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Face to Face Programme

By Chennai No Comments

MSSI – Chennai Chapter’s monthly meeting “Face to Face” Programme was a Christmas Celebration on 22.12.2019. It started with a welcome address given by the Hon. Chairperson Mrs. Ann Gonsalvez and then it was handed over to BNY Mellon volunteers.  Mr. Joseph the BNY Volunteer organized a magic show and he introduced the magician to the audience. The Magic Show was for 40 minutes and everyone was entertained by the tricks. The entry of Santa Claus, was welcomed by one and all. Santa distributed gifts to our MSP’s Children and sweets to everyone. Then, BNY Volunteers conducted 3 games, ‘Connection Game’, ‘Jumbled Movie Name’ and ‘Chinese Whisper’. MS Person’s and their caregiver enjoyed the games thoroughly.

After that, a delicious lunch was served for one and all, which was enjoyed thoroughly. A birthday cake was cut by those who celebrated their birthday this month. They are–Ms.Anitha, Mrs.UmaMageshwari and Mr.Rajesh, by singing of happy birthday song by everyone.

The day came to a happy ending by giving gifts to our MS Person and Caregivers.

Stay Healthy and Fit for 2020

By Kolkata No Comments

A Brief Report on Medical Camp of MSSI Kolkata

MSSSI Kolkata arranged a free medical check-up camp for MS friends which came to a great success we are glad to present a brief report on that event.

Date: 22nd December 2019
Place: JMD Diagnostics, P-336, C I T Road, Scheme IV M , Kolkata- 700 054
Time: 10 AM to 3 PM

Doctors who made the event a difference
Dr.AmbarChakraborty (neuro physician)
Dr.Angshuman Mukherjee (neuro physician)
Dr.AshisDatta (neuro physician)
Dr.HimadriPathak (urologist)
Dr.NilanjanaBist (ophthalmologist)
Dr.RajibBiswas (Physiotherapist)

Prime sponsor: MSN Laboratories
Logistic support: JMD Diagnostics
Highlights
In spite of an extremely chilled winter morning, the camp started on time. JMD Diagnostics was ready with fully equipped, disinfected chambers with all necessary requisites needed for patients check-up. JMD staffs were always there to pay kind attention for the comfort of MS friends. JMD also provided wheelchairs as and when required. A light refreshment was arranged by JMD authority to energise the participants.

Doctors examined the patients, discussed and advised on their problems, prescribed for required clinical examination and medicine. All clinical tests including MRI Scan were done free of cost for all MSPs. MS friends and their caregivers were contented to get the opportunity for having a free medical check-up on different problems under one roof.

Mementoes were gifted to the doctors on behalf of MSSI Kolkata as token of appreciation. The sumptuous lunch box was provided to all participants. Conveyance expenses were reimbursed to MSPs.

MSSI Kolkata is extremely grateful to Dr.AmbarChakraborty under whose leadership the event took a great shape. We are also grateful to other doctors who gave their precious time on a Sunday morning for us. We are thankful to JMD Authority and MSN Laboratories for their support to the benefit of MS friends.

Disability Week Bengaluru Chapter

By Bengaluru No Comments

As a part of Disability Week Bengaluru Chapter showcased the #My Invisible MS campaign photographs at ANZ, Bengaluru. More than 500 people visited the kiosk and Shankar Subramanian gave a talk on disability etiquettes and invisible disabilities.

 

Medical Seminar at Kokilaben Hospital

By Mumbai No Comments

MSSI MUMBAI in association with KDA Hospital & Medical Research Institute had organized Medical Seminar on Saturday, 7th Dec. 2019, from 1.30 p.m. to 5.00 p.m. This was organized mainly to create awareness about MS for General Practitioners and other Health Professionals so that to be able to reach maximum number of MS patients, through GP.

The program started with the introduction and overview of Multiple Sclerosis by Dr. Mohit Bhatt, Director-Neurosciences & Movement Disorder Specialist, KDA Hospital.

Mrs. Sheela Chitnis gave a presentation about her 35 years journey of MSSI. She mentioned about the challenges she faced in the initial years at & various achievements throughout her journey.

Neurologists Dr. Jayanti Mani, Dr. Sunita Iyer, Dr. Annu Aggarwal, Dr. Tushar Raut gave presentations on various aspects of MS & Physiotherapist Dr. Navita Purohit, spoke about “Rehabilitation in MS”

International Day of Persons with Disabilities

By Delhi, General No Comments

International Day of Persons with Disabilities is an international observance promoted by the United Nations since 1992. It has been observed with varying degrees of success around the planet. The observance of the Day aims to promote an understanding of disability issues and mobilize support for the dignity, rights and well-being of persons with disabilities. It also seeks to increase awareness of gains to be derived from the integration of persons with disabilities in every aspect of life. Each year the day focuses on a different issue. This years theme is, “The Future is Accessible”.

As a part of the national advocacy action plan we had identified the need to address the poor understanding of MS among external stakeholders, disability groups, government, media, and the general public. MSSI members, volunteers and persons with MS along with their caregivers participated in the Symbolic Walk to Freedom that started from the iconic India Gate in the capital city of New Delhi to commemorate the International Day of Persons with Disabilities. This event was organized by NCPEDP and the America India Foundation. Before the walk, MSSI’s India MS Person of the year, 2019 Gp. Capt. Malaker, along with members of other newly recognized disabilities were invited on the dias to release the blue and yellow balloon as a symbol of freedom from the bondage which is social, psychological, societal and individual. There was a gathering of nearly 5000 people and we were able to create a lot of visibility and awareness about Multiple Sclerosis. We gave away pamphlets with information about MS & MSSI. As a way to create awareness, we displayed placards with slogans that convey the need of the hour for Multiple Sclerosis which included Know Multiple Sclerosis, Change assessment guidelines, No Data on Multiple Sclerosis, No research, Reduce cost of Treatment.

Ironically even though the theme is Future is Accessible, that is not the reality on the ground for a person living with MS in India because they are still struggling with inappropriate assessment guidelines, lack of data of prevalence of MS in India, no research on drugs and treatment that might work. All of this leads to lack of access to schemes, social benefits, insurance and employment. We have a lot to do to change that.

Participating at national level events provided impetus to our work in the area of advocating for the rights of persons with MS.

REPORT ON WORLD DISABILITY DAY

By Chennai No Comments

International Day of Persons with Disability was observed on the 3rd of December 2019. The theme for this year was “The Future is accessible.”

Marina beach is one of the longest beaches in Chennai city. The Greater Chennai Corporation in observing the International Day of Person with Disabilities based on the theme “The Future is accessible”. They organized an ‘accessible walkway’ in Marina Beach for the disabled people to Experience the roaring waves of the Bay of Bengal.

The event was inaugurated by the Greater Chennai Corporation Commissioner, Mr.G.Prakash and State Disability Commissioner Mr. Johny Tom Varghese. ‘3 Specialized Wheel Chairs’ were provided by Greater Chennai Corporation to take a ride along the sands and reach the seashore safely and conveniently.

Disabled people came from different organizations and MSSI to experience the seawater. Chennai Chapter team took part in this initiative and a few of the MS Persons accessed the walkway through the beach wheelchair and enjoyed a few moments in the seawater. A dip in the seawater was the joy for many differently-abled persons.

OzHaat – An NGO Mela

By Delhi No Comments

On Saturday 30 November, MSSI Delhi participated in the inter 19th edition of OzHaat – an NGO Mela organized by the Australian High Commission.

MSSI Delhi has been associated with this event since its inception, and we use this wonderful opportunity to provide a platform to our MS members and their families to showcase their talents and entrepreneurship by displaying and selling various things made or sourced by them.

Over the years MSSI members have sold a variety of goods ranging from hand-knitted sweaters, embroidery items, pickles, and artisanal chocolates to hand-painted cards, bags, shoes, and shawls.

The entire proceeds from the sales go to the individuals participating with MSSI Delhi under its “ Swayam” project which acts as a facilitator, helping them to get an opportunity to not only earn but also give the participants a feeling of pride that enhances their self worth in the eyes of their friends and family.

It is our effort to give between 4-5 PwMs this chance every year.

PHYSIOTHERAPY at UCCHVAS

By Hyderabad No Comments

MSSI HYDERABAD has arranged a meeting with Dr.Vijay, an experienced Physiotherapist at UCCHVAS NEURO REHAB AND TRANSITIONAL CARE CENTRE to understand the importance of Physiotherapy.

This month MSPs and Caregivers joined together to learn the benefits of Physiotherapy, a treatment to restore, maintain and make the most of a patients mobility, function and well being.

MSPs have learned how Physiotherapy helps to manage MS.

This centre provides various exercise programs and inpatient facilities to make patients functionally active, handle depression and come out of trauma.

Face to Face Programme

By Chennai No Comments

MSSI  Chennai Chapter monthly “Face to Face” Programme held on 23-11-2019 started with the Meditation session by Dr. R.J Kalpana on the topic “Learn to meditate, Heartfulness Meditation with Yogic Transmission”. It was a 40-minute online session. Our MS Persons and their caretakers enjoyed and felt relaxed at the end of the meditation session which in turn helped them to stay active for the next session.

The guest speaker for the programme was Dr. Ravi Samuel, one of the Chennai’s eminent psychotherapists, who has over 20 years’ experience in treating people with emotional, behavioural, psychological, psychiatric problems, corporate mental health, etc. He has had professional training in Cognitive Behavior Therapy by Mr. Allan Davidson, Cognitive Behavior Therapist at Dept. of Clinical Neurology, Institute of Neurology and National Hospital for Neurology and Neurosurgery, London. He addressed our MS persons and their caregivers on the topic “ Caring for the Carers”.

He focused on mental well-being, for MS persons and Caregivers and how to handle the emotional effects, organize and fight within ourselves. He explained the healing process which was very informative and useful for our caregivers as they were able to relate it and make it has an interactive session.

As a coping mechanism, the counsellors Ms. Gayathri and Ms. Kavya who teamed up with Dr. Ravi Samuel taught us few breathing techniques. There was a question and answer session where our MS persons and caregivers clarified their doubts.

A birthday cake was cut by those who celebrated their birthday this month. They are  – Mrs. Ann Gonsalvez, Mr. Sivakumar, Mr. Raghunathan, Mrs. Lucy Nathan and Ms.   Keerthana by singing of happy birthday song by everyone.

Delicious snacks and tea brought the meeting to a close.

Mind & Power Unlimited

By Mumbai No Comments

Report on “Mind & Power Unlimited”
Session by Mr. Sunil Parekh of Rise Development Academy

On Friday, 22nd November, 2019, MSSI Mumbai had organized a session “Mind Power Unlimited” which was conducted by Mr Sunil Parekh, Chairman & CEO of Rise Development. He is an IITian who is now known as an expert in transforming the lives of thousands. The program was held at the Rotary Garden, Wadala, Mumbai.

In the beginning, Mrs. Chitnis offered thanks to Mr. Sanjay Shah, Rotarian, Rotary club Wadala, Mumbai for offering a venue for the session free of cost.

Mr. Raj Dhyani introduced Mr. Parekh. He started the session at 10.00 a.m. with his brilliant PowerPoint Presentation about our subconscious mind. It was totally a new concept for all present. Mr. Parekh demonstrated by calling a few MS persons from the audience to him to show how we all possess this power and we can daily use it for the betterment of our living.

He kept on asking questions to the audience and thus involved all of us. No one felt bored or uninterested and everyone gave full attention to him.
From this session, our patients learnt a lot, i.e. how to remain healthy, how to reach to their goals, how to boost to stay with positive attitude etc. We would like to again invite Mr. Parekh to listen to his extra-ordinary presentation.

Mr. Raj Dhyani took a lot of efforts to organize this session.

In all 38 people including 16 MSPs and 8 caregivers attended the session, as it was working day.