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National Workshop 2018

By | General | No Comments

The National office welcomed its Regional Chapter heads and their representative to Delhi for a 2-day workshop in June 2018. This was the first of its kind workshop where the senior leadership team members came together to brain storm on identifying how to feed into the national initiative of Advocacy and Creating more Awareness amongst different stakeholders like policy influencer & makers.

The 2 days saw interesting and interactive sessions, games, group discussions & working out possible solutions that would help in voicing the need of person with MS in a more focused and sustained manner. Learning about most successful projects from each of our chapters through a Photo Gallery Walk Through was were enriching and inspirational

Our heartfelt thanks to MS International Federation for conducting this!

World MS Day 2018 – Fundraising Program

By | Bangalore | No Comments

A Fund Raising program Jagachitra was held in continuation with the camp to commemorate WMSD. This event was held mainly to create Awareness among general public & also to raise funds for the welfare of MS persons in aid of MSSI, Bangalore Chapter from Thank God It’s Saturday

Thank God it’s Saturday!’ or TGiS in short, is an exclusive group of photographers, both experienced and amateur, who despite their varied professions get together every weekend to pursue their collective love for photography. TGIS has been raising funds since 2003 has committed the entire proceeds to noble causes which includes the Rotary and the MSSI.

The collection of photographs showcases a wide repertoire of motifs, ranging across culture & festivals, monuments, flora, fauna, dances and landscapes of the India and from across the world. What makes these exhibitions so special is the display of amateur works of high standard, right alongside those of experienced and senior photographers, contributing to a liberating spirit of inclusion.

Inauguration of the exhibition:

Grand inauguration of the photography exhibition was held on May 31st 2018 at Rangasthala Auditorium adjacent to the exhibition hall. Celebrity who inaugurated the event was a famous & Award winning actress Suman Nagarkar.

There were more than thousand people who visited the exhibition every day and brochures were handed over to them. Volunteers explained the cause and briefed visitors about MS. We had a good media coverage which helped us in creating more awareness about MS.

An article about Jagachitra was published in Your story, link provided below:

https://yourstory.com/2018/06/art-for-a-cause-how-this-photography-exhibition-is-raising-funds-for-the-multiple-sclerosis-society-of-india/

https://yourstory.com/2018/06/adversity-can-open-opportunity-punkaj-gupta-photographer-multiple-sclerosis-patient/

OUR HEARTFELT THANKS TO SANOFI GENZYME FOR THE SPONSORSHIP TOWARDS THE WMSD EVENTS HELD.

WMSD at IMA Pune

By | Pune | No Comments

The invitation to attend IMA Annual day program on Sunday, 3rd June had been extended by Dr Padma Iyer, President, IMA.

This appeared to be a good opportunity to continue with our WMSD reach out project for GPs and general public for creating awareness about Multiple Sclerosis and MSSI, hence we decided to attend this program.

The program participants included doctors, clinical psychologists, psychiatrists, advocates, legal advisors, counsellors, Human right activist, healing expert, etc. besides the general public.

Committee members Sarita Varma and Sunita Lalwani attended this program

and interacted with all the participants and distributed brochures to them.

Disseminating information about MS and MSSI services to the medical fraternity and others present at the IMA function in such manner was a very satisfying experience

 

World MS Day 2018 – Kolkata

By | Kolkata | No Comments

Bhalo thaakar Gaan” (Good music for good life) – A soulful and enthralling musical evening was held with performances by national award winning singer Rupankar Bagchi and Sidhu (lead man of popular Bangla band – Cactus) featuring Bengali film hits and modern songs along with golden oldies in Hindi to celebrate World Multiple Sclerosis (MS) Day 2018 in support of Multiple Sclerosis Society of India, Kolkata chapter. This was held on the evening of 31st May 2018 at Kala Mandir, one of best auditorium in the City of Joy. The event was attended by over 500 music loving Kolkatans, who had joined hands to support this critical and incurable neuro ailment.

The evening took off by a welcome speech by Anirban Banerjee, the Hon Joint Secretary of MSSI, Kolkata who wholeheartedly thanked the audience and the corporates who supported the cause. The Hon. Secretary of the chapter Ms. Anuradha Goswami then spoke and stressed on spreading maximum awareness about MS across all. The same appeal was reinstated by the Chairman of the Kolkata chapter – Mr. Anand Chopra who then invited the society’s national President Mr. Viresh Oberoi who graced the occasion with his grand presence. Mr. Oberoi then invited senior neurologist of Bangur Institute of Neurosciences, Dr. Gautam Ganguly who spoke at length on the new treatments getting unfolded to fight MS.

Then Sidhu started his musical performance in his unique energetic style. He performed some Hindi oldies which was very relevant to the evenings theme and also performed some Bengali hits including the much admired “Holud Pakhi” of Cactus and some folk numbers where the audience too lent their voice. One of the memorable moment of the evening was when Sidhu performed “Bhalo thaakar Gaan” – a song which was written and composed by Sidhu for the event to celebrate World MS Day 2018. Then much to delight of the present audience, Sidhu called Rupankar on stage and together they sang “Amar bhitor bahire, antare antare” and the crowd just went berserk.

The very popular Rupankar then came on stage and kept on performing all his hits one after another and the requests just came pouring in and he happily obliged too. He also performed “Sanket”, the song he had written and composed for World MS Day in 2017.

Both the performers spoke at length on MS and appealed to the present public to spread awareness and support the unfortunate people fighting MS.

The melodious evening came to an end with a vote of thanks by the Vice Chairman Kolkata chapter – Mrs. Swapna Ghosh.

The event got wide spread media coverage where event teasers got published in Dainik Statesmen and Eastern Chronicle. Post the event we got coverage from Calcutta Times (Times of India), The Statesman, Ei samay, Sangbad Nazar and online news articles with photographs in The Times of India, ibgnews.com, Sholoanabangaliana.com till date.

World MS Day 2018 – Indore

By | Indore | No Comments

Indore Chapter organised a medical camp for WMSD. This was attended by 125 persons .

Medical health check included sugar test, blood pressure test and Korean based acupressure therapy. This therapy was very much appreciated by MS persons and caregivers.

There was an  interactive session  on affordable treatment for MS between neurophysicians, MS persons and caregivers, guests and members of MSSI Indore Chapter.

Event ended with refreshments.

Thanks to Sanfofi for their support which helped us in organising this event.

World MS Day 2018 – Delhi

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1.Along with the rest of the world and seven other Chapters in India, MSSI Delhi  held a series of events in line with this year’s theme of research, giving all those who are curious about MS research an opportunity to meet people involved and learn more about progress in the field. The Multiple Sclerosis Society of India Delhi Chapter and India’s leading Research Centre & Hospital All India Institute of Medical Sciences held  an open day for people to meet experts working in MS research & treatment, including psychotherapy and counseling. It invited the public to learn about MS and how it affects different aspects of daily life.

An awareness Seminar was organised at India’s foremost Hospital & Medical Research centre All India Institute od Medical Sciences (AIIMS) A Panel discussion was held with 7 leading Neurologists  / Senior Faculty members of the Neurosciences Centre ( NSC) discussing the latest treatments in the search for cure for MS . Dr Kameshwar Prasad , Head of NSC AIIMS was hopeful of the results coming in from AIIMS own research  and corroborated with similar research in the rest of the world with regard to hematopoietic stem cell treatment (HSCT) . He is of the belief that in the near future we could expect that HSCT could well become the first line of treatment in MS.

This was attended by over 300 people which included newly diagnosed persons with MS, their families, caregivers, Doctors & members of the general public.

2. During MS Awareness Week, the MS Society of India’s Delhi Chapter engaged with people affected by MS as well as the wider public. An all day Awareness Booth came up at Delhi’s most popular Mall Select City Mall Saket for the whole day on Saturday 26 MayThis Mall sees the highest foot falls , with up to  40,000 visitors on weekends .MSSI Delhi put up an LCD screen showing short films & videos on MS. several thousand pamphlets on “what is MS” were  distributed along with other items like orange MS wrist bands, MS badges , ribbons etc with the WMSD & MSSI logos. Many persons with MS  and their families dropped in and bonded over coffee & pizza spending an exciting day in the Mall – some lucky mamas managed to get a quick free makeover at cosmetic stores while their kids got free balloons at other promotional events !

World MS Day 2018 – Hyderabad

By | Hyderabad | No Comments

This was a unique, creative and interesting way to create MS and MSSI awareness by introducing Mandala art at Smiles old age home, Medchal – Hyderabad.  There was a gathering of about 75 people which comprised of senior citizens, trustees with their families and guests, doctors, nurses, government officials of high ranking and the MSSI team.

Colouring Mandalas was both therapeutic and meditative. It was an amazing experience to see everyone so engrossed that they forgot their lunch timings.

Mr. Prasad Gowra, senior trustee of Smiles, thanked MSSI team by gifting a token of appreciation to all the MSSI members and making a donation on behalf of Smiles.

Sparsha Hospice team present, invited us to plan a similar programme for their patients too.

Great achievement! Made awareness and collected funds!

World MS Day 2018 – Yoga

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We organised a three month Therapeutic Yoga workshop for our PwMS , comprising of Asanas and Pranayama’s,  by senior yoga therapist Kamala Cherravuri and her team. This included ten individual sessions and three group sessions. The individual sessions were tailor made for each individual according to one’s symptoms and needs while the group sessions were common to all.

A documentary of the above has been made depicting how Yoga served as a medium for bringing us closer in observing WMSD

Hope you will enjoy watching the attached video as much as we enjoyed making it happen.

World MS Day – Musical Evening – Hyderabad

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The Hyderabad Chapter celebrated World MS Day at City Center Mall, Banjara Hills on 30/5/2018 with the theme “#Bringing us Closer” from 5p.m. to 7p.m. This was a Musical evening with Live singing by our MS person Ms. Hema Gulati Chandra accompanied with Ms. Rani at the keyboard and Mr. Bhaskar at the drums.

Our event began with a welcome address by Chapter Chairperson. She welcomed all the participants and spoke about the importance of World MS day and Hyderabad Chapter’s activities.

Master Gourav Mittal, rendered a beautiful Shloka in Sanskrit.

Prizes were given by Mamta Gupta to MS persons Maheshwar, Arti’s son Gourav and Rebecca who had participated in the photography exhibition  held at Bengaluru. Prizes were given by Sundari Raju, Secretary Mumbai Chapter to the MS personsHema, Maheshwar, Arti, Sushma and Pavan who participated in the story/poem competition held by Mumbai Chapter. Prizes were given by Meena Gupta to the children of MSPs who have been achievers in academics and other competitions. Sai Keertana Dauhgter of Sareesh, Akshara daughter of Srikanya and Gourav son of Arti.

 

Hema took over the stage and started singing, mesmerising everyone with her melodious voice. She sang old and new Hindi and English songs which made some members get up and dance.

Mrs. Ramadevi, PwMS who is currently confined to a wheelchair displayed the true spirit of ‘Life with MS’ by performing a dance while sitting on a chair.

Dr. Mahesh Joshi gave all of us a big surprise by joining in at 7 p.m. He lifted everyone’s spirit with his foot tapping old Hindi songs.

The evening was full of fun and frolic. As with all good things, the event came to an end with a show of solidarity for PwMS, their family members, caregivers, guests and life members by forming a human chain.

The MSSI Hyderabad Chapter expresses their sincere gratitude to our wonderful sponsors . Mr. Sandeep Shah of Subway for  providing snacks and refreshments for all the event attendees. Sanofi Enzyme for their support towards this event. Mr. Asim of City Center Mall providing the venue.  Mrs. Deepthi of Darsh Events for the backdrop, and organising the stage.

World MS Day 2018 – Bangalore – Camp

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MSSI Bengaluru Chapter celebrated World MS Day on 30th May 2018 at Vikram Hospital from 8.30 am to 12.30 pm. Coinciding with the theme #bringinguscloser we had a large number of participation from MS persons, their family members, Caregivers, Doctors, Pharma people, volunteers, Physiotherapists etc., More than 80 people were present including 35 MS persons.

Initially the camp started with sumptuous breakfast sponsored by Pharma Companies Reliance Life Sciences, Merck & Eisai Pharma. Welcome speech was given by Hon. Secretary Shankar Subramanian inviting everyone for the WMSD Celebration.

Doctors present :
Dr. Rajesh B. Iyer – Neurologist, Vikram Hospital
Dr. Jaychandran – Neurologist, Vikram Hospital
Dr. Swarna Gowri – Nutritionist
Dr. Shashikanth – Yoga therapist
Dr. Vijeendran – Physiotherapist

The camp started with Cake cutting of WMSD by MS persons Rajkumari & Geetha Balaji. Laughing therapy by Shankar was held followed by Question & Answer session with MSPs’ and care givers on how people were going about dealing with the treatment & their views. Dr. Rajesh Iyer also explained in detail about the disadvantages of the disease for people who are not on any therapy in order to avoid further deterioration of MS. This discussion was followed by Yoga therapy by Dr. Shashikanth for about 15 mins in which he taught some simple mudras to be followed daily.

An important event of the day was Donation of Wheelchair & Air bed to the needy MS persons by Vikram Hospital.  Two Wheelchairs were donated to Manohar & Narayan Rao & an Air Bed to MSP Archana. MSSI is indeed thankful & grateful to Vikram Hospital for their kind gesture for organising everything in celebrating WMSD in their premises.

A talk on Nutrition was rendered by Dr. Swarna Gowri for the MS persons to maintain a healthy diet. On this great event MS person Rajkumari, Dr. Rajesh B.Iyer, Dr. Shashikanth & Mr. Prasad was awarded the Champion Award given away by the CEO of Vikram Hospital Mr. Somesh Mittal. MSSI honoured all the Doctors & Pharma Representatives by giving them a Memento for their support in organising the event successfully.

All the MS persons were given gifts to commemorate WMSD. The program came to an end after the consultation of MS persons with the Doctors.

Poster Competition – WMSD – BNY Mellon

By | Pune | No Comments

On Tuesday 29th May 2018 our Corporate Partners BNY Mellon organised a poster competition at their premises at Magarpatta City to observe World MS Day. The Theme of the poster competition was to express their feelings and understanding of the various challenges faced by MS persons. Our Committee Members, MSPs, staff members and BNY Mellon Volunteers were present for the Event.

The participants of the Poster Competition were divided into three groups. Each Group started painting posters keeping in mind the main theme.

At the same time Committee members, BNY Mellon volunteer and MSPs shared their views on MS, this little known disease. MSP  Anjali Vyas spoke about the challenges she faced from the day she was diagnosed with MS. She was very positive, courageous and openly aired her thoughts and feelings.

Then Committee members viewed the posters. Every painting turned out so meaningful that it became difficult to judge the best. So It was decided to give prizes to all the participants. Mrs. Mini Grant our founder Chairperson gave away the prizes and thanked them for their participation.

The event concluded with the vote of thanks to BNY management and all present.

World MS Day 2018 Delhi

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New Delhi 28 May 2018: Multiple Sclerosis Society of India(MSSI) commemorated ‘World Multiple Sclerosis Day’ in New Delhi the capital city of India.

We adapted the theme of #brininguscloser at the National Level to address the gap of lack of awareness & understanding about MS, plight of Person with MS and the role MSSI plays. We were able to stress on the fact that carrying out large scale population-based epidemiological study to determine true incidence and prevalence rates of MS viz a viz disease burden is the need of the hour

Our main target audience for this event were 2 critical stakeholders Ministry of Social Justice & Empowerment and the Media. The event format was a panel discussion followed by Q & A by PR professional. The panelist were   Mr.  K. Vikram Simha Rao – Director, Department of Empowerment of Persons with Disabilities, Ministry of Social Justice and Empowerment, Government of India Mr. T.D. Dhariyal – Commissioner for Persons with Disabilities, Government of NCT National Capital Territory of Delhi) Dr. Kameshwar Prasad Head of the Department of Neurology & Director Clinical Epidemiology Unit- All India Institute of Medical Sciences (AIIMS) Delhi and 2 of our MS Heroes Mr Rajiv Virat Wheelchair Instructor, Marathon & Tennis Champion & Mr Arun Srinivasan Graphic Designer and Artist

There seems to be a considerable shift in MS prevalence in India and this has really changed the notion of considering India as a low risk zone for MS. So much so that MS is included in the new Rights of Person with Disability RPWD Act and the ministry of Social Justice and empowerment has recommended that MS along with all other new disability be included in the Ayushman Bharat a national health protection scheme.

Ms. Renuka Malaker, National Secretary, MSSI, highlighted that as MSSI is a powerful voice of person suffering from MS in the country and if we sustain the momentum of  building awareness amongst all important stake holders only then we will be able to create the 1st MS Registry which will create a base for Research and Access to Affordable Treatment

For more information on MSSI please visit: www.mssocietyindia.org  visitwww.mssocietyindia.org/get-involved/

World MS Day 2018 – Chennai

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1.”Nrithya Sandhya” Music, Dance and a talk by 4 of our MS Ambassadors in the presence of the State Commissioner of Disability, Mr. Arun Roy at Express Avenue Mall, Chennai on May 26, 2018 .

We had standees at Express Avenue mall showcasing the support, symptoms, facts on MS.
Our MSP MS. Grace Arundati did the compering part.
Our MSP’s Ms. Monolisa, Ms. Kalaivani, Mr. Rajesh, and Mr. Siva Kumar talked of their achievement with MS.

2. Creating Awareness in Chennai Metro Rail Stations.

Our committee members and volunteers in large numbers displayed standees banners and literature on MS was handed to the public at large who used the Metro Rail. The highlight of the event was that Metro Rail had opened up 10 new stations to the public 5 days earlier, and to encourage its use, the train rides on the length and breadth of the Metro Rail was free. So more number of people against our expectation thronged the stations. The highlights were that in 2 particular stations, Metro Rail, Central Mofussil Bus stand, Egmore Station–where long distance trains go down South and the local suburban electric trains meet, was our greatest awareness point – average 20,000/- people pass thru these 4 points everyday- huge awareness about Multiple Sclerosis.

3. The Cinema Screen at AGS Cinemas in Chennai

Courtesy to Mr. Sivakumar of AGS Cinemas: A slide portraying MS and its symptoms were shown on screen from Friday (25th May) to 30th May at noon, evening and night shows. This created a lot of awareness among the public at large.

4. Rajiv Gandhi Government General Hospital and Medical College, Chennai.

The Chief Guest was the Hon. Minister of Health and Family Welfare, Govt. of Tamil Nadu.

This was in presence of the dean of the college, Dr.Mrs. Jayanthi, heads of all the 16 departments in the hospital, nurses, paramedics, physiotherapists, pharmaceutical company representatives, patients and press in attendance. 5 MS patients received MS AMBASSDOR AWARDS while Dr. Sarala ( Dept of Neurology) and Mrs. Ann Gonsalvez (Chairperson, MSSI, Chennai ) received MS CRUSADER AWARDS from the minister. Orange balloons were released into air, a CD on MS was released and Orange lights lit up the hospital building. It really echoed the theme “Bringing us Closer”.

5. BNY MELLON – Our CSR Partners held a Poster competition highlighting their ideas of MS.

On 30th May Evening , at DLF cybercity we had an indoor programme with BNY Mellon( our CSR partner) employees, MS persons, caregivers and Office staff. They had a completion of posters among the employees and MSP”s had the PRIVILEGE of judging the best three posters. Awards were given to the best three posters by MSSI. BNY Mellon volunteers had a small entertainment with a song, dance, and a talk show by our MS ambassador, Mr. Gopi. There was talk by 2 BNY Mellon Volunteers on how much their life and attitude has been guided after their association with MSSI,Chennai.

6. Lighting up in Orange

To mark the 21st year of the FUNCTIONING of Multiple Sclerosis Society, Chennai Chapter, 21 Prominent Buildings supported us by lighting in “orange’ colour…to name few :Rippon Building, Commissioner-Corporation of Chennai, Acropolis, Bergamo, Office of the Commissioner of Differently Abled, Office of Inspector General of Police, Hablis Hotel, Ashok Leyland corporate office, Raymond showroom, NIEPMED, Tamil Nadu Government Multi Super Speciality Hospital and The Rajiv Gandhi Government General Hospital – (2 of the largest teaching Hospitals), BOSCH Limited, Deutsche Bank, Apollo Hospital Administrative Office, Rajan Dental, etc.

7. Radio Talk Show

We thank Radio Chennai live 104.8 FM for broadcasting a live talk with Dr. Sivarajan Thandeeswaran, a leading Neuorlogist who spoke, on recent developments in MS – research, treatments and drugs.

World MS Day 2018 – Pune

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MSSI Pune had organised an Event at SGS Mall Pune to mark the World MS Day and to create awareness on Saturday, 26th May, 2018 between 5.00 pm to 7.00 pm.

At the outset, Committee member Mrs. Chandrakala Shetty welcomed all present. Chairperson Mr Banerjee briefed the Mall audience, on Multiple Sclerosis (MS) and the role of MSSI.

Besides the Mall audience, MS persons, caregivers, volunteers and donors were also present for the occasion.

The Programme started with musical entertainment by professional artist Mr Jitendra and his troop. This was followed by “One minutes games”. MSPs and Audience took active part in the event.

Volunteers from our Corporate Partners BNY Mellon presented a Dance Performance.

Video clips of Bollywood stars with motivational messages for MSPs were then played. This helped in raising the awareness on MS and was very much appreciated by all present.

Mr. Banerjee handed over certificated to Student volunteers who visited doctors in the GP Outreach program.

Mrs Grant, our founder Chairperson felicitated the MSPs and caregivers present.

The event ended with vote of thanks to Mall Management and the formation of human chain to show our solidarity in fighting MS.

 

World MS Day 2018 – Mumbai

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On Occasion of observing World MS Day ,MSSI, Mumbai along with Lions Club of Juhu, had organised a Rejuvenating Evening on Saturday 19th May, 2018. Time: 4.30 pm- 7.30 pm at Rotary Club of Juhu, Mumbai.

In all 160 people including 36 MSPs were present. The first Event was Brain Yoga & Laughter Therapy by Mr R. Kumar Bhat. A qualified Aerobics  instructor. He made everyone to participate in different forms of Laughter Exercises.

On this World MS Day, MSSI Mumbai Chapter had organised a Writing  Competition. We had invited stories, essays & poems from MSPs & Caregivers on the theme “LIVING WITH MS” . We received tremendous response.In all there were 56 entries from all over India.

The main highlight of the evening was Prize Distribution. We were fortunate to have two well known Judges from literary field: Mr Nilu Damle ; Journalist, Author& Critic &  Mrs Anjana Karnik ; Author & Poet.

Both the Judges were touched by the inspirational Articles written by MS patients & it was quite difficult for them to choose the winners. Ultimately 14 participants were selected as Winners from 56 entries. They were given cash prize of Rs1000/- each. All the 56 participants received a Certificate of Participation & a gift of beautiful Photo frame.

​ By year end , we would like to ​compile the selected Entries in a book.

The Program ended with relaxing Music Therapy– By Ashish Kasbe. – Music Therapist.On behalf of Lions Club, Mr Hiten & Zarna  sponsored delicious refreshments to all present. They also paid the rent of the hall and made all the necessary arrangements to make this Program a big success.

We thank Sanofi India Limited for partly supporting the Program. Last but not the least we thank all MS families, Managing Committee Members & MSSI Team.

Symposium on MS – Pune

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On 10th May 2018, MSSI Pune  Chapter organised a meeting of doctors belonging to the Hadapsar Medical Association  to create awareness about Multiple Sclerosis among  general practioners and  bring them closer to MS persons. This is in keeping with the WMSD 2018 theme #bringing us closer.

The symposium started at 8.00 am and went on to 9.30 am.  Total attendance was about 65 people including MSSI office bearers and staff and four student volunteers.

Dr.  Shripad Pujari, a well-known neurophysician  and  President, Hadapsar Medical Association presided over the meeting along with Mr. J.P. Banerjee, Chairperson MSSI Pune.

The meeting commenced with Mr. Banerjee  speaking about MSSI, it’s aims and aspirations and its role in improving quality of Life of MSPs.

Dr. Nilesh Palasdeokar , eminent neurologist and our invited guest for the occasion, gave an extremely easy to understand power point presentation about MS. This gave the audience an easy to grasp understanding of MS.  The symposium was then thrown open to the audience for a question answer session.  Several doctors raised  pertinent questions which were cleared by Dr. Nilesh.

We then distributed brochures to the doctors. One side of the brochure carried a copyrighted article about MS by Dr. Rajas Deshpande, Head of Neurology Dept, Ruby Hall Clinic, which he had kindly given us permission to use.

The symposium was followed by breakfast

Fundraiser Program at Pune

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An MSSI Fundraiser event called Retro Beats Songs of yesteryear by Ambrish Bhattacharjee & Fusion Beats Dhara 2.0 was held on 18 February 2018 at  Cinema Hall of Poona Club.

The program started at 7.00 pm. Chairperson Mr. Banerjee was introduced to the audience by Mrs. Asha Merchant Hon. Jt. Secretary. Mr. Banerjee gave a small welcome speech and introduction of MSSI. Founder chairperson Mrs. Mini Grant was called upon to release the souvenir.

The main event started by 7:15 pm by songs (old Hindi & Bengali) of Mr. Ambrish Bhattacharjee. His melodious voice and soulful rendering of the numbers endeared him to the audience.

During the program the souvenirs were distributed to all the participants.

A short Intermission of nearly 20 minute was observed at 8pm.During interval snacks and tea was provided to MS Persons and their caregivers sponsored by MSSI. Poona club caterers had put upsnacks stalls which everyone could access on purchase of tokens.

The program Fusion beats Dhara2.0 started after the break. Guru Shumita Mahajan and her students enthralled the audience with their dance performances. The program ended at around 9:45 pm.

Mrs. Chandrakala Shetty, Managing committee member proposed the vote of thanks. Mr Banerjee felicitated the artistes.

Committee members and Staff contributed greatly to the success of this event.

Annual Fundraising & Awareness Programme

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MSSI Delhi had the pleasure of holding a dance recital by Padmashri Shovana Narayanji .  The dance ballet “Mera Safar”  based on the uplifting & thought provoking poetry of Ali Sardar Jafri was presented by  Shovana Narayan & her Asavari  Foundation .

This was attended by our donors & supporters and MS patients who were charmed by the wonderful new Banquet space at The LaLit – the Terrace Plaza .

The programme started with a vote of thanks to all our Donors & supporters of 2017-2018 .

Programme highlights  included straight from the heart inspirational personal stories by 3 of our “MS Power Girls”. Praveen Khetarpal, Shalini Monga & Sohini Banerjee . They spoke about their journey with MS, how with support of their families & partners they were able to carry on with life. They also talked about the role of MSSI in “ bringing us closer” and making sure that they remain in the mainstream of life.

The evening concluded with Muzikafe  playing popular numbers for all present .. The rousing “ I will survive.. “ received 2 encores ! And of course the ever popular Lucky Draw  for all Donor Pass holders & MS Persons.

We remain indebted to Mrs Jyotsna Suri , CMD of Lalit Group and the wonderful Hotel team headed by Vivek Shukla for a superbly organized function .

FREE MS Clinic at Apollo Hyderabad

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MSSI Hyderabad Chapter conducts a free MS Clinic at Apollo Hospital, Jubilee Hills, which is organised quarterly, for the MS patients registered with the Chapter. This has been a very successful imitative by the Hyderabad Chapter. We started this clinic on April 2014, when Dr. Subhashini Prabhakar, Neurologist, HOD Neurology and Dr. Namita Singh, Neuropsychologist, offered to give free consultations to the PwMS.

Only 4 patients are registered for each session, so that each one gets ample time with the doctors to discuss and clarify their queries. The PwMS members have expressed their extreme happiness and satisfaction on this initiative and showed interest to participate. If any follow up has been advised by the doctors, Hyderabad Chapter take care of that too. We have got a tremendous response from the PwMS for this innovative clinic initiative.

 

Testimonials by PwMS and Caregivers


Unlike the hustle-bustle we usually see at a Neuro OPD, we were welcomed, our papers were filled, we were properly guided and taken to the three consultants without much waiting. The doctors were very accommodative, showed patience, and were ready to listen to what has been said, examined us and gave useful suggestions. Though I am a patient of a different consultant, they never even for a while thought I am an outsider. Overall experience has been excellent. Once again, A BIG THANKS to MSSI Hyderabad.

Dr. Srinivas Mondrety (PwMS)


MS society of Hyderabad has been very cordial and cooperative towards me and my sister. They came in at a time when I was totally blank of how to proceed further in treatment of the disease approximately seven years back. They have tied up with Apollo Hospital and arranged for regular check-ups from prominent neuro physicians and other related doctors that keeps a check on the unpredictable developments in the patient.

Archana Arora’s brother Manish Arora (caregiver)


Thank you MSSI – Hyderabad Chapter & Apollo Clinic Neuro Team

The word free always attracts but also gives you a negative sense of the quality of your session. But that’s not the case with MS Clinic at Apollo. The Doctors are very much committed to these PwMS meetings but also treat us like any normal person giving you the utmost importance and spending a good quality of their time with us.

Maheshwar Kusuma (PwMS)

 

Birthday cards made by artist Indira sushi Kumar for all MS persons

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Birthday cards made by artist Indira Susheel Kumar for all MS persons…free of cost….each one personally signed by our chairperson……Mandalas bringing us closer

WHY DO I CREATE MANDALAS?

Mandala” is a Sanskrit word that means “circle”. Mandalas generally have one identifiable center point, from which emanates an array of symbols, shapes and forms. A Mandala represents wholeness. The circular designs symbolize the notion that life is never ending. Many mandalas have spiritual significance to an individual or group of individuals. Mandalas are traditionally used as meditative tools and spiritual symbols. Carl Jung introduced the modern era to Mandala drawing as a form of self-discovery.

Mandalas offer balancing visual elements, symbolizing unity and harmony. They strive for a harmony of stillness and motion which provides the viewer both rest and energy. Mandalas are not planned but an intuitive and free flowing process that relaxes and heals the mind, mind and spirit not only for the creator but also for the person looking at the creation. Personally, since I derive great peace and happiness creating mandalas, I feel that those associated with the MSSI would benefit greatly by just looking deeply into the mandalas.

INDIRA SUSHEEL KUMAR

I have always been attracted towards art and creativity and this encouraged me to enrol into the Sir J J School of Art, Mumbai to pursue a diploma course in Textile designing. On completing my studies in the creative field, I added a Degree in Economics and Political Science from the Osmania University, Hyderabad.

After my education at Sir J J School of Art, Mumbai, I had set up my own studio, where batik, tie n die, and fabric painting were done on order basis. I have conceptualized and conducted two art exhibitions, comprising of my own creations

The experience of having worked in the Art Department of advertising agencies as a Visualizer helped me in the creative process. As a freelancer in the creative field for more than three decades, designing of mandaps, store windows, animations for newsletters are some of the areas where my designing and creativity comes to the fore.