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Mumbai

Mera Sapna – MSSI Mumbai

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MSSI Mumbai visits Yashraj Studios on the sets of India’s one of the most popular singing reality show INDIAN IDOL.

MERA SAPNA Project aims at fulfilling the small Dreams of our MS friends, which the overburdened caregiver may not be able to accomplish.

On Tuesday 18th Sept,  MSSI Mumbai visited the sets of singing reality show INDIAN IDOL Season 10.

It was an ardent wish of few of our MS friends to meet the eminent judges of today’s most popular singing reality show INDIAN IDOL which is being telecasted on Sony Entertainment Channel.

We were very fortunate that Vishal Dadlani; Music composer, playback singer, music record producer, lyricist, and performer, invited us on the sets of Indian Idol. We also met today’s young sensational Playback Singer- Neha Kakkar.

It was a good interaction with the Celebrities & later we were asked to join as an audience in the show. All MSPs were very thrilled as it was a dream come true for all of US.

We are very thankful to Vishal Dadlani for always supporting our cause.

World MS Day 2018 – Mumbai

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On Occasion of observing World MS Day ,MSSI, Mumbai along with Lions Club of Juhu, had organised a Rejuvenating Evening on Saturday 19th May, 2018. Time: 4.30 pm- 7.30 pm at Rotary Club of Juhu, Mumbai.

In all 160 people including 36 MSPs were present. The first Event was Brain Yoga & Laughter Therapy by Mr R. Kumar Bhat. A qualified Aerobics  instructor. He made everyone to participate in different forms of Laughter Exercises.

On this World MS Day, MSSI Mumbai Chapter had organised a Writing  Competition. We had invited stories, essays & poems from MSPs & Caregivers on the theme “LIVING WITH MS” . We received tremendous response.In all there were 56 entries from all over India.

The main highlight of the evening was Prize Distribution. We were fortunate to have two well known Judges from literary field: Mr Nilu Damle ; Journalist, Author& Critic &  Mrs Anjana Karnik ; Author & Poet.

Both the Judges were touched by the inspirational Articles written by MS patients & it was quite difficult for them to choose the winners. Ultimately 14 participants were selected as Winners from 56 entries. They were given cash prize of Rs1000/- each. All the 56 participants received a Certificate of Participation & a gift of beautiful Photo frame.

​ By year end , we would like to ​compile the selected Entries in a book.

The Program ended with relaxing Music Therapy– By Ashish Kasbe. – Music Therapist.On behalf of Lions Club, Mr Hiten & Zarna  sponsored delicious refreshments to all present. They also paid the rent of the hall and made all the necessary arrangements to make this Program a big success.

We thank Sanofi India Limited for partly supporting the Program. Last but not the least we thank all MS families, Managing Committee Members & MSSI Team.

Inauguration of Multiple Sclerosis Integrated Medical Centre Ghatkoper

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The program of opening of free MS clinic by Dr Kishore N. Mehta, well-known & leading homoeopathic practitioner was very successful which was attended by more than 100 participants including neurologist Dr Tandel, many homoeopathic doctors, MS families & public.

Dr Sheetal welcomed all the participants and gave the idea of purpose of this function about helping the MS patients with free treatment or with minimal charges.

Dr Mitesh narrated the reasons for opening MS department at Balkan-Ji-Bari, ground floor hall, Balbhawan road, opp. Rajawadi garden, Ghatkopar East Centre.

Dr Kishore Mehta explained as to what inspired him to take up this project, since he has already been treating a number of MS patients with a good degree of improvement of their MS symptoms.

Mrs. Sheela Chitnis, founder member of MSSI & current chairperson described various welfare projects of MSSI Mumbai chapter with the help of power point presentation. There were many questions from the audience which she replied in detail.

After the inauguration, the homoeopathy camp was held of which many patients took advantage.

MS and RPWD Act

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Trinayani founded by Ritika Sahni in the year 2006 works towards Disability Awareness and Support. Their mission is to empower persons with Disabilities.

The National Center for Promotion of Employment for Disabled People in partnership with Trinayani had organised a free one-day Seminar on the RPWD Act on Saturday 10th March 2018 from 9.00 AM to 5.00 PM at Prabhodhan Thackarey Krida Sankul, Vile Parle East, Mumbai.

It was a State level seminar. On behalf of MSSI, National Hon Vice President Sandeep Chitnis & National Hon.Jt Secretary Jyoti Ronghe were present. Also from Mumbai Hon. Chairperson Sheela Chitnis, Hon. Treasurer Surekha Nerurkar & from Pune Asha Merchant were present.

The Rights to Persons with Disabilities Act was passed unanimously in the winter session of the Parliament. The objective of the Seminar was discussion on the prominent features of the Disability Act and its implementation.

The first session of the Seminar on understood salient features of the newer Disabilities included in the Act. MS being newly included in the Act, representatives of MSSI were invited & Sheela Chitnis was invited as a speaker. She gave a presentation on problems faced by MS patients in general & what the MSSI is doing to make their lives better by various welfare projects & by MS Awareness projects for general public. She emphasised for the need to create a barrier free environment & to ensure that they get proper support they deserve from the community at large.

MSSI Mumbai Awareness Events – Feb 2018

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09.02.2018 – Awareness at KEM Hospital for Medicos & Para Medicos

MSSI Mumbai  organised two programs with Prof.  Dr. Jurg Kesselring:

Prof. Dr. Jurg Kesselring,  Professor of Clinical Neurology & Neuro Rehabilitation, at University of Bern, Zürich​ &  is Head of the Neuro Rehabilitation Centre at Valens, Switzerland. He is also the Chairman of WHO Working Group on Multiple Sclerosis & is former President of MS Society of Switzerland.

Awareness at KEM Hospital for Medicos & Para Medicos Report:

In association with KEM Hospital , MSSI Mumbai  organised a Medical Seminar with Dr. Jurg Kesselring for Medicos & Para Medicos at KEM Hospital on 9th February 2018. Mrs Chitnis gave a brief presentation on the services of MSSI.

Dr. Kesselring gave a Presentation on Rehabilitation in MS. . It was a very interactive & informative session for the young Medical Fraternity.

 

 

10.02.2018 – WCNR – Neuro Rehabilitation in Multiple Sclerosis at Renaissance Hotel

On Saturday 10th Feb 2018 from 10.00 am to 12.00 pm.​ The second Program with Dr Kesselring was at the World Congress for Neuro Rehabilitation (WCNR) where President Dr.Nirmal Surya had allocated MSSI a 2 hours Session at Public Forum Section for PwMS & families. In all 100 people were present including MS families.

After Prof. Dr. Jurg Kesselring’s motivating presentation on “Rehabilitation in MS” there was a panel discussion.

This was followed by an active interaction with the audience.

India MS Day – Mumbai

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Multiple Sclerosis Society of India, (MSSI) MS WalK on INDIA MS DAY MSSI Mumbai Chapter had organised MS Walk to observe India MS Day on Sunday 4th Feb 2018 from 7am- 10am at Shivaji Park Ground, Dadar. In all more than 250 participants, including MS persons, caregivers, donors, friends & college students participated.

We were graced by the presence of : Mr.Pravin Amre, National Cricketer, who was appointed as the Head of Talent Hunt for IPL franchise Delhi Daredevils & President, Shivaji Park Gymkhana. And also Senior Neurologist Dr.Sarosh Katrak .

We were happy to have amongst us, Dr. Rekha Bhatkhande, Former Dean of Shushrusha Hospital and Dr Ketna Mehta, Founder of Nina Foundation, NGO for Spinal Cord Injury, with her team of 10 wheel chair persons. A special mention has to be made of Mr.Sultan Fazelbhoy, Patron Member & Donor, who at the age of 90 years attended the MS Walk.

Soon after registrations, Sundari Raju, Hon Secretary welcomed all present. She appealed to the audience to Support MS cause & spread MS Awareness.

Thereafter Dr. Katrak briefed the audience on the disease Multiple Sclerosis. MSP Aashika born & brought in Los Angeles was present and she shared her experience of living with MS, with all the young ones present.

Then Dr. Katrak & Pravin Amre inaugurated the MS Walk by cutting of the ribbon along with MSSI Committee Members. It was a symbolic walk where the students of SIES College & NK College walked along holding placards & banners with inspiring Messages.

A special mention has to be made of MSP Imran Qureshi, who along with other wheelchair users, enthusiastically performed wheelchair dances. After the Walk MSSI distributed sumptuous hot wada pav & tea to all present.

As it was a Sunday morning, Shivaji Park ground was crowded with morning walkers & joggers whom we were able to attract.MS pamphlets were distributed to general public.

We are grateful to: Dr Sarosh Katrak , Pravin Amre for their presence at our Walk, to the Managing Committee Members of Shivaji Park Gymkhana for providing us free venue , to Mr. Sunil Jhangiani for donating blue T shirts which brought fantastically colourful look at Shivaji Park. This Event was covered by Marathi Newspaper Pudhari.

– MSSI Team

World MS Day 2017 – Mumbai

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Multiple Sclerosis Society of India, Mumbai Chapter World MS Day (WMSD) Programe.

On Sunday 14th May, MSSI Mumbai Chapter, on the occasion of World MS Day 2017, had organized an interesting Seminar on “Wellness in MS” with different Alternative Therapies. It was held from 4.30 to 7.30 pm at SIES School Auditorium, in Matunga.

Around 90/100 persons were present including MSPs, Caregivers, Friends, Volunteers & MSSI Team.

In MS more importance is given to Allopath treatment but issues related to good health and wellness are often neglected, Today’s program was especially organized for MSPs & caregivers to interact with experts associated with different aspects of Health care in MS . This was divided into 3 sessions.

Ms.Dhara Thakkar, MSSI Member, welcomed all present & invited the dignitaries along with Sheela Chitnis & Afsaneh Randeria on stage. The Program started with an invocation prayer by Sneha.

We were very happy to welcome our Chief Guest of the program Gurudas Aras. He is the Director, of A.T.E Enterprises Pvt. Ltd. He is B.Text. from Bombay University as a rank holder & M.Text. by research from Bombay University in 1982, Post graduate diploma in “Marketing Management” from Bombay University in 1984. He leads a team of nearly 200 people under him at A.T.E Enterprises.

In his inspirational speech he motivated audience & also spoke about his association of many years with MSSI & highly commended MSSI services provided to the MS Families. To appreciate his generous & continuous help to MSSI, we presented him a Memento.

In the first session Dr. Girish Nair, Neurologist from Apollo Hospital, emphasized on Nutrition & Diet & right type of Vitamins & Exercise to be included in daily living.

He encouraged MSPs to be more active and maintain a healthy lifestyle which will improve the quality of their life.

The second session was by Shrikant Barve Guruji. As it is difficult for disabled persons to sit on a floor for yoga exercises, Swami Ramdev Baba has introduced a Chair Yoga concept as his mission of “Disease free India and Medicine free World”

He has trained a thousands of instructors to teach Chair Yoga from his institute. We had invited one of these instructors, Shrikant Barve Guruji. He demonstrated various Pranayams & Mudras. The whole auditorium concentrated on his demonstration and all were involved in performing the pranayams. During the session Shrikantji continued to explain the importance of each Mudra, each pranayam & their benefits on the body if they are regularly practiced. He was presented a trophy at the hands of Dr. Girish Nair.

The third session was by Mr. R. Kumar Bhat, a qualified aerobics instructor from National Institute of Aerobic India. He is Currently running his own institute, ‘Aerobic Center’ on personal training. As a wellness professional he was very inspirational & highly motivational. While conducting laughter therapy, he merrily danced on the floor which brought peals of laughter from the audience . Thus his power packed demonstration was full of energy which completely enthralled the audience. Everyone was responding to him with hearty laughter. His message to all was to enjoy life fully. He was presented a trophy at the hands of Ramesh M. Rao, Hon Treasurer of MSSI.

All three sessions were excellent & inspiring to all present. Every one left with a smile on their face & with a request to us, to once again invite all the three speakers and organize separate session of each one of them.

The programme ended with Formation of “Human Chain” by all present.

MSSI provided boxes of delicious snacks to all. Conveyance was paid to needy MSPs.

Our sincere thanks to : Chief Guest Mr. Aras, Guests Speakers Dr. Girish Nair, Mr. Shrikant Barve & Mr. R Kumar Bhat for spending the evening with us by taking time off from their busy schedule .

We thank Dhara Thakkar for Comparing the Program beautifully.

We also thank MS families, well-wishers, donors & MSSI Team.

World MS Day 2017 – Mumbai

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Multiple Sclerosis Society Of India (MSSI), Mumbai Chapter, World MS Day 2017

Multiple Sclerosis Society of India (MSSI), Mumbai Chapter on the occasion of World MS day 2017 had organized a mega launch of first Fictionbook ‘Unclothed written by MS patient Probir Sengupta, at the hands of Milind Soman, MSSI Cause Ambassador.

This Event was organized at Title Waves, Bandra on 31st May at 6 pm. MSSI had published this Event worldwide on MSSI website, Face book & Multiple Sclerosis International Federation website also.

On behalf of MSSI, Mrs. Afsaneh Randeria, Joint Honorary Secretary welcomed all & briefly spoke about MS, MSSI and observation of World MS Day. To show the solidarity everybody formed the human chain wherever they were present.

We were very honored by the presence of our Chief Guest, Mr. Hemant Nerurkar, former Managing Director, Tata Steel & Milind Soman, Cause Ambassador, MSSI.

Mrs. Renuka Malaker, National Secretary, MSSI specially came from Delhi to attend the Book Launch. We were very honored by the presence of eminent Neurologist, Dr. Charulata Shankala, from Hinduja Hospital.

Mr.Nerurkar gave a brief encouraging message for MSSI & on behalf of MSSI, was presented a memento by Mrs. Chitnis. Milind spoke about his long 20 years association with MSSI & encouraged Probir’s initiative as an Author & MS Warrior.

Probir Sengupta had his first MS episode was when he was in his thirties & had an high profile career in advertising. but he had to leave the job due to his MS problems. At home he didn’t sit idle nor lost his creativity & the result is this wonderful book of fiction.

MSSI encouraged his spirits and supported him fully by launching his book worldwide. Today Probir has actually become an inspiration to MS patients. On behalf of MSSI, Both Milind Soman & Probir were presented a memento by Mr. Hemant Nerurkar.

The bookstore was filled with the enthusiastic crowd. Milind then released the book “Unclothed” & read a Chapter from that book.

Malini Nair, head of publishing at BecomeShakespeare.com. briefly shared her experience of publishing Unclothed & working with Probir.

In regards to his writing of the Book, Probir ,very actively participated in an interactive session of Question Answers from the audience.After the panel discussion on the book, the event concluded with a thank-you note from Mrs. Sheela Chitnis, Chairperson, Mumbai Chapter.

A MSP Foram Gada, had made a beautiful Card with slogans and all present MSPs signature. It was presented to Probir & he was very happy to receive it.

The books were available for purchase at the counter.

It was a successful event& it was available live on Probir’s Facebook page. The launch was attended by about 100 people including MS patients & families, Committee Members, Probir’s family & friends, Well-wishers & MSSI Team.

Living well with MS

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UCB had organized a Webcast on Saturday 28′ May 2016 on Living Well with M S This was a good opportunity for patients and their care givers to listen and interact with the Speakers from the comfort of their homes.

The Programme was as follows :

Pavan Kumar, Patient Services Manager, UCB India, welcomed all & gave brief information about World MS Day & MSSI’s Month of creating maximum awareness.

Dr. Girish Nair, Neurologist from Fortis Hospital explained on Importance of Adherence. He explained in detail how the decease modifying therapies help MSP if it is started at the incept of the MS & how the continuation of the same with your Neurologist’s advice can improve the quality of life for a longer period.

Dr Satish Khadilkar, Sr. Neurologist. Bombay Hospital in his recorded message spoke about now there are number of therapies available & hence there is a hope for managing MS symptoms better.

Ms. Sheela Chitnis, Chairperson of MSSI, Mumbai, explained the role of MSSI as a support system in India for MSPs & also for their families and also informed about the regular welfare schemes undertaken by all the Chapters in India for improving & maintaining the quality of life of MSPs.

MSP Tina Tejas, spoke that in spite of her MS , she has maintained her balance of home chores & her office work. She is an inspirational example to all MS families.

We received lot of queries and our speakers tried to answer as many as they could. Webcast was conducted by UCB in partnership with the Multiple Sclerosis Society of India (MSSI)