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Delhi

Annual Fundraising & Awareness Programme

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MSSI Delhi had the pleasure of holding a dance recital by Padmashri Shovana Narayanji .  The dance ballet “Mera Safar”  based on the uplifting & thought provoking poetry of Ali Sardar Jafri was presented by  Shovana Narayan & her Asavari  Foundation .

This was attended by our donors & supporters and MS patients who were charmed by the wonderful new Banquet space at The LaLit – the Terrace Plaza .

The programme started with a vote of thanks to all our Donors & supporters of 2017-2018 .

Programme highlights  included straight from the heart inspirational personal stories by 3 of our “MS Power Girls”. Praveen Khetarpal, Shalini Monga & Sohini Banerjee . They spoke about their journey with MS, how with support of their families & partners they were able to carry on with life. They also talked about the role of MSSI in “ bringing us closer” and making sure that they remain in the mainstream of life.

The evening concluded with Muzikafe  playing popular numbers for all present .. The rousing “ I will survive.. “ received 2 encores ! And of course the ever popular Lucky Draw  for all Donor Pass holders & MS Persons.

We remain indebted to Mrs Jyotsna Suri , CMD of Lalit Group and the wonderful Hotel team headed by Vivek Shukla for a superbly organized function .

World MS Day 2017 – Delhi

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World MS Day is a global event World MS Day is officially marked on the last Wednesday of May of the current year. Events and campaigns take place throughout the month of May under the guidance of MULTIPLE SCLEROSIS INTERNATIONAL FEDERATION, MSIF all over the world i.e.in 78 countries. This helps to bring the global MS community together to share their stories, raise awareness and campaign with and for everyone affected by Multiple Sclerosis, MS. Together we reach out to hundreds of thousands of people around the world, with a campaign focusing on a different theme each year.

To commemorate World MS Day, this year the most prestigious Hospital and Research Centre AIIMS, New Delhi in collaboration with MULTIPLE SCLEROSIS SOCIETY OF INDIA DELHI organized a PRESS CONFERENCE at their new Convergence Block, Media Room and a medical panel discussion & information on the latest treatment AHSCT for MS and how to lead and manage LIFE WITH MS at JAWAHARLAL NEHRU AUDITORIUM. All the MSSI Delhi MS Patients, members, volunteers and concerned people were invited. The session was open to public.

The seminar was Hosted by AIIMS and Chaired by Dr. R Guleria, Director of AIIMS. Moderator was Dr Kameshwar Prasad, HOD, Department of Neurology, AIIMS and participant panel doctors were Dr Padma Srivastava,  Dr Vinay Goyal , Dr.Rohit Bhatia,Dr Deepti Vibha ,Dr Vishnu YV, Dr Rajesh Singh and  Dr Awadh Pandit.  It was an open forum for questions from each MS patients & answered to their satisfaction.

Each Doctor was allotted different topics. The topics which were touched: – LATEST MEDICAL ADVANCES IN MS, AHSCT STEM CELL TREATMENT, BLADDER PROBLEM, WEAKNESS, WALKING DIFFICULTIES, DEPRESSION & TREATMENT, and PREGNANCY & MS & DIET COUNSELING etc. The theme was “LIVING WITH MS”. MSSI Hon. Secretary MSP PRABAL MALAKER inaugurated NEW MSSI BROCHURE FOR WMSD AND Ms.Meenakshi Bhujwala introduced the work of MSSI.

Some Doctors and MSSI members Bipasha Gupta and Meenakshi Bhujwala counseled the MSPs even after the session was over .

A PRESS CONFERENCE WAS HELD AND EXTENSIVE INTERVIEWS ON AIR FM CHANNELS AND DOORDARSHAN WERE GIVEN BY BIPASHA GUPTA,DR.VINAY GOYAL OF AIIMS AND PRABAL MALAKER PRIOR TO THE EVENT. 4 LEADING NEWS PAPERS CARRIED QUARTER PAGE PUBLIC NOTICES FOR THIS MULTIPLE SCLEROSIS  SEMINAR ON THEIR FRONT PAGE.

A large gathering took place in spite of the very hot weather. 30 new patients were identified & enrolled during the Seminar. The Seminar was very interesting and gave all the opportunity to learn many new issues in regards to health safety for MS patients. The question answer session was very good and solved many queries- this was greatly appreciated by all present. It was a very enriching experience for all MSPs & caregivers who attended the seminar. 9 Doctors of AIIMS, many MSPs with their caregivers, 5 physiotherapists, EC members, volunteers & Office Staff attended this enlightening & stimulating seminar. MSSI is grateful to all their members and volunteers for contributing their valuable time .

FOOD PACKETS, MEDICINES, WATER BOTTLES, JUICE AND MSSI BROCHURES WERE DISTRIBUTED TO ALL THE MSPS AND CAREGIVERS.

MSSI DELHI DONATED A WHEEL CHAIR AND DIAPERS ON THE DAY TO HELP MSPS.

WE ARE OBLIGED TO TATA POWER DDL FOR PROVIDING CARS FOR OUR HOME BOUND NEEDY PATIENTS.