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Awareness Event at SGS Mall

By | Pune | No Comments

MSSI Pune had organised an awareness event at SGS Mall, Pune to mark the World MS Day, on Saturday 25th May 2019 between 5.00 pm and 7.00 pm.

At the outset, our Hon. Secretary Mrs Asha welcomed all present and thanked everyone for participating in Event. Then she invited Mrs Mini Grant, Founder Chairperson to brief the audience on MSSI and their activities.

The audience included MSPs, caregivers, volunteers, donors, committee members, staff members and Mall visitors. In all about 55 people were present at the event besides Mall visitors.

Mrs Mini Grant spoke about MSSI activities and the help MSSI provides to MS Persons: medicines, physiotherapy, counselling etc.

Anurag Monks, Professional Musicians presented beautiful old and new Bollywood songs. The audience was enthralled by their band and performance.

MS person Mr. Karan Jagwani who used to be a football player shared his views on MS. Though he gave up playing, never lost his courage and took medicines etc as per Doctors advice. The message he conveyed to MSPs was that one should not lose hope but fight MS courageously, and that’s what helped him remain fit. His talk was very motivational and was appreciated by the audience and MSPs.

MSSI Brochures were distributed to Mall visitors. Many of Mall visitors inquired about the MS. This event really helped us in creating awareness of MS.

Committee members felicitated MS Persons by handing over the gift.

Mrs. Asha Merchant proposed a vote of thanks.  She thanked committee members, MSPs, caregivers and staff members for their participation. She also expressed gratitude to SGS Mall for allowing us to utilise their premises for this event. The event ended at 7.30 pm.       

MSSI at IMA House

By | Pune | No Comments

On 19th of May, 2019 MSSI Pune participated at the Indian Medical Association’s symposium at IMA House to create awareness about MS. About 80 Doctors were present. In spite of the busy schedule of IMA symposium, they were kind enough to allow us a slot of 15 minutes to talk on MS and MSSI’s activities.

Asha Merchant briefed the Doctors present with the help of powerpoint presentation the role of MSSI and kind of events it undertakes to create awareness on MS. The events include Walkathon, Musical program at Mall, Physiotherapy camp at medical college; Medical camps at Ruby Hall Clinic, a picnic for MSPs and their caregivers to ensure that they remain socially connected with one another, fundraising event and donors meet.

Madhuri Kothavale addressed the audience in Marathi and talked about MSSI, its affiliation with MSIF UK, No of Chapters in India and their objectives in terms of providing financial help for medication, counselling, providing physiotherapy, nursing assistance to bedridden needy MS Patients, visits by the Patient coordinator to MSPs to understand their special needs.

Anjali Vyas, being an MS Person herself interacted with Doctors present and talked about her MS and the way she bravely faced the difficulties arising out this disease and kept herself fit and happy.

MSSI distributed brochures to all the Doctors. There was a photo session with the senior doctors. The program ended with personal interaction with different doctors followed by lunch provided by IMA.

Sujok Therapy

By | Hyderabad | No Comments

MSSI Hyderabad has conducted a session on Sujok therapy to discover the wonderful benefits of therapy by Mamta Agarwal, a Certified Sujok Lecturer, Therapist and Instructor International SuJok Association.

This month we joined together to learn how to smile deeply through every cell of our being, spreading the smile around us bringing health and harmony to our wellbeing with the help of pressure points on the hands (Su) and feet (Jok).

This Korean therapy activates your energies, de-stresses your body and heals. Nature is the best healer

Surya Namaskar – power for health.

By | Chennai | No Comments

MSSI Chennai Chapter had a “Face to Face” programme on 23.03.2019. The evening started with “Meditation Session” by Dr Kalpana. Later  Dr Bashyam, who is a renowned researcher and practitioner of “Surya Namaskar” took over the next session.  He started the session with prayer. He briefed our MS persons about the importance of sunlight, vitamin D and Yoga. Deep breathing in and out, preferably on an empty stomach, is very beneficial for overall health issues.

Mrs. Hema beautifully demonstrated the 12 postures of Surya Namaskar yoga in a chair and requested  MS persons and their caregivers follow the instructions and practice the same at home to get effective results. For follow up, they are advised to show the steps in the next meeting. The MS persons were asked to volunteer to do the Gummi (a folk dance about sunlight).

The evening came to a happy ending with MS person, Mr. Arun Kumar and Mr. Kenzer cutting a birthday cake to the joyous singing of Happy Birthday by all the 50 MS persons and their caregivers.

Sumptuous snacks and tea brought the meeting to a close.

Fundraiser Event – Pune

By | Pune | No Comments

Event:  A Marathi comedy play “Chal Tuzi seat pakki”
Date: Sunday, 17th March 2019
Venue: Tilak Smarak Mandir, Tilak road, Pune.
Time: 12.30pm to 4.30pm

Highlights:

The program started with the screening of a short video prepared on MS person Gayatri Joshi highlighting the invisible aspect of Multiple Sclerosis. Gayatri herself then came on stage and spoke about MS and its symptoms. Laxman Iyer then invited Chairperson Mr Banerjee on stage, who gave a brief talk on MSSI activities.  Dr Padma Iyer, President of IMA (Indian medical association) Pune was the Chief Guest on this occasion. In her speech, she appreciated the work done by MSSI Pune. and also briefed the audience about IMA. Our Chairperson Mr. Banerjee and Dr Padma Iyer jointly released the souvenir. The play started at 1:00 pm. The humorous script had the audience in splits since the beginning. A short Intermission of nearly 10 minutes was observed at 2.30 pm. During the interval, short videos of film stars with a positive message for MS persons were played. Souvenirs were distributed to the audience by the volunteers.  The play was very entertaining and had a profound message.

After the play, all the artists and Dr Padma Iyer were felicitated. This was followed by the vote of thanks by Committee member Anjali Vyas.

Committee members Gayatri Joshi and Laxman Iyer were the MOCs for this event.

All the MSPs, BNY Mellon volunteers, Committee members and staff who had come for the program interacted with the artists by going on the stage. Everyone thoroughly enjoyed themselves.

Awareness and Fundraising Program

By | Bengaluru | No Comments

PHOTOGRAPHY EXHIBITION HELD FROM 1ST TO 10TH MARCH 2019

A solo exhibition was held by Mr. Punkaj Gupta, Hon. Secretary to create Awareness cum Fund Raising

Along with Honeycomb Creative Support. The inauguration was held on March 1st 2019 at the Honeycomb Art Gallery which was inaugurated by Mr. Anand Sharan, Senior Photographer & Mentor, Felicitation by Noufel, Founder & MD of Honeycomb Creative Support (P) Ltd., & Vote of thanks was rendered by

Mr. K. A. Prasad, Senior Managing Committee Member of MSSI.

Mr. Punkaj was generous to contribute the sale proceeds of the photographs towards MSSI. It was a good awareness for the public for the entire exhibition of ten days wherein more than 700 people had visited the gallery.

Also during the exhibition Awesome, three events took place like:

  • Playback theatre show
  • Musings on the spot
  • Instant Painting of the photographs

Instant playback theatre was performed by Ranji David based on the experiences of the audience after seeing some of the photographs.

Musings on the spot by Navoneil Bhattacharya where he, along with the entire audience, wrote instant poetry on some of the photographs.

Instant painting by Mithila Ketkar along with the audience on their individual canvas of their interpretation of some of the photographs was held.

India MS Day 2019

By | General | No Comments

India Multiple Sclerosis Day is a pan India event observed on the first Sunday of February every year. This event is aimed at generating awareness about MS in the society and this is attained by involving MS patients, Caregivers and other Stakeholders from all walks of life. Further, the idea is to gather media awareness as a means to reach out to the masses. When it comes to MS, early detection is imperative to slow down the disease. Thus creating awareness about the signs and symptoms of this disease goes a long way in assuring treatment and effectiveness of precautionary measures, which will contribute to better health conditions of those diagnosed

Initiated in 2016, the purpose of observing ‘India MS Day’, in addition to World MS Day, was to celebrate the occasion at a time of the year that was favourable to Indian MS persons. Given that the essence of observing such occasions is to reach out to hundreds and thousands of people around the country and spread awareness about the challenges of living with MS in an Indian context. Thus, events and campaigns that focus on this issue are observed across all eight chapters in the country.

There is an interesting connection between Bikers and Persons with MS (PwMS)

When one rides a motorcycle everything has to be in tune with each other, acceleration, suspension, alignment, balance and brake then only you can have a smooth ride…

For a second just imagine this…

You are on a bike going on a scenic road going to your favourite destination and suddenly the engine stops working…

What do you think will happen… A Breakdown

This is the exactly what happens to a Person when diagnosed with MS because the Central Nervous system (machine of your body) stops working causing a the Breakdown….

But what is the one thing that Riders and Person with MS have in common situation? They fix the problem, make the best of what they have and carry on with life.

“Alone we can do so little, together we can do so much” Helen Keller

Here are a few videos on the events which took place on IMSD across the country

India MS Day 2019 – Chennai

By | Chennai | No Comments

To mark “India MS Day” an “MS Awareness Rally” was organized by the Multiple Sclerosis

Society of India and the Chennai Royal Riders Motorcycle Club. Motor Bike Rally from Shollinganallur Tollgate to Mahabalipuram (30 Kms) was flagged off by Mr. Rajiv Khanna, Managing Director of Kwality Milk Foods Limited, Chennai. Members of Multiple Sclerosis Society, Patients, Volunteers, and Social Work Students participated in the Rally. Mrs. Ann Gonsalvez, Hon. Chairperson of MSSI- Chennai, gave an awareness talk about MS, its symptoms and effects.

One of the unique features of India MS Day 2019 was the Riders ended the rally in the Sea Breeze Resort, Mahabalipuram, where more than 125 MS People, caregivers, Students and volunteers were gathered for their annual picnic. They were received with handclapping and loud cheers.

The volunteers from BNY (Bank of New York) conducted group games for MSP’s and caregivers such as hitting the cups, breaking the balloon, bingo etc.

Students of Social Work from Loyola College, Madras School of Social Work and Mar Gregorios College conducted song and dance through a game of Dumcharade. This was to portray the told and untold emotion of the MSP and how it should be understood. It also conveyed the message how the caregivers should “remove the negativity” from their life and also not to pressure the MSP’s.

Delicious food and refreshments were provided for everyone. The MSP’s and caregivers had a good time interacting with each other by singing and dancing. The resort was on the beach; hence the cool water of the Arabian Sea welcomed them all with a dip in its water. With the great fun and enjoyment, the day came to an end.

India MS Day 2019 – Pune

By | Pune | No Comments

To commemorate India MS Day, A Bike Rally was organised on Sunday, 3rd February 2019. Bikers, each group having about 50 Bikers were flagged off from three different locations in Pune.

Sarasbaug – MSP – Jyoti Ronghe/ Anjali Vyas
Sambhaji Park – MSP – Gayatrie Joshi
Kalyani Nagar – MSP- Anjali Gijare/ Rohit Nigade

The flagging off was done by MSPs at all three locations. Each Biker group travelled about 12 Kms and reached final destination Bund Garden around 10 am.

In all, there were about 200 participants at Bund Garden which included 150 bikers (Over 120 bikers from BNY Mellon) committee members, staff members, BNY Mellon Volunteers, MSPs and caregivers.

At Bund Garden, committee members welcomed all the Bikers and thanked them for their enthusiastic participation. Group photo session with all bikers wearing bandanas was followed by the release of 500 orange colour balloons.

Later all participants were requested to move on to Sr. Citizen Club Hall at Bund Garden. Our founder Chairperson Mrs Mini Grant welcomed all the participants. Mr Firoz Khoja our Admin. Officer sang a Bhakti Geet to commence the program. Mrs Jyoti Ronghe, Ms Gayatri Joshi and Ms Anjali Vyas our very active committee members and MS Persons shared their views on MS ailment and explained to the audience how they are keeping themselves happy in spite of this ailment and fighting the disease.

This was followed by a “Lavani folk dance” by Meera Dalvi and her troupe who had been deputed by Dr Panpatil and his team from I&B Ministry Pune. They enthralled the audience for about 45 minutes with their lively performance.

Gifts were handed over to the performers as a token of appreciation

The event ended at about 12 noon with the distribution of snacks and Lemon Lassi to all the participants present.

India MS Day 2019 – Hyderabad

By | Hyderabad | No Comments

MSSI Hyderabad chapter organised Bike rally on 3rd February to celebrate India MS Day on the Necklace road, a prime location in the heart of Hyderabad. It was a unique experience with the rally driven by People with MS, their friends, caregivers, and family members. It perfectly reflected on the spirit of PwMS – “We are unstoppable”.

We had a very inspiring speech and flag off by our chief guest, Mr. Mahender Vaishnav who is an International Cricketer, member of Indian Blind Cricket team, captain of Telangana state team. and also a recipient of Padma Mohana excellence award – 2019.

We were happy to have amongst us, Ms. Nagamani, a well-known athlete of international fame and also three famous celebrities of Hyderabad in the fields of theatre, ikebana and remedial education join us in the support.

The international football team also participated with us in the ride. The gathering and the rally looked very attractive with the T- shirts and flags on the beautiful Sunday morning.

Highlights of the event:

  • Had a great opportunity to create awareness on MS to the public and also to media persons through Awareness speech at Eat street, Necklace road and at the railway station.
  • Helped raise enthusiasm and motivation among PwMS and their family members.
  • Brief Counselling to new members registered during the event.
  • Socializing and refreshing moments for PwMS and families over Breakfast.

Hyderabad chapter thanks Sanofi Genzyme for sponsoring this energizing event.

Overall it was a great success with excellent participation and enthusiasm among everyone. The event proved to echo “Together we are stronger”.