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MSSI

BASIC LIFE SUPPORT AND FIRST AID

By | Hyderabad | No Comments

As we all know that first aid is the first and immediate help given to any person suffering from either a minor or serious illness or injury with care provided to preserve life.

A very interesting and lively session on first aid was conducted by Dr. Rebecca who is an MS fighter and Emergency Physician.

According to her lack of first aid and basic life, support knowledge is what she seeks to correct, knowing that the spate of deaths could have been prevented.

CPR was demonstrated on a dummy to show how life can be saved before help arrives.

MSPs and caregivers were made to do it experimentally as everyone should be aware of such emergencies and the help they can provide to the sufferer.

It was indeed an informative session.

 

To know more please click the link below:

https://photos.app.goo.gl/f8nTBLWj6S4ufDqa6
https://photos.app.goo.gl/ktT1d2Vb5gRxUtvu9
https://photos.app.goo.gl/6TAMihxmxcmJCD5w5

MS Clinic & Neuro Rehabilitation Workshop

By | Mumbai | No Comments

Report on Launch of ‘MS Clinic’ & Neuro Rehabilitation Workshop At Sir H.N. Reliance Foundation Hospital, Mumbai

As MSSI has taken the challenge to create continued awareness about MS in the society & looking after the wellbeing of MSPs, the renowned hospitals who are aware of an increasing number of MS cases in India are ready to offer better care to MSPs by opening specialised MS Clinic in association with us.

We, MSSI MUMBAI in association with Sir H.N. Reliance Foundation Hospital & Research Centre, Mumbai had organized Neuro Rehabilitation Workshop when they were going to Launch ‘MS Clinic” on Saturday, 14th Sept. 2019, at 3.00 p.m. In all 65 people attended the program including MSPs, caregivers, doctors, therapists and others.

The “MS Clinic Launch” program started with lighting the lamp by honourable Doctors of the Hospital & MSSI Office Bearers. Dr. Aashish Contractor, Head of the Neuro Rehab Centre, welcomed dignitaries & invitees (MSPs, caregivers, physio/occupational therapists). He then invited Dr. Arun Shah, Consultant Neurologist & Director, Neurology Services, Sir H.N. Reliance Foundation Hospital, Mumbai, to speak on Epidemiology & symptoms of MS. Dr. Shah also spoke on new research on MS being carried out in their Research Centre.

Then Dr. Manish Chhabria, Neurologist highlighted the Disease Modifying Therapies (DMTs) and their benefits of controlling MS relapses. There was a testimonial by Mr. Thakkar, the spouse of one of the MSPs about the lifestyle changes she has made under the guidance of Neuro Rehab Team at the hospital due to which she is improved and has become independent.

Dr. Hemal Vora, Occupational Therapist spoke about dealing with fatigue in MS.

Dr. Poonam Bajaj, Neuro Physio Therapists who is in-charge of Neuro Rehab spoke on the excellent facilities available at their Rehab Centre showing video clips of patients using various machines like antigravity treadmill, aqua therapy in a pool for improving mobility etc. It was very encouraging.

Mrs. Sheela Chitnis, Founder of MSSI spoke about various services provided by MSSI to MSPs and families. She urged the audience that a person having MS should not think it as a Social Stigma and come forward to register with MS Society to avail the various facilities and share an interaction with other MS families. She also requested all present to offer their services as volunteers for MSSI events.

Awareness Programme at Colleges

By | Chennai | No Comments

The awareness programme on Multiple Sclerosis was conducted in three colleges on various dates in the last month.

1. Loyola College, Chennai.
2. Mar Gregorius College, Chennai.
3. Dharmamurthi Rao Bhahadur Calavala Cunnan Chetty’s Hindu College, Pattabiram, Chennai.

The main aim of this awareness programme was to make young students aware that there is an autoimmune disease called “Multiple Sclerosis”, also called “Crippler of the Young Adults”. Apart from that, the introduction of the Multiple Sclerosis Society, Chennai Chapter, that looked after the welfare of the persons affected by it and its activities.

So far we have covered Social Work Colleges. The students actively participated during the session and leaflets were given to them to study more about this orphan disease. Many have opted to do internships with us.

Awareness Talk at Rotary Club

By | Hyderabad | No Comments

An awareness talk on ‘Multiple Sclerosis’ & ‘MSSI’ was given by Chairperson Meena Gupta on 22nd August 2019 at Taj Tristar, Secunderabad. This was a joint speaker meeting of 4 Rotary Clubs – RC Cantonment, RC Central, RC Deccan and RC Secunderabad East.

There were almost 60 members, and the talk with a presentation was very well received and appreciated by all. We could create awareness in a large cross-section of professionals, businessmen and people from all walks of life. Our MS person Mrs. Arti Mital shared her experience about ‘Life with MS – Visible and Invisible Symptoms’ which touched the hearts of everyone present.

Laughter Therapy

By | Hyderabad | No Comments

“Laughter is always the best medicine
Silence will always be the best revenge
Love will always be all you need”

A very lively session conducted by MSSI Hyderabad Chapter on 18th August 2019.

We all gathered and laughed away our tensions and worries with Mr. Om Seth, The Laughter Yoga Therapist.

It was indeed a hilarious session where highly enthusiastic MSPS got energized enjoyed every bit and learned many laughter therapies which made one point very clear that being happy is very important.

Human race has one really effective weapon and that is laughter.

MS Youth Meeting

By | Hyderabad | No Comments

All those long-forgotten college-days’ fun and laughs, crazy chit-chats,
eating off others’ plates, giggling over one’s own traits,
a Meet where everyone could be and behave how they are
without hesitation, without embarrassment, without judgement,
within a beautiful comfort zone inspiring each other, promising to be there for one another,
feeling light sharing away plight,

MS Youth Meet – was a perfect retreat
from being ‘Everyday warriors’ to ‘Cheerful partners’ and to
Reassure “We are not alone” and
Reaffirm “Together we are growing Stronger”!!

 

Session on Naturopathy

By | Hyderabad | No Comments

MSSI Hyderabad Chapter has viewed another interactive and informative session on NATUROPATHY – “Joy of Life depends on Health”

Dr. Bapuji Balijepalli (Naturopath) was invited for a talk on the importance of diet in managing MS. He is the first graduate of modern medicine in India and has given a Scientific approach to the system of Naturopathy. He believes “To live is not sufficient, we also need the joy of living and joy of living depends on Health”

Enthusiastic and deeply engrossed MS patients and caregivers have learned many new things like how animal protein triggers antibody production that results into autoimmune diseases.
Sinus was discussed in-depth as it is considered as a Silent Septic Focus.

Many things like (milk products, food containing colours, additives and preservatives) are forbidden to improve our health and prevent oneself from relapses.

The session has ended up with one to one discussion and vote of thanks.

ROUND TABLE DISCUSSION

By | Indore | No Comments

We, at Indore Chapter, had an amazing interaction with Dr. Passi (Neurologist) and Mrs. Renuka Malakar (MSSI National Secretary) on Sunday 28 July 2019 from 12 pm to 3 pm. Around 25+ PwMS and Caregivers attended at Hotel Lemon Tree, R.N.T. Marg, Indore. We also announced our working committee of all PwMS working for PwMS. There were also some wonderful creative ideas of fundraising and projects discussed even while having special Indorean lunch.

Face to Face programme

By | Chennai | No Comments

MSSI – Chennai Chapter monthly “Face to Face” Programme was held on 27-07-2019. The Chief Guest for the day was Dr. Alpha Khakhar practising Gynecologist, Obstetrician & Gynecologist and a Urogynecologist with an experience of 18 years.

Dr. Alpha Khakhar addressed the gathering on the topic “Multiple sclerosis and Incontinence”. She explained the connection between the brain and bladder. She also gave a case study of an actor Ms. Selma Blair an actress who is also diagnosed with Multiple Sclerosis and lives positively with the “will power” as an example of our MSP’s. She also explained about urinary incontinence diagnosis and assessment procedure followed by the treatment process. She spoke on Diet and nutrition to try gluten-free food. And she also focused on two important aspects i.e. exercise and stress management in that she specified the “Laughter therapy”. After the session, our CSR partners – BNY Mellon volunteers conducted games for the MS person and caregivers, followed by our MS persons Ms. Banumathy, Ms. Farzana, Ms. Gomathi birthday celebrations. Everyone had delicious Snacks and the meeting came to a happy ending.

Face to Face Program held on 22-06-2019

By | Chennai | No Comments

The Chief Guest for the day was Dr. Prithika Chary, Consultant Neurologist & Neurosurgeon and Chief Neurologist at Kauvery Hospital, one of the largest hospitals in Chennai. She was the first and only lady in India to be qualified as both Neuro physician and Neurosurgeon.

Dr. Prithika Chary addressed the MS persons and their caregivers on the topic “Current treatment options for Multiple Sclerosis.” She started the session by giving a brief introduction about the MS and followed by the treatment process for the MS by explaining in detail about the Medicines available for MS and the treatment for each type of MS. She also focused on lifestyle changes, diet, nutrition, and the importance of Physical therapy ( exercise). She shared her personal life experience with Cancer, how she survived with it and how she overcame it. The session was for 1 ½ hour. Through her life sharing experiences, she created an impactful speech to our MS person which was very motivating and inspirational for them. There were around 45 MS patients and caregivers benefited from her talk. MS persons and caregivers were very attentive and participated actively by interacting with the resource person.

5 MS persons celebrated their Birthday by cutting cakes with their other MS friends singing Happy Birthday and everyone had their delicious snacks and meeting came to a happy ending.