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Musical Fest – Live Broadcast

By Chennai No Comments

On 6th March 2021, MSSI Chennai Chapter organized a Musical Fest –Live Broadcast from the studio Pioneer Music gym with team “Aarohi”. Our one of the Advocacy program, to create awareness about Multiple Sclerosis among music lovers.

Aarohi is a band of singers bound together by a common passion for music and community service both raising awareness and Fundraising.

The theme of the Musical Fest/Day – Retro Bollywood & South Indian Musical hits.

The vocalist of the day – Mrs. Vidhya, Mrs, Priya, Mrs Renu, Mr, Bala and Mr, Suri etc,

This show was organized, in raising awareness about Multiple Sclerosis irrespective of Pandemic, online. MSSI Chennai Chapter, Hon. Chairperson – Mrs.Ann Gonsalvez gave a talk about Multiple Sclerosis and MSSI’s role and its functioning

“Sometimes Music is the only Medicine the heart and Soul needs” – In that way, all our MS friends and other participants enjoyed the show, and the necessary awareness was created. Total views were more than 648.                 

THE SILENT FORCE BEHIND THE SCENE

By Hyderabad No Comments

GUEST SPEAKER:-   Doctor Sunil  T Pandya (MBBS,MD,PDCC)

An Anaesthesiologist is a doctor who gives a patient medication so they do not feel pain when they are undergoing surgery. They are specialised in anaesthesia care, pain management and critical care medicine.

They are the ‘’ THE SILENT FORCE BEHIND THE SCENE

On 31st January 2021 MSSI HYDERAD CHAPTER has invited guest speaker of the month Doctor SUNIL T PANDYA (Anaesthetist) who spoke on MS AND ANAESTHESIA —— MYTHS AND FACTS.

With the help of slides, the doctor has beautifully and briefly discussed the types of anaesthesia and how safe is anaesthesia for MS patients. According to the doctor, Modern Practice of Anaesthesia is very safe for MS patients which include safer drugs, newer techniques, better training.

According to the doctor ANAESTHESIA given to reduce awareness and sensation during surgery, is safe for people with MS. The risk of relapse is not increased because of surgery or exposure to ANAESTHESIA. Generally, in the absence of complications, people with MS who undergo surgery do not find that it impacts their neurologic status. Infection or fever however may tend to aggravate symptoms of MS.

Risks Among Women with MS during Labor and Delivery:-

All forms (general, regional, local anaesthesia and conscious sedation) of anaesthesia are considered safe for women with MS; anaesthesia management does not need to be altered.

Few Myths and Facts revealed by the Doctor:-

Myth 1: If there is a dosage miscalculation, anaesthesia can wear off before surgery is over.

Fact:- There is no method to calculate the dose of anaesthesia. It can be increased as required. Hence it is not possible for the anaesthesia to wear off before surgery is over.

Myth 2:- The risk of anaesthesia is less if it is a minor surgery.

Truth:- Surgery is only one factor determining the outcome of anaesthesia. Other important factor is a patient’s co-morbidity.

Myth 3:- Spinal / Epidural anaesthesia causes back pain.

Truth: – Many studies have concluded that there is no evidence to support this.

Myth 4:- It’s not safe for women with MS to get pregnant.

Fact: – Studies show the disease has no effect on your chances of getting pregnant or having problems during pregnancy and there won’t be any impact on your baby’s health.

Myth: – If I have kids, they’ll get MS too.

Fact: – Genes play some role in MS, the condition doesn’t pass directly from parent to child.

Many more queries were answered by the doctor. The session with Dr. Sunil Pandya was very interactive and I conclude by saying that an anesthesiologist is a highly skilled professional and the most important member of the medical team for patient’s safety and care.

COVID 19 – Finding Opportunity In Adversity

By General No Comments

COVID pandemic has changed our lives, the way we think and the way we work. A lot of things will not be the same for a long time to come. At MSSI we can confidently say that in spite of this unprecedented global health adversity that impacted people world over we were able to find opportunities which helped us to stay connected with a lot of members meaningfully by leveraging technology and digital medium.

With the onset of COVID and mobility restriction followed by complete lockdown all our plans to do in-person activities not only had to be suspended but we had to recalibrate those activities in order to be compliant with various central and state advisory of India COVID-19 guidelines and protocols.

We have been working very hard to stay in touch with our members as well as reaching out to the larger MS community in India both at the National and regional levels. Our chapters are constantly making efforts

  • To ensure ration and medical supplies reach the needy
  • Conducting Teleconsultations for MS persons
  • Online Physiotherapy sessions
  • Counselling
  • Recreational programs
  • 1 on 1 Q&A sessions with Neurologists and specialists

At the National level, we are conducting Webinars addressing concerns of Persons with MS cutting across geographical boundaries. Some of the most popular webinars and videos included:

  • Interactive session with Neurologists and specialists
  • Interactive sessions with government agencies and officials
  • Meditation of Self Care
  • Pranayam – Yogic Breathing for Multiple Sclerosis
  • Joy of Mandalas
  • Musical evening
  • MS and Low Self Esteem (in multiple languages English, Hindi, Punjab, Bengali, Kannada)

We have also been able to work closely with our Medical and Scientific Advisory Committee members comprising leading neurologist working in the area of MS particularly. In spite of their extremely busy schedule and handling COVID related health crisis, they have been able to put together a recommendation for Assessing  MS while issuing disability certificates

On 30th August 2020, MSSI  launched its first Advocacy Campaign called Reassess MS. The campaign focus was on the gaps in the current assessment guideline under Rights of a person with Disability Act, 2016. It was designed to reach our stakeholders and included  Ministries, Government Departments, Disability sector organisations, Health professionals, MS persons and general community

We have been conducting a series of Capacity building workshops in the areas of Leveraging  Social media platform, Understanding international and National Disability Laws and Rights by domain experts.

We were able to sensitize government officials engage with Disability Commissioner of most of the states we work in.

Since then we have been consistently engaging and have sent representation to Ministry of Health & Family Welfare Ministry of Social Justice and Empowerment to review the current assessment guidelines, we have sent our inputs for the union budget to Ministry of Finance.

Immune boosting foods and diet for MS

By Hyderabad No Comments

On 6th December 2020, MSSI HYDERABAD CHAPTER has invited guest speaker Ms. Kavita Kabra a professional nutrition therapist for a talk on IMMUNE BOOSTING FOODS AND DIET FOR MS.

Nutrition is a huge component of health and well being. Our bodies are amazing machines that need fuel – the correct type in the correct amounts to function, grow and heal.

A healthy and balanced diet combined with daily exercise is very helpful to improve Multiple Sclerosis condition.

A healthy diet helps to maintain regular bowel and bladder functions, improve the health of skin, bones, teeth and gums, strengthen the heart and improve muscle strength and flexibility.

A healthy diet also helps control weight gain and reduce the risk of heart diseases and Osteoporosis.

The following diet was suggested by the dietitian to be followed to build and improve immunity.

Whole grain products like whole wheat, jowar, Oats, unrefined Rice, Beans, Lentils, Soy and nuts; seeds, fruits and vegetables, fish high in Omega – 3 fatty acids, Skinless chicken or lean meat.

Foods to avoid:

Foods high in saturated fat, like red meat, Vanaspati Dalda, simple Carbohydrates like excess sugars, refined flour, white rice, soft drinks.

The dietician was highly appreciated for sharing the tips and answering the queries raised by MSPs. It was indeed a very interactive session.

Virtual Concert

By Bengaluru No Comments

An Entertainment program – Virtual Concert was held on Oct 2nd 2020 to entertain all MS persons & their family members to bring a change for them during the pandemic which was well-received by all the chapters.

Steps to colour a Mandala

By General No Comments

MS Person Anjali Vyaas from Pune shares her mandala art experience.

Steps to colour a Mandala (BY SMUDGING) on your smartphone:

  1. Get the raw file of Madala in an editable format, jpg. While you have saved it in your phone’s gallery, you can use options to directly edit the picture on your phone.
  2. Choose your Mandala in the
  3. Find the ‘Edit picture’
  4. Select a suitable option to edit a You can find many options like effects, text, frame etc. Don’t use them. Find a suitable option to EDIT the picture. In many phones like mine have an option of Graffiti.
  5. Let’s say you choose After pressing this option, you will see further options of it: Brush, eraser, a colour palette etc.
  6. Click the ‘brush’ icon and choose the suitable size to (The brush lets you smudge).
  7. Pick any colour to smudge a portion of your
  8. You can undo the edit if it goes
  9. Just be careful while saving the If you feel tired with all the smudging and have half completed the Mandala, save that half part and then later edit the saved part that you coloured. And tadaaaa… You are done!
  10. Also, there are of applications to paint a jpg file. You can find them on playstore. That might ease your effort of colouring.

Mandala art therapy is truly healing.

It is tiring to colour on the phone if the screen is not big enough! It needs patience and while I was doing it, it was really helping me being patient. The fact that a Mandala is made and coloured inside to outside, the process of doing so in itself a meditation!

The effort is worth it.

You all will love it. Try it, please! Share your work

My MS Story – Hema Gulati-Chandra

By Hyderabad No Comments

I thank MSSI for giving me a platform to share my story: 

I was diagnosed with Multiple Sclerosis in 2011 after a long battle with difficult symptoms of optic neuritis, pain, falls and fatigue. I was in India at the time with my husband and there was little to no active knowledge of MS. The doctors also seemed somewhat afraid to tell my family and me what the news was. The diagnosis was finally made after returning to the UK, and it was perhaps one of the most devastating events of my life.

From being the active and independent professional, mother and wife that I was, I spiralled into a deep depression where I thought this was the end for me. I thought I was being punished for something I might have done in my past life. I felt unwell, weak and a burden on my family despite their efforts to support me as much as possible.

A year after my diagnosis, the one thing that had not changed was my love for music. My family reminded me of how I inspire them. They also reminded me of the lessons I have taught them to overcome hardship with determination. So I worked hard to seek the right kind of help both medically and mentally to bring me back to life.

Today, I continue to travel across the world and run one of the most successful music academies for western music in India. I continue to perform on stage too– singing and playing my guitar and the piano.

While in Hyderabad in 2015, I met Meena Gupta (Charter Chairperson, MSSI) and joined MSSI. This has benefitted me greatly because of the up-to-date information and support I receive and also I have been able to connect with other people living with MS.

In 2018, Meena and Mamta Gupta (Chairperson, MSSI) requested that I perform for World MS day in the city of Hyderabad, India on behalf of MSSI. The event gathered and inspired a large public audience. It also raised awareness of MS to the Indian public. I am an active advocate for MS in India, determined to spread awareness of the disease and the help available.

In 2019, I and my newly formed all-female trio, The 969, performed on World Music Day where we spread the word about MS again particularly in women, and inspiring them to keep on living!

I am grateful to be able to spread the joy of music to everyone; the young and old, sick or healthy. Recently, during the Covid19 lockdown, my daughter and I composed and recorded a song based on my experiences; “TOGETHER”. This song is dedicated to people living with chronic illnesses, particularly MS.

Although no two days are the same with my MS, with some days being harder than others, I will not stop being the active and independent professional, mother and wife that I was, am, and always will be.

YouTube link to the song “Together”; recorded at home during Covid19, stay at home policy. https://www.youtube.com/watch?v=MlTgRmq9QD0