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Seva Mela – Chennai

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Multiple Sclerosis Society of India – Chennai Chapter participated in Seva Mela on 6th and 7th of October 2018 at Lady Andal School, Harington Road, Chetpet, Chennai.  Seva Mela is an expression of the joy of service to humanity by bringing together social workers, corporate, volunteers and colleges under one roof. Seva Mela 2018 was celebrated as part of the Battle of The Buffet 2018. Seva Mela aims to raise awareness of key issues. It has been curated with an objective to build a bridge between society and social causes that need attention through a series of interactive and fun sessions. Seva Mela 2018 exhibited close to 100 NGO’s and it is an opportunity for the public to know their work and engage with them.

The much-needed awareness on Multiple Sclerosis was created by the distribution of Pamphlets, Handprint Campaign. Apart from that, in general, the public was also entertained to games like Carom board, Snake & Ladder, Ring game and Selfie Board. Gifts were given to the winners. The two-day event gave us a wonderful opportunity to create awareness about Multiple Sclerosis. 10 BNY Melon Volunteers proved to be handy in creating the much-needed awareness of MS.

Picnic to Chondhe Farms with MSPs

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A picnic was organised to Chondhe Farms near Lonikand, on Saturday 6th October 2018, a distance of about 25 Km from Kalyani Nagar.

Two Buses were hired from Penosh. Keeping in mind the MSP’s convenience, two pick up locations were fixed. One at the office address and another one at Narpatgiri Chowk Mangalwar Peth.

Two BNY Mellon volunteers picked up patients from their residence and bought them to the Kalyani Nagar bus stand and dropped them home after the picnic.

The Buses left from the office address at 10.00 am and reached picnic site 11.00 am. 18 MSPs, 22 caregivers, 15 volunteers from BNY Mellon, 5 committee members and 3 staff members i.e. a total of 63 persons attended the picnic.

In the bus, we served Chatni sandwiches and bananas to all the participants. The sandwiches and water bottles had been ordered from Mr Rohit Nigade a registered MS person who runs a catering business.

BNY Mellon volunteers helped wheelchair bound MSPs and other MSPs reach the Entertainment Hall where the entire day was to be spent. Breakfast was served at about 11.30 am. Volunteers served the breakfast to MSPs and their caregivers on their table. Everyone interacted with each other and were happy to talk and express themselves.

After breakfast, the DJ invited by Chondhe Farms presented few beautiful Bollywood songs. Our staff member Firoz Khoja and some MSPs also sang songs and entertained the audience.

Lunch was served at 1.30pm. As expected the volunteers did their best in serving the lunch to MSPs and caregivers. MSPs were very happy and enjoyed the delicious lunch.

Post lunch we had Magic show which was arranged by Chondhe Farms. The magician entertained the audience with his unique magic items. Magician involved MSPs and other audience members in his show which was very entertaining.

This was followed by games jointly conducted by Mrs Asha Merchant and Mr Laxman Iyer. Many novel ideas were there in these games and everyone participated enthusiastically.  All participants were given gifts.

Then our Committee Members Ms Gayatri Joshi and Mr Laxman Iyer put up a beautiful skit which highlighted the importance of the caregiver’s role. Both of them performed their parts brilliantly and everyone present was very touched with the act.

High Tea was served around 5.00 pm. The picnic activities ended at about 6.00 pm. The Buses left for their respective destination at about 6.30 pm.

 

Face to Face Programme

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MSSI – Chennai Chapter monthly meeting “Face to Face” Programme on 29-09-2018 started with the Meditation session by Dr. R.J. Kalpana on behalf of the “Institute of Heartfulness”.  Dr Kalpana, an erudite and perceptive writer and critic who received her PhD from the University of Mumbai. Professionally she is a consultant for Knowledge Management.  She also served on the Editorial Board for the Encyclopedia of Hinduism. It is a 30 minute follow up session as per the plan made on August 11th meeting. Our MS Person and their caregiver enjoyed and felt relaxed at the end of the meditation session which in turn helped them to stay active for the next session. Dr. Visalam, MD., FM (Functional Medicine) USA runs an alternative medicine clinic named Orange Ray, Nungambakkam and also Chief Medical Manager at Star Health Insurance. There were around 40 MS Persons along with caregivers, got benefited from her session. Dr. Visalam herself is an MS Person and so her connectivity worked with our MS Person. She shared her experience on MS and how she has handled life all these years from age 12 to 27 years. Her talk was highly motivating and inspiring to our MS Person. She highlighted the importance of Diet, Nutrition and MS. She also gave a few tips on Do’s and Don’t’s in their regular diet from her Trial and Error experience. MS Persons and Caregivers were very attentive and participated actively by interacting with the resource person.

The evening came to a happy ending with MS person, Mr. Ashokan and Mrs. Prema Srinivasan cutting a birthday cake to the joyous singing of Happy Birthday by all the 40 MS persons and their caregivers.

Delicious snacks and tea brought the meeting to a close.

Awareness Program in Presidency College

By | Bangalore | No Comments

The awareness program started with the welcome address by Mr. Sangam, President Rotaract followed by a presentation on MS by Dr. Shashikanth, a yoga therapist. Presentation comprised of the description of MS, causes, symptoms, types and management of the same. The doctor also mentioned the activities done by MSSI, Bangalore Chapter. Then the student Rotaract coordinator gave an introduction about the guest speaker, Mrs. Geetha Balaji. Mrs. Balaji shared her personal experience about MS and captured all the audience’s mind and soul through her motivational speech. After that, the floor was open for question and answer session by students which were cleared by Dr. Shashikanth. Then the Rotaract coordinators felicitated the volunteers of MSSI and delivered the vote of thanks. The meeting winded up by a group photo, followed by refreshments.

 

Present:
Dr. Shashikanth -Yoga Therapist
Mrs. Rani – Administrator
Ms. Meera Mariyam – Medico Social Worker
Mrs.Geetha Balaji -Member
Mrs.Padmapriyachari -Member

DAY : Thursday, September 27th 2018
TIME : 3 pm – 4 pm
PLACE: Presidency College Seminar Hall.

Cochin and Trivandrum Activities

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Satspandana Physiotherapy Centre along with Trivandrum Support Group conducted a Physiotherapy Session at Trivandrum on 05/08/2018. The same was conducted at Kochi Support Group on 20/09/2018.  The director of Satspandana Physiotherapy Centre, Mr. Sanjith gave details as regards necessary physical work out for MS persons. He demonstrated aerobics, simple stretching, muscle relaxation techniques. He also showed MS patients how to lie down and do the simple exercises and stretching for those who could not sit or stand properly. Breathing exercises were also covered in this session. The session was attended by MS persons along with their family members. An amount of Rs.12,000/- was collected by Trivandrum Support Group and handed over to MS person Vishnu Maheswari who was affected by the flood in Kerala.

Mera Sapna – MSSI Mumbai

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MSSI Mumbai visits Yashraj Studios on the sets of India’s one of the most popular singing reality show INDIAN IDOL.

MERA SAPNA Project aims at fulfilling the small Dreams of our MS friends, which the overburdened caregiver may not be able to accomplish.

On Tuesday 18th Sept,  MSSI Mumbai visited the sets of singing reality show INDIAN IDOL Season 10.

It was an ardent wish of few of our MS friends to meet the eminent judges of today’s most popular singing reality show INDIAN IDOL which is being telecasted on Sony Entertainment Channel.

We were very fortunate that Vishal Dadlani; Music composer, playback singer, music record producer, lyricist, and performer, invited us on the sets of Indian Idol. We also met today’s young sensational Playback Singer- Neha Kakkar.

It was a good interaction with the Celebrities & later we were asked to join as an audience in the show. All MSPs were very thrilled as it was a dream come true for all of US.

We are very thankful to Vishal Dadlani for always supporting our cause.

Fundraiser – MSSI Hyderabad

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MSSI Hyderabad organised a fundraiser on 9th September 2018. It was a Sufi dance concert by the world-renowned danseuse,  Manjari Chaturvedi, titled The Courtesan – An Enigma.  Actress, Nisha Singh narrated episodes and stories from the lives of well-known courtesans.

There was a gathering of about 400 people including high ranked Government officials, writers, poets, publishers, media person, our members, guests, doctors and our PwMS. An opportunity was given to PwMS Deepthi to put up a stall of her artwork near the reception which did fairly well.

The programme was highly appreciated and received excellent reviews in magazines and daily newspapers. Awareness was also made by putting up hoardings and posters at prime locations in the city. Event listing was done 15 days ahead of the programme in the newspapers –  The Times of India, Deccan Chronicle and via curtain raiser by Ratna Rao, in the Wow magazine.

Hyderabad  Chapter is thankful to all those who willingly supported the cause and our esteemed sponsors.

WALKATHON – MSSI Pune

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To celebrate World Physiotherapy Day, a Walkathon was organised by Sancheti Hospital Pune on Sunday 9th September 2018.  MSSI Pune had actively participated in the Walkathon to create an awareness on MS and the Role of Physiotherapist in providing relief to the MSPs.

The participants included Four Committee members, two staff members, five volunteers and two MSPs. There were in all 13 persons who took part in the event.

There was a spot event conducted by the organisers. People were asked to come on the stage to do the Plank Exercise. Firoz Khoja, our staff member also participated in this event.

The Walkathon had 3 categories of events (a) 5 KM Walk (b) 3 KM Walk (c) 1 KM Walk. The two of our volunteers went for 5 KM event, the majority of us walked 3 KM. One MSP did 3 KM and one MSP did 1 KM Walk.

All of us were wearing MSSI Cap which was very much appreciated by the organiser.

The Walkathon started on time as scheduled from Sancheti Hospital and proceeded towards Jangli Maharaj Road and returned to the starting point after completing the planned distance.

Later Sancheti Hospital provided refreshment to all participants. Free icepacks were distributed to the needy persons. We exchanged views with other participants and distributed our Brochures to familiarise them with the activities and the role of MSSI Pune Chapter.

The Program ended at 8.15 am.

Face to Face at Express Avenue

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Our Chennai Chapter monthly “Face to Face” Programme, saw our MS Warriors sit facing the cinema screen in Express Avenue cinema theatre on July 21 2018. They were there to spend a Saturday afternoon with their family and caregiver to enjoy the movie “Tik Tik Tik” an entertaining movie with sci-fi theme of science inter-wined. Popcorn and a soft drink gave them a good fill-up during the interval. The movie kept them spellbound circling in science for 2 hours and 30 minutes. When they came out of the theatre their smiling faces said it all… another movie was their talk for that evening.

ICTRIMS – An Update

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We are back from ICTRIMS and as promised here’s the update!

In consultation with chapters heads and the governing council members who believed that showcasing MSSI as one of the largest and the only patient welfare organisation having a national presence is critical. We all agreed that now there is a greater need to increase awareness within various ministries (Centre and state) as well as within the medical fraternity especially the neurologist.  We identified 3 key areas to work on i) build the National Registry ii) set up the Medical Scientific Advisory Committee & iii) participate in India’s largest neurology conference – ICTRIMS.

While work on 2 of the 3 key areas is underway, we have just attended a very successful ICTRIMS conference. Attending the ICTRIMS with representation from all chapters created the much-desired impact on the services we provide to our registered members. It was heartening to hear almost every doctor mention MSSI and their desire to work with us to help MS persons understand and manage MS better

Our heartfelt thanks to Sanofi Genzyme, Dr Kameshwar Prasad, Dr Suresh Kumar without whose support this would not have been possible. A BIG thank you to 8 chapter heads in making MSSI participation at ICTRIMS a reality!

National Workshop 2018

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The National office welcomed its Regional Chapter heads and their representative to Delhi for a 2-day workshop in June 2018. This was the first of its kind workshop where the senior leadership team members came together to brain storm on identifying how to feed into the national initiative of Advocacy and Creating more Awareness amongst different stakeholders like policy influencer & makers.

The 2 days saw interesting and interactive sessions, games, group discussions & working out possible solutions that would help in voicing the need of person with MS in a more focused and sustained manner. Learning about most successful projects from each of our chapters through a Photo Gallery Walk Through was were enriching and inspirational

Our heartfelt thanks to MS International Federation for conducting this!

Incontinence in MS – Chennai

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Soroptimist, Chennai, an International Women’s Organisation, working for the needy, teamed up, with MSSI, Chennai Chapter, for a Medical Camp on “Incontinence in MS”  on 16/6/2018. This was to observe Incontinence Day which falls in the last week of June, 2018.

Dr. Shyamala Gopi – MBBS, MRCS, FRCS, Consultant Urologist, currently working at Apollo Main Hospital, Greams Road and Apollo First Med Hospital in Kilpauk. She has over 23 years of training  and worked in United Kingdom in Urology, and its subspecialties including Endourololgy, Laparascopy Urology, Uro Oncology, Female Urology, Neuro Urology and Urogynaecology. She is also a member Royal College of Physicians and Surgeons, GLASGOW, Royal College of Surgeons EDINBURGH PLAB, UK and International Continence  Society. She was  assisted by Dr. Arasi and a nurse, went into individual consultation, for each MS person present, both ladies and gents. In all there were about 30 MS persons, who along with their caregivers, benefited by the camp. Prescriptions were given for urine culture tests, ultrasound and other diagnostic procedures to be done. MS persons were advised to do the tests within a fortnight, they would be called to show their tests results to the doctors and take it forward, by way of medicines, exercise, etc.

Birthday cakes were cut by those who celebrated their birthday this month. They were Mrs. Gayathri, Mrs. Dolly Khanna, Mrs. Dhanalakshmi, Mr. P. Balaji, and Soroptimist, Mrs. Sheila Rao.

The meeting was largely attended and the follow up camp will be held shortly.

World MS Day 2018 – Fundraising Program

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A Fund Raising program Jagachitra was held in continuation with the camp to commemorate WMSD. This event was held mainly to create Awareness among general public & also to raise funds for the welfare of MS persons in aid of MSSI, Bangalore Chapter from Thank God It’s Saturday

Thank God it’s Saturday!’ or TGiS in short, is an exclusive group of photographers, both experienced and amateur, who despite their varied professions get together every weekend to pursue their collective love for photography. TGIS has been raising funds since 2003 has committed the entire proceeds to noble causes which includes the Rotary and the MSSI.

The collection of photographs showcases a wide repertoire of motifs, ranging across culture & festivals, monuments, flora, fauna, dances and landscapes of the India and from across the world. What makes these exhibitions so special is the display of amateur works of high standard, right alongside those of experienced and senior photographers, contributing to a liberating spirit of inclusion.

Inauguration of the exhibition:

Grand inauguration of the photography exhibition was held on May 31st 2018 at Rangasthala Auditorium adjacent to the exhibition hall. Celebrity who inaugurated the event was a famous & Award winning actress Suman Nagarkar.

There were more than thousand people who visited the exhibition every day and brochures were handed over to them. Volunteers explained the cause and briefed visitors about MS. We had a good media coverage which helped us in creating more awareness about MS.

An article about Jagachitra was published in Your story, link provided below:

https://yourstory.com/2018/06/art-for-a-cause-how-this-photography-exhibition-is-raising-funds-for-the-multiple-sclerosis-society-of-india/

https://yourstory.com/2018/06/adversity-can-open-opportunity-punkaj-gupta-photographer-multiple-sclerosis-patient/

OUR HEARTFELT THANKS TO SANOFI GENZYME FOR THE SPONSORSHIP TOWARDS THE WMSD EVENTS HELD.

WMSD at IMA Pune

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The invitation to attend IMA Annual day program on Sunday, 3rd June had been extended by Dr Padma Iyer, President, IMA.

This appeared to be a good opportunity to continue with our WMSD reach out project for GPs and general public for creating awareness about Multiple Sclerosis and MSSI, hence we decided to attend this program.

The program participants included doctors, clinical psychologists, psychiatrists, advocates, legal advisors, counsellors, Human right activist, healing expert, etc. besides the general public.

Committee members Sarita Varma and Sunita Lalwani attended this program

and interacted with all the participants and distributed brochures to them.

Disseminating information about MS and MSSI services to the medical fraternity and others present at the IMA function in such manner was a very satisfying experience

 

World MS Day 2018 – Kolkata

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Bhalo thaakar Gaan” (Good music for good life) – A soulful and enthralling musical evening was held with performances by national award winning singer Rupankar Bagchi and Sidhu (lead man of popular Bangla band – Cactus) featuring Bengali film hits and modern songs along with golden oldies in Hindi to celebrate World Multiple Sclerosis (MS) Day 2018 in support of Multiple Sclerosis Society of India, Kolkata chapter. This was held on the evening of 31st May 2018 at Kala Mandir, one of best auditorium in the City of Joy. The event was attended by over 500 music loving Kolkatans, who had joined hands to support this critical and incurable neuro ailment.

The evening took off by a welcome speech by Anirban Banerjee, the Hon Joint Secretary of MSSI, Kolkata who wholeheartedly thanked the audience and the corporates who supported the cause. The Hon. Secretary of the chapter Ms. Anuradha Goswami then spoke and stressed on spreading maximum awareness about MS across all. The same appeal was reinstated by the Chairman of the Kolkata chapter – Mr. Anand Chopra who then invited the society’s national President Mr. Viresh Oberoi who graced the occasion with his grand presence. Mr. Oberoi then invited senior neurologist of Bangur Institute of Neurosciences, Dr. Gautam Ganguly who spoke at length on the new treatments getting unfolded to fight MS.

Then Sidhu started his musical performance in his unique energetic style. He performed some Hindi oldies which was very relevant to the evenings theme and also performed some Bengali hits including the much admired “Holud Pakhi” of Cactus and some folk numbers where the audience too lent their voice. One of the memorable moment of the evening was when Sidhu performed “Bhalo thaakar Gaan” – a song which was written and composed by Sidhu for the event to celebrate World MS Day 2018. Then much to delight of the present audience, Sidhu called Rupankar on stage and together they sang “Amar bhitor bahire, antare antare” and the crowd just went berserk.

The very popular Rupankar then came on stage and kept on performing all his hits one after another and the requests just came pouring in and he happily obliged too. He also performed “Sanket”, the song he had written and composed for World MS Day in 2017.

Both the performers spoke at length on MS and appealed to the present public to spread awareness and support the unfortunate people fighting MS.

The melodious evening came to an end with a vote of thanks by the Vice Chairman Kolkata chapter – Mrs. Swapna Ghosh.

The event got wide spread media coverage where event teasers got published in Dainik Statesmen and Eastern Chronicle. Post the event we got coverage from Calcutta Times (Times of India), The Statesman, Ei samay, Sangbad Nazar and online news articles with photographs in The Times of India, ibgnews.com, Sholoanabangaliana.com till date.

World MS Day 2018 – Indore

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Indore Chapter organised a medical camp for WMSD. This was attended by 125 persons .

Medical health check included sugar test, blood pressure test and Korean based acupressure therapy. This therapy was very much appreciated by MS persons and caregivers.

There was an  interactive session  on affordable treatment for MS between neurophysicians, MS persons and caregivers, guests and members of MSSI Indore Chapter.

Event ended with refreshments.

Thanks to Sanfofi for their support which helped us in organising this event.

World MS Day 2018 – Delhi

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1.Along with the rest of the world and seven other Chapters in India, MSSI Delhi  held a series of events in line with this year’s theme of research, giving all those who are curious about MS research an opportunity to meet people involved and learn more about progress in the field. The Multiple Sclerosis Society of India Delhi Chapter and India’s leading Research Centre & Hospital All India Institute of Medical Sciences held  an open day for people to meet experts working in MS research & treatment, including psychotherapy and counseling. It invited the public to learn about MS and how it affects different aspects of daily life.

An awareness Seminar was organised at India’s foremost Hospital & Medical Research centre All India Institute od Medical Sciences (AIIMS) A Panel discussion was held with 7 leading Neurologists  / Senior Faculty members of the Neurosciences Centre ( NSC) discussing the latest treatments in the search for cure for MS . Dr Kameshwar Prasad , Head of NSC AIIMS was hopeful of the results coming in from AIIMS own research  and corroborated with similar research in the rest of the world with regard to hematopoietic stem cell treatment (HSCT) . He is of the belief that in the near future we could expect that HSCT could well become the first line of treatment in MS.

This was attended by over 300 people which included newly diagnosed persons with MS, their families, caregivers, Doctors & members of the general public.

2. During MS Awareness Week, the MS Society of India’s Delhi Chapter engaged with people affected by MS as well as the wider public. An all day Awareness Booth came up at Delhi’s most popular Mall Select City Mall Saket for the whole day on Saturday 26 MayThis Mall sees the highest foot falls , with up to  40,000 visitors on weekends .MSSI Delhi put up an LCD screen showing short films & videos on MS. several thousand pamphlets on “what is MS” were  distributed along with other items like orange MS wrist bands, MS badges , ribbons etc with the WMSD & MSSI logos. Many persons with MS  and their families dropped in and bonded over coffee & pizza spending an exciting day in the Mall – some lucky mamas managed to get a quick free makeover at cosmetic stores while their kids got free balloons at other promotional events !

World MS Day 2018 – Hyderabad

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This was a unique, creative and interesting way to create MS and MSSI awareness by introducing Mandala art at Smiles old age home, Medchal – Hyderabad.  There was a gathering of about 75 people which comprised of senior citizens, trustees with their families and guests, doctors, nurses, government officials of high ranking and the MSSI team.

Colouring Mandalas was both therapeutic and meditative. It was an amazing experience to see everyone so engrossed that they forgot their lunch timings.

Mr. Prasad Gowra, senior trustee of Smiles, thanked MSSI team by gifting a token of appreciation to all the MSSI members and making a donation on behalf of Smiles.

Sparsha Hospice team present, invited us to plan a similar programme for their patients too.

Great achievement! Made awareness and collected funds!

World MS Day 2018 – Yoga

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We organised a three month Therapeutic Yoga workshop for our PwMS , comprising of Asanas and Pranayama’s,  by senior yoga therapist Kamala Cherravuri and her team. This included ten individual sessions and three group sessions. The individual sessions were tailor made for each individual according to one’s symptoms and needs while the group sessions were common to all.

A documentary of the above has been made depicting how Yoga served as a medium for bringing us closer in observing WMSD

Hope you will enjoy watching the attached video as much as we enjoyed making it happen.