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Pune

Picnic to Empress Garden

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A picnic was organised at Empress Garden on Sunday 17th November 2019. Around 74 people consisting of MSPs, their caregivers, dependent children of MSPs, Committee members, Staff members, invitees and BNY Mellon volunteers attended the picnic.

MSPs who were not in a position to travel to the picnic spot on their own were picked up and dropped back home by BNY volunteers.

Volunteers from BNY Mellon arrived at the picnic spot right on time, 9.30 am and helped MS Persons reached Nana Nani Park. The volunteer was available throughout the picnic duration and helped our MS Persons in many ways.

Our founder chairperson Mrs Mini Grant’s friend Mr Suresh Pingale, a member of Garden Committee in Pune allotted us Nana Nani Park and sponsored delicious breakfast for participants.

Breakfast was served at about 10.30 am. Volunteers helped in serving the breakfast. This was followed by a diverse range of activities which included singing performances by MSPs and interested picnickers, Antakshari, Housie game and other unique games. Prizes were also given to the winners.

17th November, being a birth anniversary of Late Dady C. Dady who is one of our major donors, a Cake cutting ceremony was organised. Mrs Mini Grant kindly accepted the request of all the members to perform the cake cutting ceremony.

Lunch was served at 1.30 pm. Participants, especially MSPs while having lunch interacted with each other. They shared their views, concerns with one another and were very happy to be in the group once again. They all really enjoyed this outing which gave them an opportunity to go away from home, meet old acquaintances, and get engaged in non-routine activities.MSPs and their caregivers thoroughly enjoyed this fun-filled picnic. The picnic concluded at 4.00 pm.

Pune Marathon

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Ms. Gayatri Joshi, Mrs. Jyoti Ronghe and Mr. Laxman Iyer (Committee Member, Pune Chapter) attended 24 hrs relay Marathon at Magarpatta City on 5th October 2019, organized by Running Punters.

The Marathon started at 7.00 hrs. And concluded on 6th October 2019 at 7.00 hrs. Ms.Gayatri Joshi participated in the Marathon with MSSI bib and completed run of 700 metres. Ms.Gayatri was live on Facebook Page of Running Punters where she mentioned that she is running for spreading awareness and fund raising. Ms. Gayatri was felicitated by Running Punters team with a special mention at the felicitation ceremony on 6th October 2019.

Mrs. Ronghe shared information about MS and MSSI with participants and viewers. She also distributed brochures and souvenirs among them. Mr. Laxman Iyer also shared word with viewers about MSSI and MS. Both of them did appeal for donations to participants and viewers.

Running Punters have shared MSSI link for donation which is mentioned on MSSI website. They have taken up this as a long term project to support the cause.

Awareness Event at SGS Mall

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MSSI Pune had organised an awareness event at SGS Mall, Pune to mark the World MS Day, on Saturday 25th May 2019 between 5.00 pm and 7.00 pm.

At the outset, our Hon. Secretary Mrs Asha welcomed all present and thanked everyone for participating in Event. Then she invited Mrs Mini Grant, Founder Chairperson to brief the audience on MSSI and their activities.

The audience included MSPs, caregivers, volunteers, donors, committee members, staff members and Mall visitors. In all about 55 people were present at the event besides Mall visitors.

Mrs Mini Grant spoke about MSSI activities and the help MSSI provides to MS Persons: medicines, physiotherapy, counselling etc.

Anurag Monks, Professional Musicians presented beautiful old and new Bollywood songs. The audience was enthralled by their band and performance.

MS person Mr. Karan Jagwani who used to be a football player shared his views on MS. Though he gave up playing, never lost his courage and took medicines etc as per Doctors advice. The message he conveyed to MSPs was that one should not lose hope but fight MS courageously, and that’s what helped him remain fit. His talk was very motivational and was appreciated by the audience and MSPs.

MSSI Brochures were distributed to Mall visitors. Many of Mall visitors inquired about the MS. This event really helped us in creating awareness of MS.

Committee members felicitated MS Persons by handing over the gift.

Mrs. Asha Merchant proposed a vote of thanks.  She thanked committee members, MSPs, caregivers and staff members for their participation. She also expressed gratitude to SGS Mall for allowing us to utilise their premises for this event. The event ended at 7.30 pm.       

MSSI at IMA House

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On 19th of May, 2019 MSSI Pune participated at the Indian Medical Association’s symposium at IMA House to create awareness about MS. About 80 Doctors were present. In spite of the busy schedule of IMA symposium, they were kind enough to allow us a slot of 15 minutes to talk on MS and MSSI’s activities.

Asha Merchant briefed the Doctors present with the help of powerpoint presentation the role of MSSI and kind of events it undertakes to create awareness on MS. The events include Walkathon, Musical program at Mall, Physiotherapy camp at medical college; Medical camps at Ruby Hall Clinic, a picnic for MSPs and their caregivers to ensure that they remain socially connected with one another, fundraising event and donors meet.

Madhuri Kothavale addressed the audience in Marathi and talked about MSSI, its affiliation with MSIF UK, No of Chapters in India and their objectives in terms of providing financial help for medication, counselling, providing physiotherapy, nursing assistance to bedridden needy MS Patients, visits by the Patient coordinator to MSPs to understand their special needs.

Anjali Vyas, being an MS Person herself interacted with Doctors present and talked about her MS and the way she bravely faced the difficulties arising out this disease and kept herself fit and happy.

MSSI distributed brochures to all the Doctors. There was a photo session with the senior doctors. The program ended with personal interaction with different doctors followed by lunch provided by IMA.

Fundraiser Event – Pune

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Event:  A Marathi comedy play “Chal Tuzi seat pakki”
Date: Sunday, 17th March 2019
Venue: Tilak Smarak Mandir, Tilak road, Pune.
Time: 12.30pm to 4.30pm

Highlights:

The program started with the screening of a short video prepared on MS person Gayatri Joshi highlighting the invisible aspect of Multiple Sclerosis. Gayatri herself then came on stage and spoke about MS and its symptoms. Laxman Iyer then invited Chairperson Mr Banerjee on stage, who gave a brief talk on MSSI activities.  Dr Padma Iyer, President of IMA (Indian medical association) Pune was the Chief Guest on this occasion. In her speech, she appreciated the work done by MSSI Pune. and also briefed the audience about IMA. Our Chairperson Mr. Banerjee and Dr Padma Iyer jointly released the souvenir. The play started at 1:00 pm. The humorous script had the audience in splits since the beginning. A short Intermission of nearly 10 minutes was observed at 2.30 pm. During the interval, short videos of film stars with a positive message for MS persons were played. Souvenirs were distributed to the audience by the volunteers.  The play was very entertaining and had a profound message.

After the play, all the artists and Dr Padma Iyer were felicitated. This was followed by the vote of thanks by Committee member Anjali Vyas.

Committee members Gayatri Joshi and Laxman Iyer were the MOCs for this event.

All the MSPs, BNY Mellon volunteers, Committee members and staff who had come for the program interacted with the artists by going on the stage. Everyone thoroughly enjoyed themselves.

India MS Day 2019 – Pune

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To commemorate India MS Day, A Bike Rally was organised on Sunday, 3rd February 2019. Bikers, each group having about 50 Bikers were flagged off from three different locations in Pune.

Sarasbaug – MSP – Jyoti Ronghe/ Anjali Vyas
Sambhaji Park – MSP – Gayatrie Joshi
Kalyani Nagar – MSP- Anjali Gijare/ Rohit Nigade

The flagging off was done by MSPs at all three locations. Each Biker group travelled about 12 Kms and reached final destination Bund Garden around 10 am.

In all, there were about 200 participants at Bund Garden which included 150 bikers (Over 120 bikers from BNY Mellon) committee members, staff members, BNY Mellon Volunteers, MSPs and caregivers.

At Bund Garden, committee members welcomed all the Bikers and thanked them for their enthusiastic participation. Group photo session with all bikers wearing bandanas was followed by the release of 500 orange colour balloons.

Later all participants were requested to move on to Sr. Citizen Club Hall at Bund Garden. Our founder Chairperson Mrs Mini Grant welcomed all the participants. Mr Firoz Khoja our Admin. Officer sang a Bhakti Geet to commence the program. Mrs Jyoti Ronghe, Ms Gayatri Joshi and Ms Anjali Vyas our very active committee members and MS Persons shared their views on MS ailment and explained to the audience how they are keeping themselves happy in spite of this ailment and fighting the disease.

This was followed by a “Lavani folk dance” by Meera Dalvi and her troupe who had been deputed by Dr Panpatil and his team from I&B Ministry Pune. They enthralled the audience for about 45 minutes with their lively performance.

Gifts were handed over to the performers as a token of appreciation

The event ended at about 12 noon with the distribution of snacks and Lemon Lassi to all the participants present.

Medical Camp Report – Pune

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The Camp started at 10 am. Ruby Hall Clinic had provided wheelchairs, walkers and stretchers for patients as required. Two ward boys of Ruby Hall Clinic also helped MSPs in moving them to cheek up areas.

There were five MS Persons from outside Pune and three of the local MS Persons were brought in Ambulance provided by OM Ambulance services.

Dr Rajas Deshpande had allotted specific duties to all the physiotherapy students.

There were 17 volunteers of BNY Mellon who helped MSPs in going to different Specialists, getting prescribed medicines from the chemist, serving the food to patients at lunchtime etc. Some BNY Mellon volunteers picked up and dropped MSPs to and from their residence on their request. One of our committee member Mr. Laxman Iyer also helped in bringing/dropping one MSP at the medical camp.

All the MSPs on entering were registered at the MSSI registration desk. They were given gifts by MSSI at the time of registration. The reimbursement cheques of medical aid, physiotherapy, medicines were also handed over at the Registration Desk. Thereafter MS persons went to another desk where MSPs history data forms were filled by the physiotherapy students and they guided them to different specialists for checkups.

The physiotherapists guided each patient individually and helped them perform exercises. The dietician guided every patient individually and gave a diet chart.

Dr. Rajas Deshpande apprised the MSPs regarding substantial price reduction on certain medicines.  Pharmaceutical companies namely Sun Pharma and Cipla were presently giving these Discounts.  He informed that it was a very significant and beneficial move as the price of certain medication had significantly dropped, making it more affordable. However, medicines should be taken only as per prescription.

Later students gave presentations on the benefits of Physiotherapy. A Dance therapist also presented dance movements which can help wheelchair-bound and bedridden MSPs.

All Specialists were felicitated with gifts sponsored by MSSI Pune.

Five MS persons and their caregivers were also felicitated

Representatives of Pharmaceutical companies were felicitated by Dr. Deshpande.

  • MS Persons felicitated – Geetanjali Jagtap, Poonam Nagpure, Afroz Shaikh, Parmeet Khanuja, Sidhram Landge.

All MSPs were reimbursed their conveyance expenses including ambulance hiring charges of Om ambulance services.

Medicines prescribed by the doctors were purchased by MSSI Pune and provided to the MSPs. Outstation patients were given medicines for 3 months.  Some medicines were given free by pharmaceutical companies at Ruby hall itself.

Tea / Coffee was served to all at around 11.00 am

A sumptuous buffet lunch organized by “Little Italy” was served to all participants The lunch was sponsored by a pharmaceutical company at the request of Dr. Rajas Deshpande.

 

Phyisiotherapy Camp, Pune

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The Physiotherapy camp was organised at Tilak Maharashtra Vidyapeeth, Gultekdi Pune on Tuesday 27th November 2018 with the initiative of Ms Pooja Shevale intern physiotherapist of the college. This camp was organised as part of her study project. In turn, it helped our MSPs in assessing their ambulatory capacities and other related health issues faced by them.

In all 70 participants attended the camp, which included 6 MSPs, 6 caregivers, 4 staff members and rest intern students of the Physiotherapy Department of the college.

The program started at 10.30 am with the Welcome address by Dr Ujwal Yeole, Principal of the college. He welcomed all the participants and appreciated the efforts of MSSI Pune in organising the camp. He informed the participants that total about 9 batches of physiotherapists graduated from the Vidypeeth and are providing physiotherapy services. Some graduates are even settled abroad are in the same profession. The Tilak Maharashtra Vidyapeeth is associated with the Parkinson Society of India and would also like to be associated with MSSI Pune with a view to offering services to the MSPs of MSSI Pune Chapter.

Then Dr Tushar Dhavale took over and explained in his speech the various deficiencies of MSPs in terms of their strength, range of motion, mobility restrictions, blurred vision, speech difficulties, bowel and bladder irregularities and most commonly the back pain faced by them. He discussed the benefits of Physiotherapy in providing relief to MSPs. The participants appreciated the talk and thanked him for sharing vital clues to further treatment decisions which included Energy conservation techniques, right way of doing exercises in addition to proper medication and periodic checkups.

Thereafter Mrs Asha Merchant Hon Jt. Secretary of MSSI Pune expressed thanks to the organisers of the camp, Dr Ujwal Yeole, Principal of the college and Dr Tushar Dhavale, Professor of Physiotherapy. She also briefed the participants on the important role of MSSI in identifying the MSPs and taking care of them by providing medicines, physiotherapy, mobility aids, hospitalisation, counselling etc. She also said that MSSI not only provides medical assistance to needy persons but also organises other social events like picnics, get to gathers, lunch parties etc so that MSPs do not feel left out and socially neglected.

The discussion of the camp concluded at 11.30 am. This was followed by a delicious breakfast and tea which was sponsored by Tilak Maharashtra Vidyapeeth.

After the breakfast, all the MSPs were taken to OPD where Doctors carried out medical checkups and strength assessment exercises of each MSP with the help of intern students of the college. The college authorities agreed to share the reports of every MSP with MSSI Pune. The camp concluded at 1.30 pm.

Picnic to Chondhe Farms with MSPs

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A picnic was organised to Chondhe Farms near Lonikand, on Saturday 6th October 2018, a distance of about 25 Km from Kalyani Nagar.

Two Buses were hired from Penosh. Keeping in mind the MSP’s convenience, two pick up locations were fixed. One at the office address and another one at Narpatgiri Chowk Mangalwar Peth.

Two BNY Mellon volunteers picked up patients from their residence and bought them to the Kalyani Nagar bus stand and dropped them home after the picnic.

The Buses left from the office address at 10.00 am and reached picnic site 11.00 am. 18 MSPs, 22 caregivers, 15 volunteers from BNY Mellon, 5 committee members and 3 staff members i.e. a total of 63 persons attended the picnic.

In the bus, we served Chatni sandwiches and bananas to all the participants. The sandwiches and water bottles had been ordered from Mr Rohit Nigade a registered MS person who runs a catering business.

BNY Mellon volunteers helped wheelchair bound MSPs and other MSPs reach the Entertainment Hall where the entire day was to be spent. Breakfast was served at about 11.30 am. Volunteers served the breakfast to MSPs and their caregivers on their table. Everyone interacted with each other and were happy to talk and express themselves.

After breakfast, the DJ invited by Chondhe Farms presented few beautiful Bollywood songs. Our staff member Firoz Khoja and some MSPs also sang songs and entertained the audience.

Lunch was served at 1.30pm. As expected the volunteers did their best in serving the lunch to MSPs and caregivers. MSPs were very happy and enjoyed the delicious lunch.

Post lunch we had Magic show which was arranged by Chondhe Farms. The magician entertained the audience with his unique magic items. Magician involved MSPs and other audience members in his show which was very entertaining.

This was followed by games jointly conducted by Mrs Asha Merchant and Mr Laxman Iyer. Many novel ideas were there in these games and everyone participated enthusiastically.  All participants were given gifts.

Then our Committee Members Ms Gayatri Joshi and Mr Laxman Iyer put up a beautiful skit which highlighted the importance of the caregiver’s role. Both of them performed their parts brilliantly and everyone present was very touched with the act.

High Tea was served around 5.00 pm. The picnic activities ended at about 6.00 pm. The Buses left for their respective destination at about 6.30 pm.

 

WALKATHON – MSSI Pune

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To celebrate World Physiotherapy Day, a Walkathon was organised by Sancheti Hospital Pune on Sunday 9th September 2018.  MSSI Pune had actively participated in the Walkathon to create an awareness on MS and the Role of Physiotherapist in providing relief to the MSPs.

The participants included Four Committee members, two staff members, five volunteers and two MSPs. There were in all 13 persons who took part in the event.

There was a spot event conducted by the organisers. People were asked to come on the stage to do the Plank Exercise. Firoz Khoja, our staff member also participated in this event.

The Walkathon had 3 categories of events (a) 5 KM Walk (b) 3 KM Walk (c) 1 KM Walk. The two of our volunteers went for 5 KM event, the majority of us walked 3 KM. One MSP did 3 KM and one MSP did 1 KM Walk.

All of us were wearing MSSI Cap which was very much appreciated by the organiser.

The Walkathon started on time as scheduled from Sancheti Hospital and proceeded towards Jangli Maharaj Road and returned to the starting point after completing the planned distance.

Later Sancheti Hospital provided refreshment to all participants. Free icepacks were distributed to the needy persons. We exchanged views with other participants and distributed our Brochures to familiarise them with the activities and the role of MSSI Pune Chapter.

The Program ended at 8.15 am.