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India MS Day 2019 – Mumbai

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Multiple Sclerosis Society of India (MSSI), Mumbai Report of INDIA MS DAY – Motor Bike Rally

Multiple Sclerosis Society of India (MSSI) Mumbai & Flying Squad India had organized a spectacular Motor Bike Rally on Sunday morning, 3rd Feb, 2019 at Five Gardens, Matunga to observe Annual India MS Day. More than 100 enthusiastic Motorbikers participated in the Rally.

Mr. Sandeep Chitnis, National Vice President & Chairman, Mumbai welcomed all by highlighting the significance of observing India MS Day for raising MS Awareness.

He introduced the Chief Guest Ms.Sucheta Dalal, Founder Trustee of Money Life Foundation, who promotes financial literacy in the masses. She flagged off the rally at 7.45 am.

With a Police escort van, a large number of Motorbikers glided through the streets with MSSI flags flying from their motorbikes. People on the streets stopped & noticed the Bikers spreading MSSI messages.

At the end of the Rally, all Motorbikers were received by Ms. Aditi Deshpande, National Award-winning producer, director and Actress, who welcomed them back with an inspiring message.

All the participants were given a Certificate of Appreciation at the hands of Aditi Deshpande, Sheela Chitnis & Dr.Rekha Bhatkhande.

One of the unique features of this Event was a performance of Street Play on “Multiple Sclerosis and support provided by MSSI to MS Patients” by Roteractors from Rotary Club of Shivaji Park. The same play had also been enacted by them at 7.30 am at Shivaji Park, Dadar in the presence of members of Rotary Club of Shivaji Park & Dr.Rekha Bhatkhande, Hon. Secretary, MSSI Mumbai who then briefed all on MS & MSSI at Five Garden.

Tea & refreshments were served to all & Ms. Sundari Raju proposed the vote of thanks.

We are grateful To:

  1. Ms. Sucheta Dalal, Managing Editor of Money Life Magazine & Founder Trustee of Money Life Foundation, who came along on a busy morning to flag off the Rally.
  2. Celebrity Ms. Aditi Deshpande for her inspiring presence at the Rally.
  3. Madam Ambika, DSP Zone IV & the Police Department of Matunga & Sion for their kind support.
  4. Mr. Nilesh Telkar & his Team of Motorbikers SSI for supporting MS Cause with so much enthusiasm and joining us in our India MS Day Rally to spread awareness of MS.
  5. Mr Sunil Jhangiani for donating monogrammed T Shirts that were distributed to all the participants.
  6. Rotarian Mr Uday Karnik & Rotary Club of Shivaji Park for sponsoring refreshments etc.
  7. Rotarian Ms Anjana Karnik for writing the script & Team of Roteractors from Rotary Club of Shivaji Park for enacting the educative Street Play on MS & MSSI.
  8. Motorbikers Mr. Nitin Koli & Mr. Ninad Deshpande for sponsoring water bottles.
  9. Shivaji Park Gymkhana for nutritious biscuits.

Rally covered by Newspaper

 

 

Roundtable Discussion

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Roundtable Discussion on “The Invisible Symptoms of MS, Rehabilitation of MS Patients in the Indian Context and

New Treatments”

On Sunday 16th December, MSSI Mumbai organized an interactive Roundtable Discussion at Gulmohor Conference Room, The Willingdon Sports Club, Tardeo, Mumbai, with Neurologists: Dr. Bhim Singhal, Director of Neurology at Bombay Hospital & Prof. Jürg Kesselring, Member of the ICRC, President of Move Ability, Senior Ambassador and Neuro expert, Dept of Neurology & Neurorehabilitation, Kliniken Valens, Switzerland. Convened by Dr.Sarosh M. Katrak, Director, and Department of Neurology at the Jaslok Hospital & Research Centre.

 The following Neurologists & Doctors along with Managing Committee Members, 4 MSPs & Sanofi Representatives were present:

Neurologists – Dr. Singhal, Dr. Katrak, Dr. Jurg Kesselring, Dr. Pravina Shah, Dr. Joy Desai, Dr. Jimmy Lalkaka, Dr. Rajesh Benny,  Dr. Charu Shankhla, Dr. Deepak Ahiwale.  Dr. Anil kumar Gaur, Director, All India Institute of Physical Medicine & Rehabilitation, Dr. Ashish Contractor, Head: Dept. of Rehab and Sports Medicine, Sir H.N. Reliance Foundation Hospital, Dr. Abhishek Shrivastava, Director in Rehabilitation Medicine & Neuro rehab Specialist, D.K. Ambani Hospital.  Dr. Poonam Bajaj, Physiotherapist, Sir H.N. Reliance Foundation Hospital.

The discussion was on “The Invisible Symptoms, Rehabilitation of MS Patients in the Indian Context and New Treatments”.

A warm welcome speech was given by Sheela Chitnis, Founder MSSI & Vice Chairperson, Mumbai.

The discussion is summarized as follows: 

Invisible Symptoms –

The following symptoms came up in the discussion – Fatigue, Bladder control, Cognitive problems like problems of memory, Sexual problems and Emotional issues.

The following ways were discussed to deal with them.

  1. MS related fatigue has to be treated just like fatigue that is related to
    Non-MS Persons.  Fatigue can’t be dealt with any medicine.  Rest is the

best remedy.

  1. In case of Bladder Control, pelvic floor exercises in physiotherapy are
    helpful.
  2. Cognitive issues are best dealt through alternate therapies like
    Meditation, Yoga etc.
  3. Expensive DMT – Issue about DMTs being expensive was discussed. This makes the DMTs inaccessible to a lot of patients in India.

Rehabilitation – Rehabilitation is an important aspect of dealing with MS.  The doctor and patient have to focus on rehabilitation. Various aspects were discussed on this topic.

Resilience:  Patient should be motivated to be Resilient.  Human body has the ability to self-heal to an extent.  Brain displays Neuroplasticity.  Both put together enable the patients to rehabilitate.

RDS : Reward Deficiency Syndrome (By Kenneth Blum) and Flow – Positive Psychology (Mihaly Csikszentmihalyi) came up for discussion too.

Spirituality: gives the necessary thrust to Resilience.  Given the great Meditation techniques available in India, this should be used effectively for rehabilitation of patients.

Right attitude: The doctor can play an important role in helping patients psychologically.

Use of Mental Training in rehabilitation.

  1. Music Therapy: it can support brain function. Learning Music & learning new language are all brain exercises to keep the brain active and functional. This is helpful in MS and also a way to avoid Alzheimer’s disease and Dementia.
  2. Sleep: without distraction is necessary and helps in healing. Avoid sleep medication.  Radiations from mobile phones should be avoided.
  3. Some level of stress is necessary to ward off laziness.

Group Therapy : Doctors should have group sessions with their MS patients to learn from their experiences.  These experiences can help doctors.

Horseback Therapy: was discussed as is practised in Valens.  Various Components makes it a good therapy.

Other things that were discussed are:

  1. CIS (Clinically Isolated Symptoms)
  2. Use of various vaccines in MS patients was discussed.
  3. Should MS patients be given Disability Certificate by default?

The seminar ended: with a Summary of the Session by Sandeep Chitnis, National Vice President of MSSI & Chairperson, Mumbai.

In all 31 persons were present for the Roundtable Discussion.

 

 

 

 

 

 

 

 

 

 

Diwali Celebrations – Mumbai

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MSSI Mumbai celebrated Diwali festival with MS Families& friends on 28th Oct, 2018 from 4 – 7.30 pm at Shanmukhnanda Fine Arts, Sion, Mumbai.

A total of 160 persons attended. Each MSP or their family were given 4 T-shirts & a sweet box as a Diwali Gift. All guests were given sumptuous snacks boxes.

Mrs. Sundari Raju, Hon Jt. Treasurer welcomed all & sang the Ganpati Vandana.

Vice Chairperson Sheela Chitnis gave a brief message requesting all MS families to get involved with MSSI work. She then introduced the new Managing Committee & they were presented with Tulsi Plants.

Dr. Rekha Bhatkhande, Hon. Sec. requested MS families to avail benefits of Shushrusha Hospital Project.  Sandeep Chitnis, National Vice President & Chairperson, Mumbai informed all that Multiple Sclerosis is now included in the newly passed Disability Act & offered MSSI’s help to get new Disability Certificate for various benefits to MSPs.

He then introduced Chief Guest of the evening, Dr. Debashish Das and his wife Nayana. Dr.Das of Das Hospital, Chembur, is a famous Laparoscopic & General Surgeon. Dr. Das with his inspirational speech for a positive outlook in life encouraged all.

Diwali Dhamaka started with Lavani dance by MSP Sudha Kulkarni. & dances by truly adorable children of MSPs.

Then Our Guest Mandar Parkhi, popular Composer, Singer, Pianist, captivated the audience with his marvellous voice. Children & even others joined him in dancing on stage.

Tulsi plants were given as Tokens of appreciation to all participants.

Then the much-awaited Raffle draw started. Distributions of Prizes from the Raffle draw were presented by Dr. Das.

All went home with a Smile on their faces & Gifts in their hands.

Mera Sapna – MSSI Mumbai

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MSSI Mumbai visits Yashraj Studios on the sets of India’s one of the most popular singing reality show INDIAN IDOL.

MERA SAPNA Project aims at fulfilling the small Dreams of our MS friends, which the overburdened caregiver may not be able to accomplish.

On Tuesday 18th Sept,  MSSI Mumbai visited the sets of singing reality show INDIAN IDOL Season 10.

It was an ardent wish of few of our MS friends to meet the eminent judges of today’s most popular singing reality show INDIAN IDOL which is being telecasted on Sony Entertainment Channel.

We were very fortunate that Vishal Dadlani; Music composer, playback singer, music record producer, lyricist, and performer, invited us on the sets of Indian Idol. We also met today’s young sensational Playback Singer- Neha Kakkar.

It was a good interaction with the Celebrities & later we were asked to join as an audience in the show. All MSPs were very thrilled as it was a dream come true for all of US.

We are very thankful to Vishal Dadlani for always supporting our cause.

World MS Day 2018 – Mumbai

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On Occasion of observing World MS Day ,MSSI, Mumbai along with Lions Club of Juhu, had organised a Rejuvenating Evening on Saturday 19th May, 2018. Time: 4.30 pm- 7.30 pm at Rotary Club of Juhu, Mumbai.

In all 160 people including 36 MSPs were present. The first Event was Brain Yoga & Laughter Therapy by Mr R. Kumar Bhat. A qualified Aerobics  instructor. He made everyone to participate in different forms of Laughter Exercises.

On this World MS Day, MSSI Mumbai Chapter had organised a Writing  Competition. We had invited stories, essays & poems from MSPs & Caregivers on the theme “LIVING WITH MS” . We received tremendous response.In all there were 56 entries from all over India.

The main highlight of the evening was Prize Distribution. We were fortunate to have two well known Judges from literary field: Mr Nilu Damle ; Journalist, Author& Critic &  Mrs Anjana Karnik ; Author & Poet.

Both the Judges were touched by the inspirational Articles written by MS patients & it was quite difficult for them to choose the winners. Ultimately 14 participants were selected as Winners from 56 entries. They were given cash prize of Rs1000/- each. All the 56 participants received a Certificate of Participation & a gift of beautiful Photo frame.

​ By year end , we would like to ​compile the selected Entries in a book.

The Program ended with relaxing Music Therapy– By Ashish Kasbe. – Music Therapist.On behalf of Lions Club, Mr Hiten & Zarna  sponsored delicious refreshments to all present. They also paid the rent of the hall and made all the necessary arrangements to make this Program a big success.

We thank Sanofi India Limited for partly supporting the Program. Last but not the least we thank all MS families, Managing Committee Members & MSSI Team.

Inauguration of Multiple Sclerosis Integrated Medical Centre Ghatkoper

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The program of opening of free MS clinic by Dr Kishore N. Mehta, well-known & leading homoeopathic practitioner was very successful which was attended by more than 100 participants including neurologist Dr Tandel, many homoeopathic doctors, MS families & public.

Dr Sheetal welcomed all the participants and gave the idea of purpose of this function about helping the MS patients with free treatment or with minimal charges.

Dr Mitesh narrated the reasons for opening MS department at Balkan-Ji-Bari, ground floor hall, Balbhawan road, opp. Rajawadi garden, Ghatkopar East Centre.

Dr Kishore Mehta explained as to what inspired him to take up this project, since he has already been treating a number of MS patients with a good degree of improvement of their MS symptoms.

Mrs. Sheela Chitnis, founder member of MSSI & current chairperson described various welfare projects of MSSI Mumbai chapter with the help of power point presentation. There were many questions from the audience which she replied in detail.

After the inauguration, the homoeopathy camp was held of which many patients took advantage.

MS and RPWD Act

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Trinayani founded by Ritika Sahni in the year 2006 works towards Disability Awareness and Support. Their mission is to empower persons with Disabilities.

The National Center for Promotion of Employment for Disabled People in partnership with Trinayani had organised a free one-day Seminar on the RPWD Act on Saturday 10th March 2018 from 9.00 AM to 5.00 PM at Prabhodhan Thackarey Krida Sankul, Vile Parle East, Mumbai.

It was a State level seminar. On behalf of MSSI, National Hon Vice President Sandeep Chitnis & National Hon.Jt Secretary Jyoti Ronghe were present. Also from Mumbai Hon. Chairperson Sheela Chitnis, Hon. Treasurer Surekha Nerurkar & from Pune Asha Merchant were present.

The Rights to Persons with Disabilities Act was passed unanimously in the winter session of the Parliament. The objective of the Seminar was discussion on the prominent features of the Disability Act and its implementation.

The first session of the Seminar on understood salient features of the newer Disabilities included in the Act. MS being newly included in the Act, representatives of MSSI were invited & Sheela Chitnis was invited as a speaker. She gave a presentation on problems faced by MS patients in general & what the MSSI is doing to make their lives better by various welfare projects & by MS Awareness projects for general public. She emphasised for the need to create a barrier free environment & to ensure that they get proper support they deserve from the community at large.

MSSI Mumbai Awareness Events – Feb 2018

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09.02.2018 – Awareness at KEM Hospital for Medicos & Para Medicos

MSSI Mumbai  organised two programs with Prof.  Dr. Jurg Kesselring:

Prof. Dr. Jurg Kesselring,  Professor of Clinical Neurology & Neuro Rehabilitation, at University of Bern, Zürich​ &  is Head of the Neuro Rehabilitation Centre at Valens, Switzerland. He is also the Chairman of WHO Working Group on Multiple Sclerosis & is former President of MS Society of Switzerland.

Awareness at KEM Hospital for Medicos & Para Medicos Report:

In association with KEM Hospital , MSSI Mumbai  organised a Medical Seminar with Dr. Jurg Kesselring for Medicos & Para Medicos at KEM Hospital on 9th February 2018. Mrs Chitnis gave a brief presentation on the services of MSSI.

Dr. Kesselring gave a Presentation on Rehabilitation in MS. . It was a very interactive & informative session for the young Medical Fraternity.

 

 

10.02.2018 – WCNR – Neuro Rehabilitation in Multiple Sclerosis at Renaissance Hotel

On Saturday 10th Feb 2018 from 10.00 am to 12.00 pm.​ The second Program with Dr Kesselring was at the World Congress for Neuro Rehabilitation (WCNR) where President Dr.Nirmal Surya had allocated MSSI a 2 hours Session at Public Forum Section for PwMS & families. In all 100 people were present including MS families.

After Prof. Dr. Jurg Kesselring’s motivating presentation on “Rehabilitation in MS” there was a panel discussion.

This was followed by an active interaction with the audience.

India MS Day – Mumbai

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Multiple Sclerosis Society of India, (MSSI) MS WalK on INDIA MS DAY MSSI Mumbai Chapter had organised MS Walk to observe India MS Day on Sunday 4th Feb 2018 from 7am- 10am at Shivaji Park Ground, Dadar. In all more than 250 participants, including MS persons, caregivers, donors, friends & college students participated.

We were graced by the presence of : Mr.Pravin Amre, National Cricketer, who was appointed as the Head of Talent Hunt for IPL franchise Delhi Daredevils & President, Shivaji Park Gymkhana. And also Senior Neurologist Dr.Sarosh Katrak .

We were happy to have amongst us, Dr. Rekha Bhatkhande, Former Dean of Shushrusha Hospital and Dr Ketna Mehta, Founder of Nina Foundation, NGO for Spinal Cord Injury, with her team of 10 wheel chair persons. A special mention has to be made of Mr.Sultan Fazelbhoy, Patron Member & Donor, who at the age of 90 years attended the MS Walk.

Soon after registrations, Sundari Raju, Hon Secretary welcomed all present. She appealed to the audience to Support MS cause & spread MS Awareness.

Thereafter Dr. Katrak briefed the audience on the disease Multiple Sclerosis. MSP Aashika born & brought in Los Angeles was present and she shared her experience of living with MS, with all the young ones present.

Then Dr. Katrak & Pravin Amre inaugurated the MS Walk by cutting of the ribbon along with MSSI Committee Members. It was a symbolic walk where the students of SIES College & NK College walked along holding placards & banners with inspiring Messages.

A special mention has to be made of MSP Imran Qureshi, who along with other wheelchair users, enthusiastically performed wheelchair dances. After the Walk MSSI distributed sumptuous hot wada pav & tea to all present.

As it was a Sunday morning, Shivaji Park ground was crowded with morning walkers & joggers whom we were able to attract.MS pamphlets were distributed to general public.

We are grateful to: Dr Sarosh Katrak , Pravin Amre for their presence at our Walk, to the Managing Committee Members of Shivaji Park Gymkhana for providing us free venue , to Mr. Sunil Jhangiani for donating blue T shirts which brought fantastically colourful look at Shivaji Park. This Event was covered by Marathi Newspaper Pudhari.

– MSSI Team