MSSI Hyderabad put up an awareness stall at the Hyderabad Literary Fest held at HYDERABAD PUBLIC SCHOOL on 26th and 27th January 2019. There was an inflow of more than 5000 people of all age groups each day. Leaflets were distributed and the book FORMS OF THE FORMLESS by Amita Talwar (having write up on MS and MSSI) was sold in good numbers. The book was gifted to the Bollywood celebrity, Shabana Azmi, who was there for the screening of the film on her father, Kaifi Azmi made by none other than Amita Talwar and to many other well-known writers, poets, theatre artists present at the fest.
The gear wheel in the brain of our beloved chairperson Mrs. Mamta Gupta decided that come December we should have the exuberant Mandala Art which was not only intriguing but enthralled everyone from old to young
The Honorable Judge for the event was Mrs Sharada.
Mandala Art: The word Mandala in Sanskrit means circle.
Mandalas generally have one identifiable centre. From which emanates an array of symbols, shapes and forms. A Mandala represents wholeness. The circular design symbolizes the notion that life is never-ending.
Mandalas can contain both geometric and organic forms. They can also contain recognizable images that carry meaning for the person who is creating. It also represents a connection between our inner worlds and outer reality. Designing your own Mandala is both inspirational and therapeutic. ‘Carl Jung’ introduce this art as a form of self-discovering. Viewing or Coloring the Mandala relaxes and heals the mind. Traditional mandalas are used as meditative tools and spiritual symbols. ‘Rangolis’ alpanas and designs in temples etc.
Waiting for the Mandala to begin…
Participation with Enthusiasm…
The November monthly meet held on 18th November 2018 concluded leaving all the PwMS with a new experience upon alternate ways of managing MS with the dietary intake.
MSSI Hyderabad chapter had invited Mrs Kavita Kabra, a nutritionist and dietitian with about 28 years of experience in counselling and helping people.
Below are the tips as advised by her.
- Managing your lifestyle by eating simple healthy food every 2 hrs.
- Drinking more water early morning is not required.
- High fibre low fat.
- Omega fat.
- Rice bran, evening primrosa.
- Change of food oil every 2 months.
- 1 tsp of Ghee per day & nuts in your diet is preferable.
- Compressed oil should not be heated in high flame – cooking compressed oil on a low flame is advisable.
- Supplements should not be taken along with your meals.
- Bakery items and aerated drinks are not advisable.
- Omega 3, vitamin D and Biotin named Radiance is good for MS.
Any supplement should be taken only after consultation with your Neurologist.
In our October monthly meeting which was held on 21/10/2018, we MSSI Hyderabad chapter invited Dr. Srikanth Jawalkar a senior consultant neurologist with 40 years of experience.
He had a one to one interaction with PwMS and caregivers.
Dr Srikanth a Senior consultant with Apollo and Yashoda hospitals, shared facts on MS and its management to new depths.
One of the vital insight into MS management is that anxiety may exist alongside the various drugs which are being used to manage MS today and the same should not be treated as exigency.
Different people respond in a different manner to the medication hence efficacy and result of any medication cannot be generalized.
Awareness is a key important issue as an early diagnosis of MS does help in managing the ailment effectively in the long run and helps maintain a better quality of life for the affected individuals
Insight on a number of drugs was spoken and he emphasized on physiotherapy for effective management.
MSSI Hyderabad organised a fundraiser on 9th September 2018. It was a Sufi dance concert by the world-renowned danseuse, Manjari Chaturvedi, titled The Courtesan – An Enigma. Actress, Nisha Singh narrated episodes and stories from the lives of well-known courtesans.
There was a gathering of about 400 people including high ranked Government officials, writers, poets, publishers, media person, our members, guests, doctors and our PwMS. An opportunity was given to PwMS Deepthi to put up a stall of her artwork near the reception which did fairly well.
The programme was highly appreciated and received excellent reviews in magazines and daily newspapers. Awareness was also made by putting up hoardings and posters at prime locations in the city. Event listing was done 15 days ahead of the programme in the newspapers – The Times of India, Deccan Chronicle and via curtain raiser by Ratna Rao, in the Wow magazine.
Hyderabad Chapter is thankful to all those who willingly supported the cause and our esteemed sponsors.
This was a unique, creative and interesting way to create MS and MSSI awareness by introducing Mandala art at Smiles old age home, Medchal – Hyderabad. There was a gathering of about 75 people which comprised of senior citizens, trustees with their families and guests, doctors, nurses, government officials of high ranking and the MSSI team.
Colouring Mandalas was both therapeutic and meditative. It was an amazing experience to see everyone so engrossed that they forgot their lunch timings.
Mr. Prasad Gowra, senior trustee of Smiles, thanked MSSI team by gifting a token of appreciation to all the MSSI members and making a donation on behalf of Smiles.
Sparsha Hospice team present, invited us to plan a similar programme for their patients too.
Great achievement! Made awareness and collected funds!
We organised a three month Therapeutic Yoga workshop for our PwMS , comprising of Asanas and Pranayama’s, by senior yoga therapist Kamala Cherravuri and her team. This included ten individual sessions and three group sessions. The individual sessions were tailor made for each individual according to one’s symptoms and needs while the group sessions were common to all.
A documentary of the above has been made depicting how Yoga served as a medium for bringing us closer in observing WMSD
Hope you will enjoy watching the attached video as much as we enjoyed making it happen.
The Hyderabad Chapter celebrated World MS Day at City Center Mall, Banjara Hills on 30/5/2018 with the theme “#Bringing us Closer” from 5p.m. to 7p.m. This was a Musical evening with Live singing by our MS person Ms. Hema Gulati Chandra accompanied with Ms. Rani at the keyboard and Mr. Bhaskar at the drums.
Our event began with a welcome address by Chapter Chairperson. She welcomed all the participants and spoke about the importance of World MS day and Hyderabad Chapter’s activities.
Master Gourav Mittal, rendered a beautiful Shloka in Sanskrit.
Prizes were given by Mamta Gupta to MS persons Maheshwar, Arti’s son Gourav and Rebecca who had participated in the photography exhibition held at Bengaluru. Prizes were given by Sundari Raju, Secretary Mumbai Chapter to the MS personsHema, Maheshwar, Arti, Sushma and Pavan who participated in the story/poem competition held by Mumbai Chapter. Prizes were given by Meena Gupta to the children of MSPs who have been achievers in academics and other competitions. Sai Keertana Dauhgter of Sareesh, Akshara daughter of Srikanya and Gourav son of Arti.
Hema took over the stage and started singing, mesmerising everyone with her melodious voice. She sang old and new Hindi and English songs which made some members get up and dance.
Mrs. Ramadevi, PwMS who is currently confined to a wheelchair displayed the true spirit of ‘Life with MS’ by performing a dance while sitting on a chair.
Dr. Mahesh Joshi gave all of us a big surprise by joining in at 7 p.m. He lifted everyone’s spirit with his foot tapping old Hindi songs.
The evening was full of fun and frolic. As with all good things, the event came to an end with a show of solidarity for PwMS, their family members, caregivers, guests and life members by forming a human chain.
The MSSI Hyderabad Chapter expresses their sincere gratitude to our wonderful sponsors . Mr. Sandeep Shah of Subway for providing snacks and refreshments for all the event attendees. Sanofi Enzyme for their support towards this event. Mr. Asim of City Center Mall providing the venue. Mrs. Deepthi of Darsh Events for the backdrop, and organising the stage.
MSSI Hyderabad Chapter conducts a free MS Clinic at Apollo Hospital, Jubilee Hills, which is organised quarterly, for the MS patients registered with the Chapter. This has been a very successful imitative by the Hyderabad Chapter. We started this clinic on April 2014, when Dr. Subhashini Prabhakar, Neurologist, HOD Neurology and Dr. Namita Singh, Neuropsychologist, offered to give free consultations to the PwMS.
Only 4 patients are registered for each session, so that each one gets ample time with the doctors to discuss and clarify their queries. The PwMS members have expressed their extreme happiness and satisfaction on this initiative and showed interest to participate. If any follow up has been advised by the doctors, Hyderabad Chapter take care of that too. We have got a tremendous response from the PwMS for this innovative clinic initiative.
Testimonials by PwMS and Caregivers
Unlike the hustle-bustle we usually see at a Neuro OPD, we were welcomed, our papers were filled, we were properly guided and taken to the three consultants without much waiting. The doctors were very accommodative, showed patience, and were ready to listen to what has been said, examined us and gave useful suggestions. Though I am a patient of a different consultant, they never even for a while thought I am an outsider. Overall experience has been excellent. Once again, A BIG THANKS to MSSI Hyderabad.
Dr. Srinivas Mondrety (PwMS)
MS society of Hyderabad has been very cordial and cooperative towards me and my sister. They came in at a time when I was totally blank of how to proceed further in treatment of the disease approximately seven years back. They have tied up with Apollo Hospital and arranged for regular check-ups from prominent neuro physicians and other related doctors that keeps a check on the unpredictable developments in the patient.
Archana Arora’s brother Manish Arora (caregiver)
Thank you MSSI – Hyderabad Chapter & Apollo Clinic Neuro Team
The word free always attracts but also gives you a negative sense of the quality of your session. But that’s not the case with MS Clinic at Apollo. The Doctors are very much committed to these PwMS meetings but also treat us like any normal person giving you the utmost importance and spending a good quality of their time with us.
Maheshwar Kusuma (PwMS)
Birthday cards made by artist Indira Susheel Kumar for all MS persons…free of cost….each one personally signed by our chairperson……Mandalas bringing us closer
WHY DO I CREATE MANDALAS?
Mandala” is a Sanskrit word that means “circle”. Mandalas generally have one identifiable center point, from which emanates an array of symbols, shapes and forms. A Mandala represents wholeness. The circular designs symbolize the notion that life is never ending. Many mandalas have spiritual significance to an individual or group of individuals. Mandalas are traditionally used as meditative tools and spiritual symbols. Carl Jung introduced the modern era to Mandala drawing as a form of self-discovery.
Mandalas offer balancing visual elements, symbolizing unity and harmony. They strive for a harmony of stillness and motion which provides the viewer both rest and energy. Mandalas are not planned but an intuitive and free flowing process that relaxes and heals the mind, mind and spirit not only for the creator but also for the person looking at the creation. Personally, since I derive great peace and happiness creating mandalas, I feel that those associated with the MSSI would benefit greatly by just looking deeply into the mandalas.
INDIRA SUSHEEL KUMAR
I have always been attracted towards art and creativity and this encouraged me to enrol into the Sir J J School of Art, Mumbai to pursue a diploma course in Textile designing. On completing my studies in the creative field, I added a Degree in Economics and Political Science from the Osmania University, Hyderabad.
After my education at Sir J J School of Art, Mumbai, I had set up my own studio, where batik, tie n die, and fabric painting were done on order basis. I have conceptualized and conducted two art exhibitions, comprising of my own creations
The experience of having worked in the Art Department of advertising agencies as a Visualizer helped me in the creative process. As a freelancer in the creative field for more than three decades, designing of mandaps, store windows, animations for newsletters are some of the areas where my designing and creativity comes to the fore.