There's something happening always.

Neuro Update 2019

By | Chennai | No Comments

Neuro update 2019 was held on 05/01/2019. Over more than 300 neurologists in India and abroad converge at Chennai to discuss various neurological issues. This year the topic was Neuro-Ophthalmology. A two hours session for MS persons was chaired by:

Prof. Dr. Valerie Biousse, Professor of Ophthalmology & Neurology of Emory University of Medicine, USA.

Prof. Nancy Newman, Professor of Ophthalmology & Neurology of Emory University of Medicine, USA.

PROFESSORS. EMERITUS Dr. Arjun Das & Dr.Velmurugandan.

It was a highly interactive session. The MS patients and their caregivers gained more knowledge on Neuro-Ophthalmology and felt really happy in attending the session.

Appeal to Commissioner

By | Bengaluru | No Comments

Mr. Punkaj, Hon.Secretary submitted the appeal letter to the commissioner describing the important points of getting support from the Government schemes available to MS persons such as support towards free MRI in government hospitals for MS persons, implementation of UDID card, reduce in cost of treatment, concession in hospitalization charges, and easy access to Indian generic drugs on public domain or healthcare platforms.

The Commissioner briefed on the possibilities of availing benefits from the Government like pension schemes, rights of the disabled person & UDID card.

Manadala Art Event

By | Hyderabad | No Comments

The gear wheel in the brain of our beloved chairperson Mrs. Mamta Gupta decided that come December we should have the exuberant Mandala Art which was not only intriguing but enthralled everyone from old to young

The Honorable Judge for the event was Mrs Sharada.

Mandala Art: The word Mandala in Sanskrit means circle.

Mandalas generally have one identifiable centre. From which emanates an array of symbols, shapes and forms. A Mandala represents wholeness. The circular design symbolizes the notion that life is never-ending.

Mandalas can contain both geometric and organic forms. They can also contain recognizable images that carry meaning for the person who is creating. It also represents a connection between our inner worlds and outer reality. Designing your own Mandala is both inspirational and therapeutic. ‘Carl Jung’ introduce this art as a form of self-discovering. Viewing or Coloring the Mandala relaxes and heals the mind. Traditional mandalas are used as meditative tools and spiritual symbols. ‘Rangolis’ alpanas and designs in temples etc.

 Waiting for the Mandala to begin…

Participation with Enthusiasm…

Exploring the Colors…

Reliving moments of childhood. Mother and Daughter…

Mesmerizing show of Colors…

Young at heart. Bright with Colors…

Brilliance at Large…

 

 

 

Roundtable Discussion

By | Mumbai | No Comments

Roundtable Discussion on “The Invisible Symptoms of MS, Rehabilitation of MS Patients in the Indian Context and

New Treatments”

On Sunday 16th December, MSSI Mumbai organized an interactive Roundtable Discussion at Gulmohor Conference Room, The Willingdon Sports Club, Tardeo, Mumbai, with Neurologists: Dr. Bhim Singhal, Director of Neurology at Bombay Hospital & Prof. Jürg Kesselring, Member of the ICRC, President of Move Ability, Senior Ambassador and Neuro expert, Dept of Neurology & Neurorehabilitation, Kliniken Valens, Switzerland. Convened by Dr.Sarosh M. Katrak, Director, and Department of Neurology at the Jaslok Hospital & Research Centre.

 The following Neurologists & Doctors along with Managing Committee Members, 4 MSPs & Sanofi Representatives were present:

Neurologists – Dr. Singhal, Dr. Katrak, Dr. Jurg Kesselring, Dr. Pravina Shah, Dr. Joy Desai, Dr. Jimmy Lalkaka, Dr. Rajesh Benny,  Dr. Charu Shankhla, Dr. Deepak Ahiwale.  Dr. Anil kumar Gaur, Director, All India Institute of Physical Medicine & Rehabilitation, Dr. Ashish Contractor, Head: Dept. of Rehab and Sports Medicine, Sir H.N. Reliance Foundation Hospital, Dr. Abhishek Shrivastava, Director in Rehabilitation Medicine & Neuro rehab Specialist, D.K. Ambani Hospital.  Dr. Poonam Bajaj, Physiotherapist, Sir H.N. Reliance Foundation Hospital.

The discussion was on “The Invisible Symptoms, Rehabilitation of MS Patients in the Indian Context and New Treatments”.

A warm welcome speech was given by Sheela Chitnis, Founder MSSI & Vice Chairperson, Mumbai.

The discussion is summarized as follows: 

Invisible Symptoms –

The following symptoms came up in the discussion – Fatigue, Bladder control, Cognitive problems like problems of memory, Sexual problems and Emotional issues.

The following ways were discussed to deal with them.

  1. MS related fatigue has to be treated just like fatigue that is related to
    Non-MS Persons.  Fatigue can’t be dealt with any medicine.  Rest is the

best remedy.

  1. In case of Bladder Control, pelvic floor exercises in physiotherapy are
    helpful.
  2. Cognitive issues are best dealt through alternate therapies like
    Meditation, Yoga etc.
  3. Expensive DMT – Issue about DMTs being expensive was discussed. This makes the DMTs inaccessible to a lot of patients in India.

Rehabilitation – Rehabilitation is an important aspect of dealing with MS.  The doctor and patient have to focus on rehabilitation. Various aspects were discussed on this topic.

Resilience:  Patient should be motivated to be Resilient.  Human body has the ability to self-heal to an extent.  Brain displays Neuroplasticity.  Both put together enable the patients to rehabilitate.

RDS : Reward Deficiency Syndrome (By Kenneth Blum) and Flow – Positive Psychology (Mihaly Csikszentmihalyi) came up for discussion too.

Spirituality: gives the necessary thrust to Resilience.  Given the great Meditation techniques available in India, this should be used effectively for rehabilitation of patients.

Right attitude: The doctor can play an important role in helping patients psychologically.

Use of Mental Training in rehabilitation.

  1. Music Therapy: it can support brain function. Learning Music & learning new language are all brain exercises to keep the brain active and functional. This is helpful in MS and also a way to avoid Alzheimer’s disease and Dementia.
  2. Sleep: without distraction is necessary and helps in healing. Avoid sleep medication.  Radiations from mobile phones should be avoided.
  3. Some level of stress is necessary to ward off laziness.

Group Therapy : Doctors should have group sessions with their MS patients to learn from their experiences.  These experiences can help doctors.

Horseback Therapy: was discussed as is practised in Valens.  Various Components makes it a good therapy.

Other things that were discussed are:

  1. CIS (Clinically Isolated Symptoms)
  2. Use of various vaccines in MS patients was discussed.
  3. Should MS patients be given Disability Certificate by default?

The seminar ended: with a Summary of the Session by Sandeep Chitnis, National Vice President of MSSI & Chairperson, Mumbai.

In all 31 persons were present for the Roundtable Discussion.

 

 

 

 

 

 

 

 

 

 

World Disability Week

By | Chennai | No Comments

A Rally was held with all Disability organisations participating at Besant Nagar Beach on December 3, 2018.

A Human Chain was held on 10/12/2018, once again highlighting the need of reclaiming Our Constitutionals Rights.

Phyisiotherapy Camp, Pune

By | Pune | No Comments

The Physiotherapy camp was organised at Tilak Maharashtra Vidyapeeth, Gultekdi Pune on Tuesday 27th November 2018 with the initiative of Ms Pooja Shevale intern physiotherapist of the college. This camp was organised as part of her study project. In turn, it helped our MSPs in assessing their ambulatory capacities and other related health issues faced by them.

In all 70 participants attended the camp, which included 6 MSPs, 6 caregivers, 4 staff members and rest intern students of the Physiotherapy Department of the college.

The program started at 10.30 am with the Welcome address by Dr Ujwal Yeole, Principal of the college. He welcomed all the participants and appreciated the efforts of MSSI Pune in organising the camp. He informed the participants that total about 9 batches of physiotherapists graduated from the Vidypeeth and are providing physiotherapy services. Some graduates are even settled abroad are in the same profession. The Tilak Maharashtra Vidyapeeth is associated with the Parkinson Society of India and would also like to be associated with MSSI Pune with a view to offering services to the MSPs of MSSI Pune Chapter.

Then Dr Tushar Dhavale took over and explained in his speech the various deficiencies of MSPs in terms of their strength, range of motion, mobility restrictions, blurred vision, speech difficulties, bowel and bladder irregularities and most commonly the back pain faced by them. He discussed the benefits of Physiotherapy in providing relief to MSPs. The participants appreciated the talk and thanked him for sharing vital clues to further treatment decisions which included Energy conservation techniques, right way of doing exercises in addition to proper medication and periodic checkups.

Thereafter Mrs Asha Merchant Hon Jt. Secretary of MSSI Pune expressed thanks to the organisers of the camp, Dr Ujwal Yeole, Principal of the college and Dr Tushar Dhavale, Professor of Physiotherapy. She also briefed the participants on the important role of MSSI in identifying the MSPs and taking care of them by providing medicines, physiotherapy, mobility aids, hospitalisation, counselling etc. She also said that MSSI not only provides medical assistance to needy persons but also organises other social events like picnics, get to gathers, lunch parties etc so that MSPs do not feel left out and socially neglected.

The discussion of the camp concluded at 11.30 am. This was followed by a delicious breakfast and tea which was sponsored by Tilak Maharashtra Vidyapeeth.

After the breakfast, all the MSPs were taken to OPD where Doctors carried out medical checkups and strength assessment exercises of each MSP with the help of intern students of the college. The college authorities agreed to share the reports of every MSP with MSSI Pune. The camp concluded at 1.30 pm.

Managing MS with dietary intake

By | Hyderabad | No Comments

The November monthly meet held on 18th November 2018 concluded leaving all the PwMS with a new experience upon alternate ways of managing MS with the dietary intake.

MSSI Hyderabad chapter had invited Mrs Kavita Kabra, a nutritionist and dietitian with about 28 years of experience in counselling and helping people.

Below are the tips as advised by her.

  • Managing your lifestyle by eating simple healthy food every 2 hrs.
  • Drinking more water early morning is not required.
  • High fibre low fat.
  • Omega fat.
  • Rice bran, evening primrosa.
  • Change of food oil every 2 months.
  • 1 tsp of Ghee per day & nuts in your diet is preferable.
  • Compressed oil should not be heated in high flame – cooking compressed oil on a low flame is advisable.
  • Supplements should not be taken along with your meals.
  • Bakery items and aerated drinks are not advisable.
  • Omega 3, vitamin D and Biotin named Radiance is good for MS.

Any supplement should be taken only after consultation with your Neurologist.

MS Camp and Deepawali Celebration

By | Bengaluru | No Comments

The program started with the breakfast after which welcome address was given by Mr. Shankar. Mr. Punkaj spoke on the ICTRIMS conference he attended which was held in Kochi.

Dr. Shashikanth rendered a speech on Integrated Medicines, Yoga & Ayurveda to the audience.

After that Mrs. Geetha Balaji & Mrs. Kala performed a skit which portrayed the difficulties of an MS person facing bladder issues & the problem faced while using a public toilet. This skit was rendered in a jovial manner where everyone enjoyed. Then Ms. Kavitha Jayaram & MS person Megha’s mother rendered songs as the part of Diwali celebrations. The audience joined in the song along with them. Homemade chocolates prepared by Megha was distributed to everyone present.

Shankar announced about the introduction of special services from MSSI like Doctor’s home visit to each MS person’s houses monthly once on a rotational basis. Requested everyone to inform Rani like whoever is interested to give the names so that necessary arrangements can be done accordingly. MS persons were very interested in this initiative & started giving the names.

Dr. Shashikanth handed over a wheelchair to MS person Leullin Leo & Lalitha handed over Adult Diapers to Archana’s father which were donated by MSSI. As a part of Diwali celebration, MSSI distributed sweets and Diyas to all MS persons.

Finally, individual consultations were held by Dr. Shashikant & Physiotherapy consultations by Mr. Sudeep & Mr. Safraz.

Diwali Celebrations – Mumbai

By | Mumbai | No Comments

MSSI Mumbai celebrated Diwali festival with MS Families& friends on 28th Oct, 2018 from 4 – 7.30 pm at Shanmukhnanda Fine Arts, Sion, Mumbai.

A total of 160 persons attended. Each MSP or their family were given 4 T-shirts & a sweet box as a Diwali Gift. All guests were given sumptuous snacks boxes.

Mrs. Sundari Raju, Hon Jt. Treasurer welcomed all & sang the Ganpati Vandana.

Vice Chairperson Sheela Chitnis gave a brief message requesting all MS families to get involved with MSSI work. She then introduced the new Managing Committee & they were presented with Tulsi Plants.

Dr. Rekha Bhatkhande, Hon. Sec. requested MS families to avail benefits of Shushrusha Hospital Project.  Sandeep Chitnis, National Vice President & Chairperson, Mumbai informed all that Multiple Sclerosis is now included in the newly passed Disability Act & offered MSSI’s help to get new Disability Certificate for various benefits to MSPs.

He then introduced Chief Guest of the evening, Dr. Debashish Das and his wife Nayana. Dr.Das of Das Hospital, Chembur, is a famous Laparoscopic & General Surgeon. Dr. Das with his inspirational speech for a positive outlook in life encouraged all.

Diwali Dhamaka started with Lavani dance by MSP Sudha Kulkarni. & dances by truly adorable children of MSPs.

Then Our Guest Mandar Parkhi, popular Composer, Singer, Pianist, captivated the audience with his marvellous voice. Children & even others joined him in dancing on stage.

Tulsi plants were given as Tokens of appreciation to all participants.

Then the much-awaited Raffle draw started. Distributions of Prizes from the Raffle draw were presented by Dr. Das.

All went home with a Smile on their faces & Gifts in their hands.