fraternity especially the neurologist.  We identified 3 key areas to work on i) build the National Registry ii) set up the Medical Scientific Advisory Committee & iii) participate in India’s largest neurology conference – ICTRIMS.

While work on 2 of the 3 key areas is underway, we have just attended a very successful ICTRIMS conference. Attending the ICTRIMS with representation from all chapters created the much-desired impact on the services we provide to our registered members. It was heartening to hear almost every doctor mention MSSI and their desire to work with us to help MS persons understand and manage MS better

Our heartfelt thanks to Sanofi Genzyme, Dr Kameshwar Prasad, Dr Suresh Kumar without whose support this would not have been possible. A BIG thank you to 8 chapter heads in making MSSI participation at ICTRIMS a reality!

National Workshop 2018

By | General | No Comments

The National office welcomed its Regional Chapter heads and their representative to Delhi for a 2-day workshop in June 2018. This was the first of its kind workshop where the senior leadership team members came together to brain storm on identifying how to feed into the national initiative of Advocacy and Creating more Awareness amongst different stakeholders like policy influencer & makers.

The 2 days saw interesting and interactive sessions, games, group discussions & working out possible solutions that would help in voicing the need of person with MS in a more focused and sustained manner. Learning about most successful projects from each of our chapters through a Photo Gallery Walk Through was were enriching and inspirational

Our heartfelt thanks to MS International Federation for conducting this!

Incontinence in MS – Chennai

By | Chennai | No Comments

Soroptimist, Chennai, an International Women’s Organisation, working for the needy, teamed up, with MSSI, Chennai Chapter, for a Medical Camp on “Incontinence in MS”  on 16/6/2018. This was to observe Incontinence Day which falls in the last week of June, 2018.

Dr. Shyamala Gopi – MBBS, MRCS, FRCS, Consultant Urologist, currently working at Apollo Main Hospital, Greams Road and Apollo First Med Hospital in Kilpauk. She has over 23 years of training  and worked in United Kingdom in Urology, and its subspecialties including Endourololgy, Laparascopy Urology, Uro Oncology, Female Urology, Neuro Urology and Urogynaecology. She is also a member Royal College of Physicians and Surgeons, GLASGOW, Royal College of Surgeons EDINBURGH PLAB, UK and International Continence  Society. She was  assisted by Dr. Arasi and a nurse, went into individual consultation, for each MS person present, both ladies and gents. In all there were about 30 MS persons, who along with their caregivers, benefited by the camp. Prescriptions were given for urine culture tests, ultrasound and other diagnostic procedures to be done. MS persons were advised to do the tests within a fortnight, they would be called to show their tests results to the doctors and take it forward, by way of medicines, exercise, etc.

Birthday cakes were cut by those who celebrated their birthday this month. They were Mrs. Gayathri, Mrs. Dolly Khanna, Mrs. Dhanalakshmi, Mr. P. Balaji, and Soroptimist, Mrs. Sheila Rao.

The meeting was largely attended and the follow up camp will be held shortly.

World MS Day 2018 – Fundraising Program

By | Bangalore | No Comments

A Fund Raising program Jagachitra was held in continuation with the camp to commemorate WMSD. This event was held mainly to create Awareness among general public & also to raise funds for the welfare of MS persons in aid of MSSI, Bangalore Chapter from Thank God It’s Saturday

Thank God it’s Saturday!’ or TGiS in short, is an exclusive group of photographers, both experienced and amateur, who despite their varied professions get together every weekend to pursue their collective love for photography. TGIS has been raising funds since 2003 has committed the entire proceeds to noble causes which includes the Rotary and the MSSI.

The collection of photographs showcases a wide repertoire of motifs, ranging across culture & festivals, monuments, flora, fauna, dances and landscapes of the India and from across the world. What makes these exhibitions so special is the display of amateur works of high standard, right alongside those of experienced and senior photographers, contributing to a liberating spirit of inclusion.

Inauguration of the exhibition:

Grand inauguration of the photography exhibition was held on May 31st 2018 at Rangasthala Auditorium adjacent to the exhibition hall. Celebrity who inaugurated the event was a famous & Award winning actress Suman Nagarkar.

There were more than thousand people who visited the exhibition every day and brochures were handed over to them. Volunteers explained the cause and briefed visitors about MS. We had a good media coverage which helped us in creating more awareness about MS.

An article about Jagachitra was published in Your story, link provided below:

https://yourstory.com/2018/06/art-for-a-cause-how-this-photography-exhibition-is-raising-funds-for-the-multiple-sclerosis-society-of-india/

https://yourstory.com/2018/06/adversity-can-open-opportunity-punkaj-gupta-photographer-multiple-sclerosis-patient/

OUR HEARTFELT THANKS TO SANOFI GENZYME FOR THE SPONSORSHIP TOWARDS THE WMSD EVENTS HELD.

WMSD at IMA Pune

By | Pune | No Comments

The invitation to attend IMA Annual day program on Sunday, 3rd June had been extended by Dr Padma Iyer, President, IMA.

This appeared to be a good opportunity to continue with our WMSD reach out project for GPs and general public for creating awareness about Multiple Sclerosis and MSSI, hence we decided to attend this program.

The program participants included doctors, clinical psychologists, psychiatrists, advocates, legal advisors, counsellors, Human right activist, healing expert, etc. besides the general public.

Committee members Sarita Varma and Sunita Lalwani attended this program

and interacted with all the participants and distributed brochures to them.

Disseminating information about MS and MSSI services to the medical fraternity and others present at the IMA function in such manner was a very satisfying experience

 

World MS Day 2018 – Kolkata

By | Kolkata | No Comments

Bhalo thaakar Gaan” (Good music for good life) – A soulful and enthralling musical evening was held with performances by national award winning singer Rupankar Bagchi and Sidhu (lead man of popular Bangla band – Cactus) featuring Bengali film hits and modern songs along with golden oldies in Hindi to celebrate World Multiple Sclerosis (MS) Day 2018 in support of Multiple Sclerosis Society of India, Kolkata chapter. This was held on the evening of 31st May 2018 at Kala Mandir, one of best auditorium in the City of Joy. The event was attended by over 500 music loving Kolkatans, who had joined hands to support this critical and incurable neuro ailment.

The evening took off by a welcome speech by Anirban Banerjee, the Hon Joint Secretary of MSSI, Kolkata who wholeheartedly thanked the audience and the corporates who supported the cause. The Hon. Secretary of the chapter Ms. Anuradha Goswami then spoke and stressed on spreading maximum awareness about MS across all. The same appeal was reinstated by the Chairman of the Kolkata chapter – Mr. Anand Chopra who then invited the society’s national President Mr. Viresh Oberoi who graced the occasion with his grand presence. Mr. Oberoi then invited senior neurologist of Bangur Institute of Neurosciences, Dr. Gautam Ganguly who spoke at length on the new treatments getting unfolded to fight MS.

Then Sidhu started his musical performance in his unique energetic style. He performed some Hindi oldies which was very relevant to the evenings theme and also performed some Bengali hits including the much admired “Holud Pakhi” of Cactus and some folk numbers where the audience too lent their voice. One of the memorable moment of the evening was when Sidhu performed “Bhalo thaakar Gaan” – a song which was written and composed by Sidhu for the event to celebrate World MS Day 2018. Then much to delight of the present audience, Sidhu called Rupankar on stage and together they sang “Amar bhitor bahire, antare antare” and the crowd just went berserk.

The very popular Rupankar then came on stage and kept on performing all his hits one after another and the requests just came pouring in and he happily obliged too. He also performed “Sanket”, the song he had written and composed for World MS Day in 2017.

Both the performers spoke at length on MS and appealed to the present public to spread awareness and support the unfortunate people fighting MS.

The melodious evening came to an end with a vote of thanks by the Vice Chairman Kolkata chapter – Mrs. Swapna Ghosh.

The event got wide spread media coverage where event teasers got published in Dainik Statesmen and Eastern Chronicle. Post the event we got coverage from Calcutta Times (Times of India), The Statesman, Ei samay, Sangbad Nazar and online news articles with photographs in The Times of India, ibgnews.com, Sholoanabangaliana.com till date.