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Pune

Fundraiser Event – Pune

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Event:  A Marathi comedy play “Chal Tuzi seat pakki”
Date: Sunday, 17th March 2019
Venue: Tilak Smarak Mandir, Tilak road, Pune.
Time: 12.30pm to 4.30pm

Highlights:

The program started with the screening of a short video prepared on MS person Gayatri Joshi highlighting the invisible aspect of Multiple Sclerosis. Gayatri herself then came on stage and spoke about MS and its symptoms. Laxman Iyer then invited Chairperson Mr Banerjee on stage, who gave a brief talk on MSSI activities.  Dr Padma Iyer, President of IMA (Indian medical association) Pune was the Chief Guest on this occasion. In her speech, she appreciated the work done by MSSI Pune. and also briefed the audience about IMA. Our Chairperson Mr. Banerjee and Dr Padma Iyer jointly released the souvenir. The play started at 1:00 pm. The humorous script had the audience in splits since the beginning. A short Intermission of nearly 10 minutes was observed at 2.30 pm. During the interval, short videos of film stars with a positive message for MS persons were played. Souvenirs were distributed to the audience by the volunteers.  The play was very entertaining and had a profound message.

After the play, all the artists and Dr Padma Iyer were felicitated. This was followed by the vote of thanks by Committee member Anjali Vyas.

Committee members Gayatri Joshi and Laxman Iyer were the MOCs for this event.

All the MSPs, BNY Mellon volunteers, Committee members and staff who had come for the program interacted with the artists by going on the stage. Everyone thoroughly enjoyed themselves.

India MS Day 2019 – Pune

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To commemorate India MS Day, A Bike Rally was organised on Sunday, 3rd February 2019. Bikers, each group having about 50 Bikers were flagged off from three different locations in Pune.

Sarasbaug – MSP – Jyoti Ronghe/ Anjali Vyas
Sambhaji Park – MSP – Gayatrie Joshi
Kalyani Nagar – MSP- Anjali Gijare/ Rohit Nigade

The flagging off was done by MSPs at all three locations. Each Biker group travelled about 12 Kms and reached final destination Bund Garden around 10 am.

In all, there were about 200 participants at Bund Garden which included 150 bikers (Over 120 bikers from BNY Mellon) committee members, staff members, BNY Mellon Volunteers, MSPs and caregivers.

At Bund Garden, committee members welcomed all the Bikers and thanked them for their enthusiastic participation. Group photo session with all bikers wearing bandanas was followed by the release of 500 orange colour balloons.

Later all participants were requested to move on to Sr. Citizen Club Hall at Bund Garden. Our founder Chairperson Mrs Mini Grant welcomed all the participants. Mr Firoz Khoja our Admin. Officer sang a Bhakti Geet to commence the program. Mrs Jyoti Ronghe, Ms Gayatri Joshi and Ms Anjali Vyas our very active committee members and MS Persons shared their views on MS ailment and explained to the audience how they are keeping themselves happy in spite of this ailment and fighting the disease.

This was followed by a “Lavani folk dance” by Meera Dalvi and her troupe who had been deputed by Dr Panpatil and his team from I&B Ministry Pune. They enthralled the audience for about 45 minutes with their lively performance.

Gifts were handed over to the performers as a token of appreciation

The event ended at about 12 noon with the distribution of snacks and Lemon Lassi to all the participants present.

Medical Camp Report – Pune

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The Camp started at 10 am. Ruby Hall Clinic had provided wheelchairs, walkers and stretchers for patients as required. Two ward boys of Ruby Hall Clinic also helped MSPs in moving them to cheek up areas.

There were five MS Persons from outside Pune and three of the local MS Persons were brought in Ambulance provided by OM Ambulance services.

Dr Rajas Deshpande had allotted specific duties to all the physiotherapy students.

There were 17 volunteers of BNY Mellon who helped MSPs in going to different Specialists, getting prescribed medicines from the chemist, serving the food to patients at lunchtime etc. Some BNY Mellon volunteers picked up and dropped MSPs to and from their residence on their request. One of our committee member Mr. Laxman Iyer also helped in bringing/dropping one MSP at the medical camp.

All the MSPs on entering were registered at the MSSI registration desk. They were given gifts by MSSI at the time of registration. The reimbursement cheques of medical aid, physiotherapy, medicines were also handed over at the Registration Desk. Thereafter MS persons went to another desk where MSPs history data forms were filled by the physiotherapy students and they guided them to different specialists for checkups.

The physiotherapists guided each patient individually and helped them perform exercises. The dietician guided every patient individually and gave a diet chart.

Dr. Rajas Deshpande apprised the MSPs regarding substantial price reduction on certain medicines.  Pharmaceutical companies namely Sun Pharma and Cipla were presently giving these Discounts.  He informed that it was a very significant and beneficial move as the price of certain medication had significantly dropped, making it more affordable. However, medicines should be taken only as per prescription.

Later students gave presentations on the benefits of Physiotherapy. A Dance therapist also presented dance movements which can help wheelchair-bound and bedridden MSPs.

All Specialists were felicitated with gifts sponsored by MSSI Pune.

Five MS persons and their caregivers were also felicitated

Representatives of Pharmaceutical companies were felicitated by Dr. Deshpande.

  • MS Persons felicitated – Geetanjali Jagtap, Poonam Nagpure, Afroz Shaikh, Parmeet Khanuja, Sidhram Landge.

All MSPs were reimbursed their conveyance expenses including ambulance hiring charges of Om ambulance services.

Medicines prescribed by the doctors were purchased by MSSI Pune and provided to the MSPs. Outstation patients were given medicines for 3 months.  Some medicines were given free by pharmaceutical companies at Ruby hall itself.

Tea / Coffee was served to all at around 11.00 am

A sumptuous buffet lunch organized by “Little Italy” was served to all participants The lunch was sponsored by a pharmaceutical company at the request of Dr. Rajas Deshpande.

 

Phyisiotherapy Camp, Pune

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The Physiotherapy camp was organised at Tilak Maharashtra Vidyapeeth, Gultekdi Pune on Tuesday 27th November 2018 with the initiative of Ms Pooja Shevale intern physiotherapist of the college. This camp was organised as part of her study project. In turn, it helped our MSPs in assessing their ambulatory capacities and other related health issues faced by them.

In all 70 participants attended the camp, which included 6 MSPs, 6 caregivers, 4 staff members and rest intern students of the Physiotherapy Department of the college.

The program started at 10.30 am with the Welcome address by Dr Ujwal Yeole, Principal of the college. He welcomed all the participants and appreciated the efforts of MSSI Pune in organising the camp. He informed the participants that total about 9 batches of physiotherapists graduated from the Vidypeeth and are providing physiotherapy services. Some graduates are even settled abroad are in the same profession. The Tilak Maharashtra Vidyapeeth is associated with the Parkinson Society of India and would also like to be associated with MSSI Pune with a view to offering services to the MSPs of MSSI Pune Chapter.

Then Dr Tushar Dhavale took over and explained in his speech the various deficiencies of MSPs in terms of their strength, range of motion, mobility restrictions, blurred vision, speech difficulties, bowel and bladder irregularities and most commonly the back pain faced by them. He discussed the benefits of Physiotherapy in providing relief to MSPs. The participants appreciated the talk and thanked him for sharing vital clues to further treatment decisions which included Energy conservation techniques, right way of doing exercises in addition to proper medication and periodic checkups.

Thereafter Mrs Asha Merchant Hon Jt. Secretary of MSSI Pune expressed thanks to the organisers of the camp, Dr Ujwal Yeole, Principal of the college and Dr Tushar Dhavale, Professor of Physiotherapy. She also briefed the participants on the important role of MSSI in identifying the MSPs and taking care of them by providing medicines, physiotherapy, mobility aids, hospitalisation, counselling etc. She also said that MSSI not only provides medical assistance to needy persons but also organises other social events like picnics, get to gathers, lunch parties etc so that MSPs do not feel left out and socially neglected.

The discussion of the camp concluded at 11.30 am. This was followed by a delicious breakfast and tea which was sponsored by Tilak Maharashtra Vidyapeeth.

After the breakfast, all the MSPs were taken to OPD where Doctors carried out medical checkups and strength assessment exercises of each MSP with the help of intern students of the college. The college authorities agreed to share the reports of every MSP with MSSI Pune. The camp concluded at 1.30 pm.

Picnic to Chondhe Farms with MSPs

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A picnic was organised to Chondhe Farms near Lonikand, on Saturday 6th October 2018, a distance of about 25 Km from Kalyani Nagar.

Two Buses were hired from Penosh. Keeping in mind the MSP’s convenience, two pick up locations were fixed. One at the office address and another one at Narpatgiri Chowk Mangalwar Peth.

Two BNY Mellon volunteers picked up patients from their residence and bought them to the Kalyani Nagar bus stand and dropped them home after the picnic.

The Buses left from the office address at 10.00 am and reached picnic site 11.00 am. 18 MSPs, 22 caregivers, 15 volunteers from BNY Mellon, 5 committee members and 3 staff members i.e. a total of 63 persons attended the picnic.

In the bus, we served Chatni sandwiches and bananas to all the participants. The sandwiches and water bottles had been ordered from Mr Rohit Nigade a registered MS person who runs a catering business.

BNY Mellon volunteers helped wheelchair bound MSPs and other MSPs reach the Entertainment Hall where the entire day was to be spent. Breakfast was served at about 11.30 am. Volunteers served the breakfast to MSPs and their caregivers on their table. Everyone interacted with each other and were happy to talk and express themselves.

After breakfast, the DJ invited by Chondhe Farms presented few beautiful Bollywood songs. Our staff member Firoz Khoja and some MSPs also sang songs and entertained the audience.

Lunch was served at 1.30pm. As expected the volunteers did their best in serving the lunch to MSPs and caregivers. MSPs were very happy and enjoyed the delicious lunch.

Post lunch we had Magic show which was arranged by Chondhe Farms. The magician entertained the audience with his unique magic items. Magician involved MSPs and other audience members in his show which was very entertaining.

This was followed by games jointly conducted by Mrs Asha Merchant and Mr Laxman Iyer. Many novel ideas were there in these games and everyone participated enthusiastically.  All participants were given gifts.

Then our Committee Members Ms Gayatri Joshi and Mr Laxman Iyer put up a beautiful skit which highlighted the importance of the caregiver’s role. Both of them performed their parts brilliantly and everyone present was very touched with the act.

High Tea was served around 5.00 pm. The picnic activities ended at about 6.00 pm. The Buses left for their respective destination at about 6.30 pm.

 

WALKATHON – MSSI Pune

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To celebrate World Physiotherapy Day, a Walkathon was organised by Sancheti Hospital Pune on Sunday 9th September 2018.  MSSI Pune had actively participated in the Walkathon to create an awareness on MS and the Role of Physiotherapist in providing relief to the MSPs.

The participants included Four Committee members, two staff members, five volunteers and two MSPs. There were in all 13 persons who took part in the event.

There was a spot event conducted by the organisers. People were asked to come on the stage to do the Plank Exercise. Firoz Khoja, our staff member also participated in this event.

The Walkathon had 3 categories of events (a) 5 KM Walk (b) 3 KM Walk (c) 1 KM Walk. The two of our volunteers went for 5 KM event, the majority of us walked 3 KM. One MSP did 3 KM and one MSP did 1 KM Walk.

All of us were wearing MSSI Cap which was very much appreciated by the organiser.

The Walkathon started on time as scheduled from Sancheti Hospital and proceeded towards Jangli Maharaj Road and returned to the starting point after completing the planned distance.

Later Sancheti Hospital provided refreshment to all participants. Free icepacks were distributed to the needy persons. We exchanged views with other participants and distributed our Brochures to familiarise them with the activities and the role of MSSI Pune Chapter.

The Program ended at 8.15 am.

WMSD at IMA Pune

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The invitation to attend IMA Annual day program on Sunday, 3rd June had been extended by Dr Padma Iyer, President, IMA.

This appeared to be a good opportunity to continue with our WMSD reach out project for GPs and general public for creating awareness about Multiple Sclerosis and MSSI, hence we decided to attend this program.

The program participants included doctors, clinical psychologists, psychiatrists, advocates, legal advisors, counsellors, Human right activist, healing expert, etc. besides the general public.

Committee members Sarita Varma and Sunita Lalwani attended this program

and interacted with all the participants and distributed brochures to them.

Disseminating information about MS and MSSI services to the medical fraternity and others present at the IMA function in such manner was a very satisfying experience

 

Poster Competition – WMSD – BNY Mellon

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On Tuesday 29th May 2018 our Corporate Partners BNY Mellon organised a poster competition at their premises at Magarpatta City to observe World MS Day. The Theme of the poster competition was to express their feelings and understanding of the various challenges faced by MS persons. Our Committee Members, MSPs, staff members and BNY Mellon Volunteers were present for the Event.

The participants of the Poster Competition were divided into three groups. Each Group started painting posters keeping in mind the main theme.

At the same time Committee members, BNY Mellon volunteer and MSPs shared their views on MS, this little known disease. MSP  Anjali Vyas spoke about the challenges she faced from the day she was diagnosed with MS. She was very positive, courageous and openly aired her thoughts and feelings.

Then Committee members viewed the posters. Every painting turned out so meaningful that it became difficult to judge the best. So It was decided to give prizes to all the participants. Mrs. Mini Grant our founder Chairperson gave away the prizes and thanked them for their participation.

The event concluded with the vote of thanks to BNY management and all present.

World MS Day 2018 – Pune

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MSSI Pune had organised an Event at SGS Mall Pune to mark the World MS Day and to create awareness on Saturday, 26th May, 2018 between 5.00 pm to 7.00 pm.

At the outset, Committee member Mrs. Chandrakala Shetty welcomed all present. Chairperson Mr Banerjee briefed the Mall audience, on Multiple Sclerosis (MS) and the role of MSSI.

Besides the Mall audience, MS persons, caregivers, volunteers and donors were also present for the occasion.

The Programme started with musical entertainment by professional artist Mr Jitendra and his troop. This was followed by “One minutes games”. MSPs and Audience took active part in the event.

Volunteers from our Corporate Partners BNY Mellon presented a Dance Performance.

Video clips of Bollywood stars with motivational messages for MSPs were then played. This helped in raising the awareness on MS and was very much appreciated by all present.

Mr. Banerjee handed over certificated to Student volunteers who visited doctors in the GP Outreach program.

Mrs Grant, our founder Chairperson felicitated the MSPs and caregivers present.

The event ended with vote of thanks to Mall Management and the formation of human chain to show our solidarity in fighting MS.

 

Symposium on MS – Pune

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On 10th May 2018, MSSI Pune  Chapter organised a meeting of doctors belonging to the Hadapsar Medical Association  to create awareness about Multiple Sclerosis among  general practioners and  bring them closer to MS persons. This is in keeping with the WMSD 2018 theme #bringing us closer.

The symposium started at 8.00 am and went on to 9.30 am.  Total attendance was about 65 people including MSSI office bearers and staff and four student volunteers.

Dr.  Shripad Pujari, a well-known neurophysician  and  President, Hadapsar Medical Association presided over the meeting along with Mr. J.P. Banerjee, Chairperson MSSI Pune.

The meeting commenced with Mr. Banerjee  speaking about MSSI, it’s aims and aspirations and its role in improving quality of Life of MSPs.

Dr. Nilesh Palasdeokar , eminent neurologist and our invited guest for the occasion, gave an extremely easy to understand power point presentation about MS. This gave the audience an easy to grasp understanding of MS.  The symposium was then thrown open to the audience for a question answer session.  Several doctors raised  pertinent questions which were cleared by Dr. Nilesh.

We then distributed brochures to the doctors. One side of the brochure carried a copyrighted article about MS by Dr. Rajas Deshpande, Head of Neurology Dept, Ruby Hall Clinic, which he had kindly given us permission to use.

The symposium was followed by breakfast