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India MS Day 2019 – Delhi

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We, the Delhi chapter, organized a massive rally of 400 bikers lead by THOR-The Harmony of RIDERS riding across 20 KMs bearing flags and posters that talk about MS and MSSI.

The rally was flagged off by Disability Commissioner, Mr. Daniyal. The rally started off from Pitampura with great enthusiasm and briefing by Thor Leaders and Bipasha Gupta regarding the objective of the ride. The 25 km ride of 2km Convoy culminated at HUDCO Amphitheatre,  Ansal Plaza with the bikers catching the eyes of everyone on the street.

At the culmination point with greetings of Dholwalas beating the drum and wave of MSSI flags and resounding welcome of MSSI Members all the bikers gathered and had refreshments.  The program went forward with Rehnuma Band performing a host of songs, both classics and new, and brought everyone to their feet and had people dancing. All attendees were given IMSD flags.

The band’s performance was followed by the welcome speech from Ms. Bipasha Gupta, Chairperson MSSI Delhi, who welcomed everyone to the occasion and thanked all the biker groups. Then Dr. J. D. Mukherjee, Director and HOD Neuro at Max Hospital, took to the stage and gave an intriguing speech in Hindi on MS, its symptoms and signs and importance of early detection. The attendees listened keenly as Dr. Mukherjee gave an insight into MS and how to spot it. Further, Ms. Renuka Malaker, National Secretary MSSI, gave a speech on MS and MSSI’s efforts at raising awareness and aiding MS persons in their fight against the disease. These speeches were followed by the presentation of mementoes by Ms. Milly and Ms. Bipasha to the admins of each biker group that had joined in the rally. The Harmony of Riders (T.H.O.R) group then presented a memento to MSSI as a token of appreciation for their continued effort in raising awareness about MS. All the volunteers from Shivaji College were presented with certificates of appreciation for their help through the day by Mr. Prabal Malaker, Hon. Secretary MSSI.

This was followed by the distribution of gift bags to the riders and food packages to all the attendees. “What is MS” leaflets were also distributed to all the bikers. We called it a day at 12 PM as the bikers left the Amphitheatre with smiles on their faces knowing that it had been a ride for a worthwhile cause.

MSSI is grateful to IPS HARSH BANSAL. all the Volunteers and SHIVAJI COLLEGE RSS, NCC AND PHOTOGRAPHY VOLUNTEERS. THANK YOU MADDY, DANG, AJIT, SANJEEV, MC ANKUSH AND NEIL  FOR YOUR CONSTANT HELP AND GUIDANCE

FINALLY, WITHOUT THOR WE COULD  NOT HAVE GONE AHEAD WITH THIS MASSIVE TASK. THANK YOU THOR-THE HARMONY OF RIDERS.

Heartfelt thanks to Sanofi Genzyme for their financial support.

World MS Day 2018 – Delhi

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1.Along with the rest of the world and seven other Chapters in India, MSSI Delhi  held a series of events in line with this year’s theme of research, giving all those who are curious about MS research an opportunity to meet people involved and learn more about progress in the field. The Multiple Sclerosis Society of India Delhi Chapter and India’s leading Research Centre & Hospital All India Institute of Medical Sciences held  an open day for people to meet experts working in MS research & treatment, including psychotherapy and counseling. It invited the public to learn about MS and how it affects different aspects of daily life.

An awareness Seminar was organised at India’s foremost Hospital & Medical Research centre All India Institute od Medical Sciences (AIIMS) A Panel discussion was held with 7 leading Neurologists  / Senior Faculty members of the Neurosciences Centre ( NSC) discussing the latest treatments in the search for cure for MS . Dr Kameshwar Prasad , Head of NSC AIIMS was hopeful of the results coming in from AIIMS own research  and corroborated with similar research in the rest of the world with regard to hematopoietic stem cell treatment (HSCT) . He is of the belief that in the near future we could expect that HSCT could well become the first line of treatment in MS.

This was attended by over 300 people which included newly diagnosed persons with MS, their families, caregivers, Doctors & members of the general public.

2. During MS Awareness Week, the MS Society of India’s Delhi Chapter engaged with people affected by MS as well as the wider public. An all day Awareness Booth came up at Delhi’s most popular Mall Select City Mall Saket for the whole day on Saturday 26 MayThis Mall sees the highest foot falls , with up to  40,000 visitors on weekends .MSSI Delhi put up an LCD screen showing short films & videos on MS. several thousand pamphlets on “what is MS” were  distributed along with other items like orange MS wrist bands, MS badges , ribbons etc with the WMSD & MSSI logos. Many persons with MS  and their families dropped in and bonded over coffee & pizza spending an exciting day in the Mall – some lucky mamas managed to get a quick free makeover at cosmetic stores while their kids got free balloons at other promotional events !

World MS Day 2018 Delhi

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New Delhi 28 May 2018: Multiple Sclerosis Society of India(MSSI) commemorated ‘World Multiple Sclerosis Day’ in New Delhi the capital city of India.

We adapted the theme of #brininguscloser at the National Level to address the gap of lack of awareness & understanding about MS, plight of Person with MS and the role MSSI plays. We were able to stress on the fact that carrying out large scale population-based epidemiological study to determine true incidence and prevalence rates of MS viz a viz disease burden is the need of the hour

Our main target audience for this event were 2 critical stakeholders Ministry of Social Justice & Empowerment and the Media. The event format was a panel discussion followed by Q & A by PR professional. The panelist were   Mr.  K. Vikram Simha Rao – Director, Department of Empowerment of Persons with Disabilities, Ministry of Social Justice and Empowerment, Government of India Mr. T.D. Dhariyal – Commissioner for Persons with Disabilities, Government of NCT National Capital Territory of Delhi) Dr. Kameshwar Prasad Head of the Department of Neurology & Director Clinical Epidemiology Unit- All India Institute of Medical Sciences (AIIMS) Delhi and 2 of our MS Heroes Mr Rajiv Virat Wheelchair Instructor, Marathon & Tennis Champion & Mr Arun Srinivasan Graphic Designer and Artist

There seems to be a considerable shift in MS prevalence in India and this has really changed the notion of considering India as a low risk zone for MS. So much so that MS is included in the new Rights of Person with Disability RPWD Act and the ministry of Social Justice and empowerment has recommended that MS along with all other new disability be included in the Ayushman Bharat a national health protection scheme.

Ms. Renuka Malaker, National Secretary, MSSI, highlighted that as MSSI is a powerful voice of person suffering from MS in the country and if we sustain the momentum of  building awareness amongst all important stake holders only then we will be able to create the 1st MS Registry which will create a base for Research and Access to Affordable Treatment

For more information on MSSI please visit: www.mssocietyindia.org  visitwww.mssocietyindia.org/get-involved/

Annual Fundraising & Awareness Programme

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MSSI Delhi had the pleasure of holding a dance recital by Padmashri Shovana Narayanji .  The dance ballet “Mera Safar”  based on the uplifting & thought provoking poetry of Ali Sardar Jafri was presented by  Shovana Narayan & her Asavari  Foundation .

This was attended by our donors & supporters and MS patients who were charmed by the wonderful new Banquet space at The LaLit – the Terrace Plaza .

The programme started with a vote of thanks to all our Donors & supporters of 2017-2018 .

Programme highlights  included straight from the heart inspirational personal stories by 3 of our “MS Power Girls”. Praveen Khetarpal, Shalini Monga & Sohini Banerjee . They spoke about their journey with MS, how with support of their families & partners they were able to carry on with life. They also talked about the role of MSSI in “ bringing us closer” and making sure that they remain in the mainstream of life.

The evening concluded with Muzikafe  playing popular numbers for all present .. The rousing “ I will survive.. “ received 2 encores ! And of course the ever popular Lucky Draw  for all Donor Pass holders & MS Persons.

We remain indebted to Mrs Jyotsna Suri , CMD of Lalit Group and the wonderful Hotel team headed by Vivek Shukla for a superbly organized function .

World MS Day 2017 – Delhi

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World MS Day is a global event World MS Day is officially marked on the last Wednesday of May of the current year. Events and campaigns take place throughout the month of May under the guidance of MULTIPLE SCLEROSIS INTERNATIONAL FEDERATION, MSIF all over the world i.e.in 78 countries. This helps to bring the global MS community together to share their stories, raise awareness and campaign with and for everyone affected by Multiple Sclerosis, MS. Together we reach out to hundreds of thousands of people around the world, with a campaign focusing on a different theme each year.

To commemorate World MS Day, this year the most prestigious Hospital and Research Centre AIIMS, New Delhi in collaboration with MULTIPLE SCLEROSIS SOCIETY OF INDIA DELHI organized a PRESS CONFERENCE at their new Convergence Block, Media Room and a medical panel discussion & information on the latest treatment AHSCT for MS and how to lead and manage LIFE WITH MS at JAWAHARLAL NEHRU AUDITORIUM. All the MSSI Delhi MS Patients, members, volunteers and concerned people were invited. The session was open to public.

The seminar was Hosted by AIIMS and Chaired by Dr. R Guleria, Director of AIIMS. Moderator was Dr Kameshwar Prasad, HOD, Department of Neurology, AIIMS and participant panel doctors were Dr Padma Srivastava,  Dr Vinay Goyal , Dr.Rohit Bhatia,Dr Deepti Vibha ,Dr Vishnu YV, Dr Rajesh Singh and  Dr Awadh Pandit.  It was an open forum for questions from each MS patients & answered to their satisfaction.

Each Doctor was allotted different topics. The topics which were touched: – LATEST MEDICAL ADVANCES IN MS, AHSCT STEM CELL TREATMENT, BLADDER PROBLEM, WEAKNESS, WALKING DIFFICULTIES, DEPRESSION & TREATMENT, and PREGNANCY & MS & DIET COUNSELING etc. The theme was “LIVING WITH MS”. MSSI Hon. Secretary MSP PRABAL MALAKER inaugurated NEW MSSI BROCHURE FOR WMSD AND Ms.Meenakshi Bhujwala introduced the work of MSSI.

Some Doctors and MSSI members Bipasha Gupta and Meenakshi Bhujwala counseled the MSPs even after the session was over .

A PRESS CONFERENCE WAS HELD AND EXTENSIVE INTERVIEWS ON AIR FM CHANNELS AND DOORDARSHAN WERE GIVEN BY BIPASHA GUPTA,DR.VINAY GOYAL OF AIIMS AND PRABAL MALAKER PRIOR TO THE EVENT. 4 LEADING NEWS PAPERS CARRIED QUARTER PAGE PUBLIC NOTICES FOR THIS MULTIPLE SCLEROSIS  SEMINAR ON THEIR FRONT PAGE.

A large gathering took place in spite of the very hot weather. 30 new patients were identified & enrolled during the Seminar. The Seminar was very interesting and gave all the opportunity to learn many new issues in regards to health safety for MS patients. The question answer session was very good and solved many queries- this was greatly appreciated by all present. It was a very enriching experience for all MSPs & caregivers who attended the seminar. 9 Doctors of AIIMS, many MSPs with their caregivers, 5 physiotherapists, EC members, volunteers & Office Staff attended this enlightening & stimulating seminar. MSSI is grateful to all their members and volunteers for contributing their valuable time .

FOOD PACKETS, MEDICINES, WATER BOTTLES, JUICE AND MSSI BROCHURES WERE DISTRIBUTED TO ALL THE MSPS AND CAREGIVERS.

MSSI DELHI DONATED A WHEEL CHAIR AND DIAPERS ON THE DAY TO HELP MSPS.

WE ARE OBLIGED TO TATA POWER DDL FOR PROVIDING CARS FOR OUR HOME BOUND NEEDY PATIENTS.