MSSI Mumbai Chapter had organised Virtual Patient Awareness program on 18th October 2020 with Dr Satish Khadilkar, Dean and Head, Department of Neurology Bombay Hospital, Mumbai. Various Questions on Multiple Sclerosis were answered by Dr Khadilkar. Visit this link to watch recordings of the webinar.
MSSI, Mumbai Chapter had organized MS Awareness Walk on ‘India MS Day”, Sunday 2nd Feb 2020 at Shivaji Park. More than 200 participants, including MSSI Team, MSPs with families, Rotarians, Inner Wheel Members, students & Senior citizens.
Mr. Pravin Amre, National Cricketer & President, Shivaji Park Gymkhana and eminent Neurologist Dr. Sarosh Katrak graced the occasion. At Registration Free T-shirts were distributed & breakfast was served to all.
Dr. Rekha Bhatkhande, Hon. Secretary welcomed all & introduced Dr. Sarosh Katrak.
Dr. Katrak explained about Multiple Sclerosis in simple language. The audience listened with rapt attention. Mr. Sandeep Chitnis, MSSl’s National Vice President & Chairperson of Mumbai, briefed the crowd about MSSl’s various patient welfare services and explained the advantages of getting registered with MSSI.
Dr. Rekha on the spot called 2 MSPs to speak about their journey with MS. MSP Jigna from Mumbai & Mahana from Pune said that though they live with ups & downs with MS, they are happy due to their positive attitude which is taught by MSSI who also guide them to cope-up with MS.
Then MS Walk started by cutting of the ribbon by Pravin Amre along with Dr. Katrak & MSSI Committee Members. Mrs. Sundari Raju, Mumbai Chapter’s IMSD representative walked with students & other participants encouraging them by loudly chanting slogans “We support MS Cause”. It attracted a lot of morning walkers to come forward & receive MS brochures.
MSSI, Mumbai Chapter was happy for getting support from many and
Thus making “India MS Day Walk 2020” a Grand Success.
National Society For Equal Opportunities For the Handicapped, India (NASEOH, INDIA) established in 1968 & has been steadily working towards developing comprehensive rehabilitation opportunities for the persons with disabilities so as to facilitate integration into the mainstream of the society.
This year’s Dr. Amar Nath Tandon National Award for Voluntary services by Naseoh is given to Mrs. Sheela Chitnis, Co-founder of MSSI, India, who has pioneered the care and support to persons with MS in India through physiotherapy, Counseling & Medical Support. She has also mobilized sizable funds through creative ideas and events for the rehabilitation of Persons with MS.
MSSI MUMBAI in association with KDA Hospital & Medical Research Institute had organized Medical Seminar on Saturday, 7th Dec. 2019, from 1.30 p.m. to 5.00 p.m. This was organized mainly to create awareness about MS for General Practitioners and other Health Professionals so that to be able to reach maximum number of MS patients, through GP.
The program started with the introduction and overview of Multiple Sclerosis by Dr. Mohit Bhatt, Director-Neurosciences & Movement Disorder Specialist, KDA Hospital.
Mrs. Sheela Chitnis gave a presentation about her 35 years journey of MSSI. She mentioned about the challenges she faced in the initial years at & various achievements throughout her journey.
Neurologists Dr. Jayanti Mani, Dr. Sunita Iyer, Dr. Annu Aggarwal, Dr. Tushar Raut gave presentations on various aspects of MS & Physiotherapist Dr. Navita Purohit, spoke about “Rehabilitation in MS”
Report on “Mind & Power Unlimited”
Session by Mr. Sunil Parekh of Rise Development Academy
On Friday, 22nd November, 2019, MSSI Mumbai had organized a session “Mind Power Unlimited” which was conducted by Mr Sunil Parekh, Chairman & CEO of Rise Development. He is an IITian who is now known as an expert in transforming the lives of thousands. The program was held at the Rotary Garden, Wadala, Mumbai.
In the beginning, Mrs. Chitnis offered thanks to Mr. Sanjay Shah, Rotarian, Rotary club Wadala, Mumbai for offering a venue for the session free of cost.
Mr. Raj Dhyani introduced Mr. Parekh. He started the session at 10.00 a.m. with his brilliant PowerPoint Presentation about our subconscious mind. It was totally a new concept for all present. Mr. Parekh demonstrated by calling a few MS persons from the audience to him to show how we all possess this power and we can daily use it for the betterment of our living.
He kept on asking questions to the audience and thus involved all of us. No one felt bored or uninterested and everyone gave full attention to him.
From this session, our patients learnt a lot, i.e. how to remain healthy, how to reach to their goals, how to boost to stay with positive attitude etc. We would like to again invite Mr. Parekh to listen to his extra-ordinary presentation.
Mr. Raj Dhyani took a lot of efforts to organize this session.
In all 38 people including 16 MSPs and 8 caregivers attended the session, as it was working day.
MSSI Mumbai Chapter organised Diwali Program on Saturday, 2nd November 2019, from 4.00 pm to 7 p.m. at Shanmukhanand Hall, Matunga, Mumbai.
Total 120 attended the program including 41 MSPs.
The program began with welcoming the audience by Mrs. Sundari Raju, Jt. Hon. Treasurer, followed by an invocation song by Mohan Music Club. The chief guest of the program was Dr. Kishor Mehta, Homeopath. He has started MS Clinic at Ghatkopar and soon going to start another one at Vile Parle.
Mr. Raj Dhyani, Committee Member of MSSI, Mumbai gave a presentation on a new project of “Artificial Intelligence for Rehabilitation” for MSPs.
We were delighted by the presence of Mr. Hemant Nerurkar, Retired MD of Tata Steel as a Guest of Honour for the program. Mr. Hemant Nerurkar generously sponsored the entire Diwali Program. Mrs. Nerurkar, Hon. Treasurer of Mumbai Chapter devoting her valuable time for MSSI.
Diwali Dhamaka started with entertaining performances by adorable children of MSPs. Their charming dances, songs were applauded by all and MSSI appreciated them with Chocolate boxes and T-Shirts.
The highlight of the program was MSP 72 year Sudha Kulkarni’s excellent dance performance with superb facial expressions and movements with the help of walker on Hindi film songs.
This was followed by the popular music program by Mohan Music Club, who enthralled the audience with their melodious voices from popular Bollywood songs. The audience enthusiastically participated in singing and dancing along with them.
MSSI is grateful to Mohan Music Club for giving free music performances. They were given a token of appreciation by MSSI.
Refreshments were served to all present and travel bags and sweet boxes were given as Diwali gifts to all MS families.
Mrs. Sundari Raju anchored the program and proposed vote of thanks to all present.
Report on Launch of ‘MS Clinic’ & Neuro Rehabilitation Workshop At Sir H.N. Reliance Foundation Hospital, Mumbai
As MSSI has taken the challenge to create continued awareness about MS in the society & looking after the wellbeing of MSPs, the renowned hospitals who are aware of an increasing number of MS cases in India are ready to offer better care to MSPs by opening specialised MS Clinic in association with us.
We, MSSI MUMBAI in association with Sir H.N. Reliance Foundation Hospital & Research Centre, Mumbai had organized Neuro Rehabilitation Workshop when they were going to Launch ‘MS Clinic” on Saturday, 14th Sept. 2019, at 3.00 p.m. In all 65 people attended the program including MSPs, caregivers, doctors, therapists and others.
The “MS Clinic Launch” program started with lighting the lamp by honourable Doctors of the Hospital & MSSI Office Bearers. Dr. Aashish Contractor, Head of the Neuro Rehab Centre, welcomed dignitaries & invitees (MSPs, caregivers, physio/occupational therapists). He then invited Dr. Arun Shah, Consultant Neurologist & Director, Neurology Services, Sir H.N. Reliance Foundation Hospital, Mumbai, to speak on Epidemiology & symptoms of MS. Dr. Shah also spoke on new research on MS being carried out in their Research Centre.
Then Dr. Manish Chhabria, Neurologist highlighted the Disease Modifying Therapies (DMTs) and their benefits of controlling MS relapses. There was a testimonial by Mr. Thakkar, the spouse of one of the MSPs about the lifestyle changes she has made under the guidance of Neuro Rehab Team at the hospital due to which she is improved and has become independent.
Dr. Hemal Vora, Occupational Therapist spoke about dealing with fatigue in MS.
Dr. Poonam Bajaj, Neuro Physio Therapists who is in-charge of Neuro Rehab spoke on the excellent facilities available at their Rehab Centre showing video clips of patients using various machines like antigravity treadmill, aqua therapy in a pool for improving mobility etc. It was very encouraging.
Mrs. Sheela Chitnis, Founder of MSSI spoke about various services provided by MSSI to MSPs and families. She urged the audience that a person having MS should not think it as a Social Stigma and come forward to register with MS Society to avail the various facilities and share an interaction with other MS families. She also requested all present to offer their services as volunteers for MSSI events.
On occasion of World Ms Day MSSI, Mumbai & Apollo Hospital, Navi Mumbai
had a very interesting Medical Seminar where there was a Medical Panel consisting of eminent doctors: Dr. Rekha Bhatkhande, Gastroenterologist & Hon. Secretary of MSSI, Mumbai, Dr. Girish Nair- Neurologist, Dr. S.Kulkarni- Physician, Dr. Niraj Ravani –Psychiatrist, Dr. Tanuja Akre- Physiotherapist, Ms. Pooja Lakhani – Nutritionist, Ms. Shivani Rajashree – Counsellor
The MSIF Theme is my Invisible MS, which means Raise Awareness for visibility of MS & MS persons.
In Mumbai, a panel discussion on MS was conducted by eminent doctors of Apollo Hospital, The session started at 10.30 a.m. in the presence of office bearers of Mumbai Chapter, MSPs & their families, Caregiver, volunteers & young doctors of Apollo Hospitals. Dr. Neha conducted the programme which was started by lighting the lamp by Mrs. Sheela Chitnis & CEO & COO Doctors of Apollo Hospital. Sheelatai gave the presentation on work & history of MSSI & journey ahead.
Dr. Girish Nair introduced the panel of doctors & the session started.
Dr. Nair gave a brief introduction of everyone & announced a plan to start MS Clinic. The session continued for more than two hours & it satisfied a lot of queries from MS persons. It covered medical, social, psychological, nutritional aspect as well as the need for awareness among people. The challenges are many & people exchanged views and notes to help each other.
At the end mementoes were given by Sheelatai & vote of thanks was given by Neha.
Eisai Pharma Contributed a lot for awareness by distributing booklets on “ Patient Education” & did celebration by lighting “ Bandra-Worli” Sea Link in orange colour from 27th to 31st May.
We feel that the challenges are met together at various levels. They are to :
- Create awareness at urban as well as rural in cities & smaller
- To take help at primary health centres with Aanganwadi & general
- Register many of them to know & help to manage the disease at psychological, Social & financial
- Sensitise Government agencies on disability certificate & other
- Try & find/retain employment for MS
- Give medical help through MS Clinic (diagnostic).
- Share lot of modalities with all the
- Appeal various organizations, Companies & individuals for help & acknowledge their It is said that “ We grow when we face challenges”.
Multiple Sclerosis Society of India (MSSI), Mumbai Report of INDIA MS DAY – Motor Bike Rally
Multiple Sclerosis Society of India (MSSI) Mumbai & Flying Squad India had organized a spectacular Motor Bike Rally on Sunday morning, 3rd Feb, 2019 at Five Gardens, Matunga to observe Annual India MS Day. More than 100 enthusiastic Motorbikers participated in the Rally.
Mr. Sandeep Chitnis, National Vice President & Chairman, Mumbai welcomed all by highlighting the significance of observing India MS Day for raising MS Awareness.
He introduced the Chief Guest Ms.Sucheta Dalal, Founder Trustee of Money Life Foundation, who promotes financial literacy in the masses. She flagged off the rally at 7.45 am.
With a Police escort van, a large number of Motorbikers glided through the streets with MSSI flags flying from their motorbikes. People on the streets stopped & noticed the Bikers spreading MSSI messages.
At the end of the Rally, all Motorbikers were received by Ms. Aditi Deshpande, National Award-winning producer, director and Actress, who welcomed them back with an inspiring message.
All the participants were given a Certificate of Appreciation at the hands of Aditi Deshpande, Sheela Chitnis & Dr.Rekha Bhatkhande.
One of the unique features of this Event was a performance of Street Play on “Multiple Sclerosis and support provided by MSSI to MS Patients” by Roteractors from Rotary Club of Shivaji Park. The same play had also been enacted by them at 7.30 am at Shivaji Park, Dadar in the presence of members of Rotary Club of Shivaji Park & Dr.Rekha Bhatkhande, Hon. Secretary, MSSI Mumbai who then briefed all on MS & MSSI at Five Garden.
Tea & refreshments were served to all & Ms. Sundari Raju proposed the vote of thanks.
We are grateful To:
- Ms. Sucheta Dalal, Managing Editor of Money Life Magazine & Founder Trustee of Money Life Foundation, who came along on a busy morning to flag off the Rally.
- Celebrity Ms. Aditi Deshpande for her inspiring presence at the Rally.
- Madam Ambika, DSP Zone IV & the Police Department of Matunga & Sion for their kind support.
- Mr. Nilesh Telkar & his Team of Motorbikers SSI for supporting MS Cause with so much enthusiasm and joining us in our India MS Day Rally to spread awareness of MS.
- Mr Sunil Jhangiani for donating monogrammed T Shirts that were distributed to all the participants.
- Rotarian Mr Uday Karnik & Rotary Club of Shivaji Park for sponsoring refreshments etc.
- Rotarian Ms Anjana Karnik for writing the script & Team of Roteractors from Rotary Club of Shivaji Park for enacting the educative Street Play on MS & MSSI.
- Motorbikers Mr. Nitin Koli & Mr. Ninad Deshpande for sponsoring water bottles.
- Shivaji Park Gymkhana for nutritious biscuits.
Rally covered by Newspaper
Roundtable Discussion on “The Invisible Symptoms of MS, Rehabilitation of MS Patients in the Indian Context and
On Sunday 16th December, MSSI Mumbai organized an interactive Roundtable Discussion at Gulmohor Conference Room, The Willingdon Sports Club, Tardeo, Mumbai, with Neurologists: Dr. Bhim Singhal, Director of Neurology at Bombay Hospital & Prof. Jürg Kesselring, Member of the ICRC, President of Move Ability, Senior Ambassador and Neuro expert, Dept of Neurology & Neurorehabilitation, Kliniken Valens, Switzerland. Convened by Dr.Sarosh M. Katrak, Director, and Department of Neurology at the Jaslok Hospital & Research Centre.
Neurologists – Dr. Singhal, Dr. Katrak, Dr. Jurg Kesselring, Dr. Pravina Shah, Dr. Joy Desai, Dr. Jimmy Lalkaka, Dr. Rajesh Benny, Dr. Charu Shankhla, Dr. Deepak Ahiwale. Dr. Anil kumar Gaur, Director, All India Institute of Physical Medicine & Rehabilitation, Dr. Ashish Contractor, Head: Dept. of Rehab and Sports Medicine, Sir H.N. Reliance Foundation Hospital, Dr. Abhishek Shrivastava, Director in Rehabilitation Medicine & Neuro rehab Specialist, D.K. Ambani Hospital. Dr. Poonam Bajaj, Physiotherapist, Sir H.N. Reliance Foundation Hospital.
The discussion was on “The Invisible Symptoms, Rehabilitation of MS Patients in the Indian Context and New Treatments”.
A warm welcome speech was given by Sheela Chitnis, Founder MSSI & Vice Chairperson, Mumbai.
The discussion is summarized as follows:
Invisible Symptoms –
The following symptoms came up in the discussion – Fatigue, Bladder control, Cognitive problems like problems of memory, Sexual problems and Emotional issues.
The following ways were discussed to deal with them.
- MS related fatigue has to be treated just like fatigue that is related to
Non-MS Persons. Fatigue can’t be dealt with any medicine. Rest is the
- In case of Bladder Control, pelvic floor exercises in physiotherapy are
- Cognitive issues are best dealt through alternate therapies like
Meditation, Yoga etc.
- Expensive DMT – Issue about DMTs being expensive was discussed. This makes the DMTs inaccessible to a lot of patients in India.
Rehabilitation – Rehabilitation is an important aspect of dealing with MS. The doctor and patient have to focus on rehabilitation. Various aspects were discussed on this topic.
Resilience: Patient should be motivated to be Resilient. Human body has the ability to self-heal to an extent. Brain displays Neuroplasticity. Both put together enable the patients to rehabilitate.
RDS : Reward Deficiency Syndrome (By Kenneth Blum) and Flow – Positive Psychology (Mihaly Csikszentmihalyi) came up for discussion too.
Spirituality: gives the necessary thrust to Resilience. Given the great Meditation techniques available in India, this should be used effectively for rehabilitation of patients.
Right attitude: The doctor can play an important role in helping patients psychologically.
Use of Mental Training in rehabilitation.
- Music Therapy: it can support brain function. Learning Music & learning new language are all brain exercises to keep the brain active and functional. This is helpful in MS and also a way to avoid Alzheimer’s disease and Dementia.
- Sleep: without distraction is necessary and helps in healing. Avoid sleep medication. Radiations from mobile phones should be avoided.
- Some level of stress is necessary to ward off laziness.
Group Therapy : Doctors should have group sessions with their MS patients to learn from their experiences. These experiences can help doctors.
Horseback Therapy: was discussed as is practised in Valens. Various Components makes it a good therapy.
Other things that were discussed are:
- CIS (Clinically Isolated Symptoms)
- Use of various vaccines in MS patients was discussed.
- Should MS patients be given Disability Certificate by default?
The seminar ended: with a Summary of the Session by Sandeep Chitnis, National Vice President of MSSI & Chairperson, Mumbai.
In all 31 persons were present for the Roundtable Discussion.