There's something happening always.

India MS Day 2019 – Bengaluru

By | Bengaluru | No Comments

To Commemorate India MS Day MSSI Bengaluru Chapter conducted two days events. On February 2, 2019, an awareness bike rally was conducted from Omega Healthcare Management Services Pvt. Ltd. to NIMHANS in which around 80 Bikers consisting of Rotarians, Rotaractors of Presidency College, Volunteers, Committee Members of MSSI and MS Persons. Mr. Purushothama Reddy, Senior Vice President – Finance and Head- CSR of Omega Healthcare Management Services Pvt. Ltd. flagged off the Rally. The Rally covered about 9.5 kms stretch & reached NIMHANS. It was a good Awareness among the public throughout the stretch.

Sumptuous breakfast was ready at NIMHANS by the time the Bikers reached the venue. MS persons Y& the NIMHANS team received the Bikers. As per the plan, everybody assembled at the seminar hall of NIMHANS. Formal inauguration was done by Dr.Gangadhar, Director, Registrar & Doctors of NIMHANS.

Dr. Netravati, Assistant Professor, Neurology welcomed the group. Dr. Gangadhar gave a brief speech on MS & the association of NIMHANS with MSSI from a long time. Green Mementos were given to all the dignitaries present for the occasion.

Panel discussion was held under Dr. Sathish Chandra, Neurologist & past Director of NIMHANS along with a team of Doctors specialized in various fields. After the panel discussion Creative Movement Therapy was held which was enjoyed well by the whole audience present.

Mr. V.S. Basavaraju, State Commissioner for Disability, Govt. of Karnataka gave a speech on different governmental benefits and projects.

Annual Health Check at Lucid Diagnostics

By | Hyderabad, Uncategorized | No Comments

MSSI Hyderabad organized the annual health check this year at Lucid diagnostic centre in collaboration with CALL HEALTH on 27th January.

Approximately 50 PwMS, caregivers, family members and members availed this facility.

Everyone was happy as it was very well conducted by the Call Health and Lucid staff and went home happy after the yummy breakfast.

MSSI Awareness at Hyderabad Literary Fest

By | Hyderabad | No Comments

MSSI Hyderabad put up an awareness stall at the Hyderabad Literary Fest held at HYDERABAD PUBLIC SCHOOL on 26th and 27th January 2019. There was an inflow of more than 5000 people of all age groups each day.  Leaflets were distributed and the book FORMS OF THE FORMLESS by Amita Talwar (having write up on MS and MSSI) was sold in good numbers. The book was gifted to the Bollywood celebrity, Shabana Azmi, who was there for the screening of the film on her father, Kaifi Azmi made by none other than Amita Talwar and to many other well-known writers, poets, theatre artists present at the fest.

Medical Camp Report – Pune

By | Pune | No Comments

The Camp started at 10 am. Ruby Hall Clinic had provided wheelchairs, walkers and stretchers for patients as required. Two ward boys of Ruby Hall Clinic also helped MSPs in moving them to cheek up areas.

There were five MS Persons from outside Pune and three of the local MS Persons were brought in Ambulance provided by OM Ambulance services.

Dr Rajas Deshpande had allotted specific duties to all the physiotherapy students.

There were 17 volunteers of BNY Mellon who helped MSPs in going to different Specialists, getting prescribed medicines from the chemist, serving the food to patients at lunchtime etc. Some BNY Mellon volunteers picked up and dropped MSPs to and from their residence on their request. One of our committee member Mr. Laxman Iyer also helped in bringing/dropping one MSP at the medical camp.

All the MSPs on entering were registered at the MSSI registration desk. They were given gifts by MSSI at the time of registration. The reimbursement cheques of medical aid, physiotherapy, medicines were also handed over at the Registration Desk. Thereafter MS persons went to another desk where MSPs history data forms were filled by the physiotherapy students and they guided them to different specialists for checkups.

The physiotherapists guided each patient individually and helped them perform exercises. The dietician guided every patient individually and gave a diet chart.

Dr. Rajas Deshpande apprised the MSPs regarding substantial price reduction on certain medicines.  Pharmaceutical companies namely Sun Pharma and Cipla were presently giving these Discounts.  He informed that it was a very significant and beneficial move as the price of certain medication had significantly dropped, making it more affordable. However, medicines should be taken only as per prescription.

Later students gave presentations on the benefits of Physiotherapy. A Dance therapist also presented dance movements which can help wheelchair-bound and bedridden MSPs.

All Specialists were felicitated with gifts sponsored by MSSI Pune.

Five MS persons and their caregivers were also felicitated

Representatives of Pharmaceutical companies were felicitated by Dr. Deshpande.

  • MS Persons felicitated – Geetanjali Jagtap, Poonam Nagpure, Afroz Shaikh, Parmeet Khanuja, Sidhram Landge.

All MSPs were reimbursed their conveyance expenses including ambulance hiring charges of Om ambulance services.

Medicines prescribed by the doctors were purchased by MSSI Pune and provided to the MSPs. Outstation patients were given medicines for 3 months.  Some medicines were given free by pharmaceutical companies at Ruby hall itself.

Tea / Coffee was served to all at around 11.00 am

A sumptuous buffet lunch organized by “Little Italy” was served to all participants The lunch was sponsored by a pharmaceutical company at the request of Dr. Rajas Deshpande.

 

Neuro Update 2019

By | Chennai | No Comments

Neuro update 2019 was held on 05/01/2019. Over more than 300 neurologists in India and abroad converge at Chennai to discuss various neurological issues. This year the topic was Neuro-Ophthalmology. A two hours session for MS persons was chaired by:

Prof. Dr. Valerie Biousse, Professor of Ophthalmology & Neurology of Emory University of Medicine, USA.

Prof. Nancy Newman, Professor of Ophthalmology & Neurology of Emory University of Medicine, USA.

PROFESSORS. EMERITUS Dr. Arjun Das & Dr.Velmurugandan.

It was a highly interactive session. The MS patients and their caregivers gained more knowledge on Neuro-Ophthalmology and felt really happy in attending the session.

Appeal to Commissioner

By | Bengaluru | No Comments

Mr. Punkaj, Hon.Secretary submitted the appeal letter to the commissioner describing the important points of getting support from the Government schemes available to MS persons such as support towards free MRI in government hospitals for MS persons, implementation of UDID card, reduce in cost of treatment, concession in hospitalization charges, and easy access to Indian generic drugs on public domain or healthcare platforms.

The Commissioner briefed on the possibilities of availing benefits from the Government like pension schemes, rights of the disabled person & UDID card.

Manadala Art Event

By | Hyderabad | No Comments

The gear wheel in the brain of our beloved chairperson Mrs. Mamta Gupta decided that come December we should have the exuberant Mandala Art which was not only intriguing but enthralled everyone from old to young

The Honorable Judge for the event was Mrs Sharada.

Mandala Art: The word Mandala in Sanskrit means circle.

Mandalas generally have one identifiable centre. From which emanates an array of symbols, shapes and forms. A Mandala represents wholeness. The circular design symbolizes the notion that life is never-ending.

Mandalas can contain both geometric and organic forms. They can also contain recognizable images that carry meaning for the person who is creating. It also represents a connection between our inner worlds and outer reality. Designing your own Mandala is both inspirational and therapeutic. ‘Carl Jung’ introduce this art as a form of self-discovering. Viewing or Coloring the Mandala relaxes and heals the mind. Traditional mandalas are used as meditative tools and spiritual symbols. ‘Rangolis’ alpanas and designs in temples etc.

 Waiting for the Mandala to begin…

Participation with Enthusiasm…

Exploring the Colors…

Reliving moments of childhood. Mother and Daughter…

Mesmerizing show of Colors…

Young at heart. Bright with Colors…

Brilliance at Large…

 

 

 

Roundtable Discussion

By | Mumbai | No Comments

Roundtable Discussion on “The Invisible Symptoms of MS, Rehabilitation of MS Patients in the Indian Context and

New Treatments”

On Sunday 16th December, MSSI Mumbai organized an interactive Roundtable Discussion at Gulmohor Conference Room, The Willingdon Sports Club, Tardeo, Mumbai, with Neurologists: Dr. Bhim Singhal, Director of Neurology at Bombay Hospital & Prof. Jürg Kesselring, Member of the ICRC, President of Move Ability, Senior Ambassador and Neuro expert, Dept of Neurology & Neurorehabilitation, Kliniken Valens, Switzerland. Convened by Dr.Sarosh M. Katrak, Director, and Department of Neurology at the Jaslok Hospital & Research Centre.

 The following Neurologists & Doctors along with Managing Committee Members, 4 MSPs & Sanofi Representatives were present:

Neurologists – Dr. Singhal, Dr. Katrak, Dr. Jurg Kesselring, Dr. Pravina Shah, Dr. Joy Desai, Dr. Jimmy Lalkaka, Dr. Rajesh Benny,  Dr. Charu Shankhla, Dr. Deepak Ahiwale.  Dr. Anil kumar Gaur, Director, All India Institute of Physical Medicine & Rehabilitation, Dr. Ashish Contractor, Head: Dept. of Rehab and Sports Medicine, Sir H.N. Reliance Foundation Hospital, Dr. Abhishek Shrivastava, Director in Rehabilitation Medicine & Neuro rehab Specialist, D.K. Ambani Hospital.  Dr. Poonam Bajaj, Physiotherapist, Sir H.N. Reliance Foundation Hospital.

The discussion was on “The Invisible Symptoms, Rehabilitation of MS Patients in the Indian Context and New Treatments”.

A warm welcome speech was given by Sheela Chitnis, Founder MSSI & Vice Chairperson, Mumbai.

The discussion is summarized as follows: 

Invisible Symptoms –

The following symptoms came up in the discussion – Fatigue, Bladder control, Cognitive problems like problems of memory, Sexual problems and Emotional issues.

The following ways were discussed to deal with them.

  1. MS related fatigue has to be treated just like fatigue that is related to
    Non-MS Persons.  Fatigue can’t be dealt with any medicine.  Rest is the

best remedy.

  1. In case of Bladder Control, pelvic floor exercises in physiotherapy are
    helpful.
  2. Cognitive issues are best dealt through alternate therapies like
    Meditation, Yoga etc.
  3. Expensive DMT – Issue about DMTs being expensive was discussed. This makes the DMTs inaccessible to a lot of patients in India.

Rehabilitation – Rehabilitation is an important aspect of dealing with MS.  The doctor and patient have to focus on rehabilitation. Various aspects were discussed on this topic.

Resilience:  Patient should be motivated to be Resilient.  Human body has the ability to self-heal to an extent.  Brain displays Neuroplasticity.  Both put together enable the patients to rehabilitate.

RDS : Reward Deficiency Syndrome (By Kenneth Blum) and Flow – Positive Psychology (Mihaly Csikszentmihalyi) came up for discussion too.

Spirituality: gives the necessary thrust to Resilience.  Given the great Meditation techniques available in India, this should be used effectively for rehabilitation of patients.

Right attitude: The doctor can play an important role in helping patients psychologically.

Use of Mental Training in rehabilitation.

  1. Music Therapy: it can support brain function. Learning Music & learning new language are all brain exercises to keep the brain active and functional. This is helpful in MS and also a way to avoid Alzheimer’s disease and Dementia.
  2. Sleep: without distraction is necessary and helps in healing. Avoid sleep medication.  Radiations from mobile phones should be avoided.
  3. Some level of stress is necessary to ward off laziness.

Group Therapy : Doctors should have group sessions with their MS patients to learn from their experiences.  These experiences can help doctors.

Horseback Therapy: was discussed as is practised in Valens.  Various Components makes it a good therapy.

Other things that were discussed are:

  1. CIS (Clinically Isolated Symptoms)
  2. Use of various vaccines in MS patients was discussed.
  3. Should MS patients be given Disability Certificate by default?

The seminar ended: with a Summary of the Session by Sandeep Chitnis, National Vice President of MSSI & Chairperson, Mumbai.

In all 31 persons were present for the Roundtable Discussion.

 

 

 

 

 

 

 

 

 

 

World Disability Week

By | Chennai | No Comments

A Rally was held with all Disability organisations participating at Besant Nagar Beach on December 3, 2018.

A Human Chain was held on 10/12/2018, once again highlighting the need of reclaiming Our Constitutionals Rights.