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Indore

INDIA MS PERSON OF THE YEAR 2019

By | Bengaluru, Chennai, Delhi, General, Hyderabad, Indore, Kolkata, Mumbai, Pune | No Comments

INDIA MS PERSON OF THE YEAR! 2019 Group Captain Prabal Malaker

A retired Indian Airforce Test Pilot who has flown almost every aircraft in the Air Force inventory in his time from MIGs’, Jaguars’, and Mirages’, to large transport carriers like the Avro and AN-32. He is a qualified flying instructor, who has imparted training to several young pilots.

His message to fellow MS persons is very straight forward, “If you have a problem, accept it. Work within those challenges and carry on with life. Keep your mind strong and paths will open up”, says a 63-year-old Multiple Sclerosis (MS) person, who has never learned to give up against all odds.

Life seemed to be going well until August 1998, when he was diagnosed with the progressive form of Multiple Sclerosis. He had a near-death experience when his plane, upon landing caught fire. Neurologists said that this could have possibly triggered off an autoimmune response to cause MS. In 1999, he was permanently downgraded from flying and his career came to a standstill. He had to retire from active service at the young old age of 52 years!

This was the time when he was introduced to MSSI Delhi by none other than Mrs. Sheela Chitnis, Co-founder of MSSI, by his sister Gopa who was living in Mumbai at that time. He joined the Delhi office as a volunteer to serve many other people like him. He has been in a leadership role and together with a team of some very dynamic volunteers who work shoulder to shoulder to improve the lives of people living with MS. He has been instrumental in setting up systems and procedures for smooth execution of projects, services, and initiatives that are offered to registered members of the society within Delhi NCR.

Prabal is a foody and a movie buff, however, going to movie halls and restaurants in a wheelchair was becoming a challenge since most of these places were not handicap friendly. He decided instead of getting stuck in the house and giving up all the things he enjoyed he would embark on a single point mission; To bring about change in movie halls and restaurants so that a wheelchair user could enjoy barrier-free access. Due to his single-handed and persistent effort, the Disability Commissioner has served notice to Movie Hall Operators which includes PVR, INOX, and Cinepolis A notice has also been served to 480 restaurants and the hotel of Delhi State to conform to the harmonized guidelines of barrier-free access for PwD.

Being an avid traveller, he has conducted accessibility audits for hotels and tourist sites in Jodhpur, Udaipur, Ranakpur, Sarnath, Varanasi and Sri Lanka for a Cox & Kings Accessible Holiday segment called Enable Travel.

He heads the advocacy arm of the MSSI Delhi chapter and has been engaging with the Delhi State Disability Commissioner on a regular basis to bring about change in policy and assessment guidelines for disability and advocates for the right of people with Multiple Sclerosis.

We wish him good luck and good health always!

ROUND TABLE DISCUSSION

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We, at Indore Chapter, had an amazing interaction with Dr. Passi (Neurologist) and Mrs. Renuka Malakar (MSSI National Secretary) on Sunday 28 July 2019 from 12 pm to 3 pm. Around 25+ PwMS and Caregivers attended at Hotel Lemon Tree, R.N.T. Marg, Indore. We also announced our working committee of all PwMS working for PwMS. There were also some wonderful creative ideas of fundraising and projects discussed even while having special Indorean lunch.

World MS Day 2018 – Indore

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Indore Chapter organised a medical camp for WMSD. This was attended by 125 persons .

Medical health check included sugar test, blood pressure test and Korean based acupressure therapy. This therapy was very much appreciated by MS persons and caregivers.

There was an  interactive session  on affordable treatment for MS between neurophysicians, MS persons and caregivers, guests and members of MSSI Indore Chapter.

Event ended with refreshments.

Thanks to Sanfofi for their support which helped us in organising this event.

World MS Day 2017 – Indore

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We celebrated WMSD by hosting a friendly football match at D.A.V.V. University, Football ground, Khandwa road, Indore on 28 January 2017, Sunday from 7.30 am to 10.30 am. Around 50 people were present at the event. The match was played between Orange and Blue team, each comprising of 11 players for 45 minutes. The Orange team was from the Sporting Union Football Club and the Blue team was from DAVV Football Club. Eventually the Orange team won over the Blue team with goal 1-0 score. After the match mementos were distributed to all the players, refree and coaches by our chairperson, Dr. Manish Bandhisthey. Finally, the WMSD event ended with typical Indori refreshments (Poha and Jalebi).