We hosted a session on Debunking Disability with MS Connections! This time our connections included persons with other disabilities.
The speakers of the session were :
- Alice Abraham: Disability Advocate and researcher, a person with Visual Impairment
- Amit Kumar Yadav: NCPEDP – Javed Abidi Fellow, a person with a locomotor disability
- Chaitanya Mukund- Disability Advocate, a person with Cerebral Palsy
- Ferdinand Lyngdoh Marshillong- Research Scholar, a person with deafness
MSSI Hyderabad Chapter members joined NIMS Hospital, Hyderabad on 3 June 2023 on their campus for an interactive session by the Neurology Department.
Welcome & Introduction by Dr Reshma Sultana Sheikh, Neurologist
Chief Guest – Dr Bheerappa Nagar, Director NIMS
Our Hon. Chairperson Mrs Meena Gupta addressed the gathering and spoke about the Hyderabad Chapter’s role in the effective management of MS. She was felicitated by Dr Surya Prabha. The eminent doctors present addressed the gathering, each one throwing light on the effects of MS, its treatment and management. The panel discussion was followed by an interactive Q&A session.
The PwMS were given an opportunity to speak about themselves and shed light on the challenges they face and ask questions. It was a wonderful opportunity for the Hyderabad Chapter as they gained new members after the session!
The panel of doctors included:
Dr Y Sireesha, Neurologist
Dr Rashmin Gandhi, Neuro Ophthalmologist
Dr G Padmaja, Psychiatrist
Dr Dheeraj, Urologist
Dr Lakshmana Prasad Gadde, Physiotherapist
As evening descended on Saturday, 3rd of June 2023, the suave auditorium on the 9th floor of Institute of Neurosciences, Kolkata (INK) was decked up for the gala event of MSSI, Kolkata – “Our Talkathon”, a series of talks by the highly respected team of doctors and medical technicians of INK followed with an interactive Q&A session between them and our PwMS and their caregivers.
The event was inaugurated by the founder Chairman of INK – Prof. Dr. R P Sengupta, The special guest for the evening was popular musician and singer – Sidhu (Dr. Siddhartha Roy) who also happened to be a medical college alumnus of Dr. Sengupta. Together, they shared some light moments on stage and Sidhu also sang his popular song “Bhalo thakar gaan” which he had composed, performed and recorded for all the MS friends, a few years back.
Also present for the evening were popular film actress Ms. Ananya Basu and upcoming film Director Shri Shibesh Motilal. Then, the most important and much awaited “doctors speak” started with Senior Consultant – Neurology – Dr. Ashis Datta starting off the program with “Hoping for a relapse-free life”.
Prominent speakers in the series were Prof. Dr Bibhukalyani Das (Pain& Palliative care), Dr. Rashmi Saraff (Ophthalmology), Dr. Suparna Gangapadhyay (Neuro rehab), Dr. Praveen Kumar (Psychiatry), Ms. Minakshi Majumder (Diet & nutrition), Dr Santosh Trivedi (Recent drug trials in MS).
The entire event was hosted effortlessly by the Hon. Joint Secretary of MSSI, Kolkata – Shri Anirban Banerjee along with MSSI Kolkata team.
It was a very successful event where all present were “winners” and was well covered by different media houses, radio and TV channels like Aajkal, Dainik Viswamitra, All India Radio, News 18 Bangla, TV 9 , News Kalinga etc.
As night fell on 30 May which marks World MS Day, iconic landmarks across the globe came alive and bathed the city skies in an orange hue!
Delhi Chapter’s Campaign to turn Delhi & NCR into the new ORANGE CITY by illuminating skylines in the signature colours of the WORLD MS movement was a success.
10 leading hospitals of the region, along with DMC Ludhiana shone bright for 2 nights to symbolise the Multiple Sclerosis-MS solidarity across borders.
Mumbai Chapter organized an MS Awareness Seminar at the SIES School Auditorium, Matunga.
Around 80 people participated in the programme including PwMS, caregivers, friends, volunteers and the MSSI team.
There were two sessions:
- Specific Diet in MS by Ms. Saanvi Keswani, Clinical Nutritionist & Certified Diabetic Educator
- Tackling Speech & Swallowing Problems in MS by Ms. Gayatri Hattiangadi, Associate Professor & Head of the School of Audiology & Speech Therapy Topiwala National Medical College, B.Y.L. Nair Ch. Hospital
Both the sessions were insightful and were appreciated by all.
The Bangur Institute of Neurosciences, Kolkata, along with members of Multiple Sclerosis of India, Kolkata chapter, conducted a very significant and informative seminar on May 31, 2023, on the occasion of World Multiple Sclerosis Day. (WMSD). At this seminar, which was attended by over 100 PwMS and their caregivers, a number of topics relating to specific MS cases were also covered in depth. Dr. Gautam Ganguli, their former leader, also attended the event.
Dr. Swati Kumar, a member of the BIN-K team, began by extending a warm welcome to everyone in attendance. She then expertly managed the entire event, allowing the doctors to simultaneously discuss the history of MS, common symptoms, current trends in treating & handling MS, and the facilities provided by BIN-K. The Hon. Secretary of MSSI in Kolkata, Ms. Anuradha Goswami, later joined them and stressed the importance of having patience and mental toughness for both the MS patient and the carer in order to manage and combat this debilitating and incurable condition. Mr. Anirban Banerjee, Joint Secretary echoed her sentiments and emphasised that each incidence of the disease is distinct and individual and that its symptoms cannot be generalised.
Members of the MSSI Kolkata Executive Committee, including Mr. Tarun Saha, Mr. Rakesh Sain, and Hon. Vice Chairperson Mrs. Swapna Ghosh, was also present. To raise as much awareness as possible about MS, bilingual leaflets and booklets were provided to everyone in attendance. The occasion was wrapped up with a vote of gratitude from BIN-K’s Dr. Gautam Ganguly and Dr. Biman Kanti Roy.
MSSI Hyderabad Chapter celebrated WMSD with a lot of enthusiasm and fervour at City Center Mall on 30 May. PwMS, caregivers, volunteers and guests had a great time at the event.
Dr Vikram Sharma, Chief Neurologist, Omega Hospital was the chief guest and spoke on Stress Management in MS. Children of PwMS performing well in academics and sports were felicitated with trophies and cash prizes.
Siddhardha the whistler accompanied by Srikant kept the audience enthralled by giving a wonderful performance. The programme ended by forming the MS heart and human chain.
Mumbai Chapter held an informative Medical Seminar on Multiple Sclerosis and allied Neurology Conditions.
Session Chair – Dr. Rekha Bhatkhande, Dean of Shushrusha Hospital, Nat. V. President of MSSI and Hon.
Vice Chairperson of Mumbai Chapter Mrs. Sundari Raju, Hon. Secretary, MSSI Mumbai Chapter sang Ganesh Vandana to begin the program. She then presented the welfare Services and projects of MSSI.
Chief Guest – Dr. Mohan Joshi, Dean, LTMGH, Sion Hospital
Newer Therapies for – Dr. Varsha Patil, Neurologist of Bombay Hospital
Changing Rehab Needs of the MS Person – Dr. Abhishek Srivastava, Neuro Rehab Specialist, Kokilaben Dhirubhai Ambani Hospital
Ophthalmologists’ perspective of MS – Dr. Mayur Moreker, Ophthalmologist from Bombay Hospital
Neuropathic Pain Management in MS – Dr. Navita Vyas, Specialist in Pain Medicine & Palliative Care, Kokilaben Dhirubhai Ambani Hospital
Vote of Thanks – Sheela Chitnis, Co-Founder, MSSI & Hon. Chairperson, Mumbai Chapter